My name is Helen Russell, and my daughter’s life was destroyed for months (at the very least) after taking Cipro twice in late January and early May of 2010. Heather was a HEALTHY, ACTIVE, 16-year-old before taking Cipro. Knowing what I know now and looking back on the situation, she began experiencing insomnia after the first round (750 mg. X 2 for 10 days) in January. The first pill she took in May, however, was “the straw that broke the camel’s back”. About 5 hours after this first pill, she suddenly jumped up off the couch in a panic–her chest hurt, her neck hurt, her heart was racing, her back hurt, and the list goes on and on. She thought she was dying, and we rushed her back to the E.R. that gave her the Cipro. They clearly thought she was crazy, and that her dad and I were as well. After about four E.R. visits in as many days, we finally came to realize this was anxiety. (I will not use the term “attacks”, because this was a constant state for her at this point.) In spite of telling all the doctors what the others had given her, she ended up on Hydrocodone, beta blockers, and Atarax. We finished out the remainder of the Cipro (3 days total), because we had not made the connection at this point. She slept constantly for a week, and I could barely wake her up. Continue reading
Antibiotics Nearly Killed Me — Please Read
by Bill Milligan on Sunday, December 12, 2010 at 9:01pm
Well, not exactly. But for a few months I was starting to wonder if I was going to recover. I put some serious thought into whether I should simply close up shop and call it a life. A lot of people have asked me what happened, so I’m putting the whole story together here for easy reference.
In May and June of this year I was prescribed two rounds of antibiotics. The first is called Avelox. The second is called Levaquin. Continue reading
Hi there, I am Angela and I am a 41 year old mother of two grown children. About 16 months ago I was given Cipro several times for a UTI and began experiencing severe muscle loss and weakness in my legs and arms and a rash all over my body as well. During this time and many Dr visits due to this, I was prescribed more Cipro and was told I was having diabetic neuropathy. I was scared because I am only 41 and had no other pain or anything and thought this was way to sudden and severe. I trusted my Doctor. A few months later I had a staph infection and was not doing well. I was weak and had really out of control blood sugars and infection was bad. I was given Levaquin in an IV form by the same dr who had been treating my UTI’s. This was given to me without any discussion of the potential harm and as a first drug of choice. Continue reading
Per Connie, Mike’s widow, “He passed away in 2012 at the age of 55. He had the nerve damage, tendon ruptures, depression, suicide attempts and many more injuries after taking Cipro. I don’t have a lawyer or any lawsuits. I post where I can so that what happened to him won’t be forgotten.”
Rest in peace, Mike. You won’t be forgotten.
The themes of hopelessness, injustice, anger, hatred, and unbelievable pain in the personal accounts of the floxed will, hopefully, never lose their impact to redundancy. These drugs cause unbelievable pain. Tendons turn into suicidal knives intent on stabbing themselves and surrounding tissues. The nerve pain can reach even teeth, to the point where (in my experience) closing your mouth feels like chewing on a lit light bulb. The full body stinging I can only describe as acid. Thinking is clogged shut, higher thought becomes sporadic, and remembering the first pill becomes a traumatic experience. These drugs steal lives without warning. These drugs changed me. These drugs, it seems, will never lose their impact to redundancy.
In February of 2010, I was diagnosed with non bacterial epididymitis. But just to be absolutely sure that no further complications would present themselves, Doctor wanted to prescribe Ciprofloxacin, a powerful fluoroquinolone antibiotic. “Sure, sounds good,” I did not know what a fluoroquinolone was. I did not care. I was already in pain, and if germs were the cause, the germs must go. This is what antibiotics do, right? Continue reading
Diane’s story can be found on her blog – http://dianegarcia-floxed.blogspot.com/
Alan’s story can be found through this link – http://www2.ljworld.com/news/2010/jul/12/local-man-warns-antibiotic-side-effects/
Many of the comments also share stories of pain caused by fluoroquinolones.
I’m throwing up, nauseous, and I can’t eat. I can’t walk very much, my legs start shaking and hurt when I stand for too long. I have numbness/sharp pains in my feet, my wrists hurt so bad that I can’t text, can barely type and I can’t hold a glass without dropping it. I haven’t been dealing with the side effects for very long, but anyone who has dealt with this one day knows that even one day is TOO many! Thank you Levaquin for messing up my body.
I was prescribed Levaquin and I’m only 17. Continue reading
Sondra Lareau 03/29/11
Fluoroquinolone Toxicity Syndrome
I was floxed in October of 2005. I had an ear infection or a sinus infection.. don’t remember which. I was given Avelox. I never finished the script.
… I didn’t have the slightest idea what was going on. It started with what was an apparent panic attack in Lowes and shit just went downhill from there. I had never had a panic attack before..so I thought I was having a heart attack. lol
Driving to the store I thought I was going to pass out..I pulled over and a complete stranger drove me to the ER. They said it was my blood sugar although they couldnt swear to it.
I had a few more trips to the ER and my doctor.. never any answers. I just kept getting worse.
I ended up with tremors 24/7, panic attacks, vertigo, floaters, headaches, sound and light was painful, twitches, moving was painful, I couldn’t drink coffee or dark soda, couldn’t sleep and then slept all the time. Continue reading
On June 11, 2014 Robert Grozier passed away.
The “floxie” community grieves for his passing. Many thoughts and prayers are with him, his family and loved ones.
