On July 17, 2010, I entered Alice’s rabbit hole~ Well, pushed is more like it. I am still falling down that hole, and don’t feel I have hit bottom yet. I have entered a world I don’t recognize. Even my own body is different. Nothing is the same, I have to learn about the all new, not necessarily better, me. My body no longer reacts to things the same way. I am losing hair, my body has gained, lost, gained, and then lost weight again from the tailspin it is in now. I sometimes walk as if I am drunk. My body protests with weakness and pain if I do even the slightest activity. This is not me! I used to work out daily, I painted the whole inside of my house by myself. I used to walk my dogs, work in my garden beds! What do you mean my body is exhausted just by getting dressed every day?!? What happened!?! Snap out of it!! LEVAQUIN happened! Just like when Alice drank from that ever famous bottle that said “drink me”, and changed her body and her surroundings, that is how I feel Levaquin has affected me. I am now trapped in this unfamiliar world, that I now have to make familiar. Continue reading
My name is Elizabeth (Betsy) Hamill. I was an active healthy mother of 3 who exercised regularly. Then I took 4 pills of Ciprofloxacin in Feb. of 2007 for sinusitis. I had a severe reaction. I had pressure in my head, couldn’t walk without holding onto something, was disoriented, and was extremely tired but couldn’t sleep. I thought that once I stopped taking the medication that made me sick I’d be fine as long as I didn’t take it again. I was wrong.
I felt better after I stopped taking Cipro but then I began having chills so bad I couldn’t get warm. I went skiing and had much less endurance. I developed sore knees and quit jogging. I was losing pilates holds I’d done for years. As time went on the weakness got worse and new symptoms developed. I had strange burnt orange colored urine which I later learned is a sign of rhabdomyolisis and would explain why I was losing muscular strength. I developed right foot drop, right leg weakness, and my eyes became highly sensitive to sunlight. The next winter I could barely ski 3 hours before my legs would shake so badly I had to stop. My skin aged seemingly overnight and I developed IBS and other digestive track issues. I had trouble holding a glass or utensils, had muscle twitches, difficulty sleeping, vertigo, extreme pain/temperature sensitivity, tinnitus, blurred/smokey vision, memory loss, overwhelming fatigue, difficulty speaking, random shooting pains, cramping/muscle spasms, and sensations of chills or vibrations running up and down my legs. It was all I could do to get through a day at work. The cold caused me to stiffen up severely and I developed tremors that would come and go and I had no idea why. Continue reading
My “story” is well over 100 pages long. Here it is in a nutshell –
I was the picture of a healthy and active 30 year old – 3 kids, great marriage and had a job. Life was great. This all changed in March 2007.
I was hospitalized after vomiting for 5 days and unable to keep any liquids down. 4 days into my hospital stay, the doctors could not figure out why I was ill. An x-ray revealed possibly a uti. I was given an IV of Cipro (500mg). Soon enough, I could eat, yet I could not bare weight on my legs. We thought perhaps I was just too weak.
I was sent home within 12 hours with a rx for 500 mg of Cipro. I never questioned taking it. I still assumed I was too weak to walk, I was unable to get to the counter at the pharmacy and collapsed. My husband helped me back to the car.
The following day we found out it wasn’t a “suspected” uti but Campylobacter food poisoning and I was to continue taking my Cipro. Yet, my neurological symptoms increased. I had crawling sensations in my legs and feet, they were extremely cold & felt like electrical zapping in them. Plus, I could not sleep. I did a little bit of researching and read up on Guillain Barre Syndrome as it is related to Campylobacter. We insisted on seeing my doctor. She immediately referred me to a neurologist who concluded it was an atypical hit of Guillain Barre and I was treated for it. Continue reading
in 2006 around july time i had cystis didnt think much of it and stacked up on barley water and bought some over the counter stuff you mix with water, after few weeks it got so bad i remember havin to get up in the night in agony
over a peroid of a month i went downhill tried a few presciptions but it eased for bit then came back so bad i ended up in hospital thanx to a friend of mine as doctor said just sleep it off.
There i had my first dose of cipro im pressuming i had it on iv, They kept me in for just under week and i was sent home with a 2 week 500mg course of cipro tablet form.
I started to feel dizzy on and off but just thought it was because i had been terrible ill. after a month i started to get worse again bad pains in my back and feeling the need to go to the loo alot and very tired so went back to doctor and again they gave me cipro that happened for a further 4 more courses of cipro over a peroid of 6 months after intial kidney infection. I remeber the doctor saying this is like bleach it will kill everything. I wish i took note then but trusted them.
Finally in june 2007 my parents paid for me to see kidney specialist to find out why i was ill all time and he said my kdneys were ok and i didnt need anymore antibiotics he said my bladder had become so dry for some reason and that was causing problem.
In that time i begain to feel like i was so anxious and couldnt keep still my whole body was shaking and my daughter noticied my head would shake too, went back to doctors who prescibe me antidepressants which im glad i never took. Continue reading
My name is Ariana. Writing this story is difficult for me. I never expected a medicine to affect my life the way this one has.
One month ago today, on april 3rd, I took ciprofloxacilin for a suspected kidney infection (it wasn’t a kidney infection). My doctor wrote me the prescription and I went to fill it with no problem. It was 500mg tablets that I was to take twice a day for 10 days. The pharmacist informed me that I shouldn’t exercise while taking it. That was fine with me. I didn’t exercise much anyway.
I went home and took the first pill and took a nap. I woke up feeling dizzy with a rapid heartbeat. My stomach was fluttering so I took some maalox. I thought that I was just hungry since I hadn’t eaten all day. I ate a bit of rice because I didn’t think I would be able to keep anything else down. After that I went back to sleep, my boyfriend woke me up to take my second pill. I took that and went back to bed. When I woke up the next morning I was feeling better, the pain in my side was gone. I took my third pill and got some breakfast. After eating I felt like I was going to faint, so I went to lay down. The package insert for the ciprofloxacilin was on my night stand so I figured that it was as good a time as any to actually read it. Reading it made me very scared, I couldn’t believe that my doctor would give me a medicine that could cause tendon rupture, blindness, or death! I hopped on my laptop and decided to do some googling, I couldn’t believe that the side effects would be that bad. I was shocked to find all the horrible reviews. I called my doctor right away and told him that I refused to take anymore of this drug and that I wanted something else. He prescribed bactrim. I went and picked it up and prayed that I wouldn’t have any side effects since I’d only taken 3 pills. Boy was I wrong…
I am writing to tell you my story in the hope that others will not have to face the life-changing side effects from levaquin that I have experienced. In December of 2009 I was a healthy, very physically active 43 year old mother. I worked out at least 5 days a week doing 50 minutes of intense aerobic exercise( on treadmill, elliptical or bike) and light weight training. I developed a sinus infection and was prescribed 750mg of levaquin for 2 weeks. On the 7th day of the regime I was working out when I suddenly developed a severe cramp in my left calf. I stopped and stretched, then resumed at a slower pace running on the treadmill. A few minutes later my right calf began to cramp up. I could barely walk. I went home and called the pharmacy right away and asked if there was any chance my antibiotic could have caused this. The pharmacist said “yes” and told me to stop taking the levaquin and call my doctor immediately. My doctor was shocked. He said he usually tells patients not to exercise while taking levaquin, but he had forgotten to mention this to me. My doctor believed if I rested for a few weeks and did not strain my achilles tendons that I would recover fully. Unfortunately, I continued to get worse instead. The tendonopathy spread throughout my legs, feet, hips, arms and hands. For a while I even had pain in my jaw when I chewed. Then I developed burning