Here is Bob’s story about how fluoroquinolones hurt him –
Brandy Chandler 03/29/11
In January 2011 I was just starting to feel better after a battle with Thyroid Cancer. It took 3 years to get the medications just right so I could just have a “normal” day. My photography business started booming and I just felt like my life was finally BACK!!!!
February 17th, 2011 I ended up in the ER due to severe pain in my head and nausea. My husband did not want to take any chances so we went to the ER. Turned out to be a severe case of sinusitis. They gave me an IV of morphine and sent me home with Prednisone, Levaquin, Phenergan, and Ultram.
Four days later I developed foot drop in the left foot. At the time I just thought I must have “tweaked” my foot somehow and then the next day my vision was very distorted. I looked at all of the inserts for the medications looking for a blurry vision side effect. That is when I saw the warnings for torn tendons for Levaquin. I immediately made an appointment with my regular doctor to have my foot checked out since the pain in my foot had escalated tenfold.
Weight: 108 lbs give or take 10 lbs
Health Prior to 2003 Floxing: Excellent. No pre-existing conditions.
Occupation Prior to 2010 Floxing: Environmental Engineer
First Floxing: June 2003
Drug Prescribed: Cipro
Reason for Prescription: Traveler’s Diarrhea in Mexico (a.k.a. Montezuma’s Revenge)
Dosage: 500 mg tablet twice daily for 10 days – I learned later that this is approximately twice the recommended dosage and duration for someone of my body weight.
- Occasional irritable bowel symptoms related to food intolerances: I did not have any food intolerances or irritable bowel symptoms prior to taking Cipro. These food sensitivities never dissipated and I still have them today, 7.5 years later.
- Severe headaches that are unilateral in nature: Prior to Cipro, I had occasional tension headaches but never experienced these severe unilateral headaches.
- Noticeable reduction in energy level: Post Cipro, I rarely felt energetic or rested even if I would get a sufficient amount of sleep.
- Weakened immune system: Prior to taking Cipro, I had a very healthy immune system. After taking Cipro, no matter how healthy my lifestyle was, I would catch every germ that went around. I went from being sick once a year, to being sick at least 6 times a year.
I was given levaquin for Pneumonia symptoms after 7 weeks of coughing and fever. They attempted to treat me with Biaxin and prednisone first but didn’t work. I called my doctor still complaining about this lingering cough and he prescribed the Levaquin . Now I also suffer from Fibromyagia and my doctor knows I am EXTREMELY SENSITIVE to all drugs with side effects. So I picked up the levaquin at 7:00pm took 1 -500 mg pill. At 9 the room started spinning to where I could not open my eyes. I live alone and was very scared. I had to crawl to the toilet to vomit and continued thru night finally to point of dry heaving. I was able to get back in bed and keeping my head very still with closed eyes it was okay. I called my friend and she looked up the side effects of levaquin and vertigo was at top of list . I waited till morning and called my daughter to take me to hospital since my doctors refused to see me right away. Got to hospital not only for the hacking cough which they said was pneumonia even though my doctor disagreed but also now dealing with the vertigo and my Fibro constant nerve pain. I wanted to DIE. It is now 5 days after ingesting the levaquin and I am still off balanced. I pray this is not a permanent thing. It’s hard enough going thru my life with my Fibro symptoms which is similar to the symptoms people are complaining about from the levaquin . And have this feeling of off balance all the time . I am angry at my doctors for giving me this drug knowing my history and they say ” well we don’t know until you take it and get the adverse reaction. We will make note on your chart to that effect now” I said thanks a lot. Needless to say I am switching doctors.
Lisa’s story –
I took 500 milligrams of Cipro/ciprofloxacin twice a day for 3.5 days in 2009, and again in 2011, to treat urinary tract infections. In 2009, I did not react badly at all and was able to continue living my life as a normal 29-30 year old. When I took Cipro/ciprofloxacin again in 2011, I experienced a severe adverse reaction to the drug.
Before I reacted badly to Cipro/ciprofloxacin, I was a very active, healthy, happy 32 year old. I enjoyed hiking, crossfit, reading, dating, dancing, traveling, etc. I was so fit that I had hiked the entire 500 mile Colorado Trail in the summer of 2010. I was “healthy as a horse” as they say and never needed to go to the doctor – except to treat the occasional urinary tract infection that I got about once every 2 years.
After I took Cipro/ciprofloxacin, I experienced the following adverse effects:
- Weakness in my legs. I could barely walk. The steps that I could take took a tremendous amount of effort and energy. I couldn’t stand for more than a minute.
- Tightness of the tendons in my legs. I had inflammation, and possibly tears, in most of the tendons in my legs and feet. My hips, knees and ankles, to simplify things, didn’t work right.
- Loss of use of muscles / loss of strength. My muscles, especially the muscles in my legs, wouldn’t move like they used to. All of my movements were slow and deliberate.
Wentzville, Missouri (right outside of St. Louis)
The pain, Charlie horses, muscles popping, deep muscle spasms, swollen lymph nodes, headaches, severe gastroenteritis, IBS, sores on my mouth, swollen tongue, insomnia, heart palpations, sore throats, confusion, memory loss, dyslexia, visions problems, hallucinations, thoughts of suicide and murder, vivid haunting dreams, extreme fatigue, my immune system shot. I remember when this all started. It started January 2005 I began to feel sick. My doctor insisted that whatever was wrong was viral. Finally the doctor did blood work and I had a bacterial infection. I remember it so well because it was around my 45th birthday and I was so sick.
March 15, 2005 this was the day I was given Levaquin. Continue reading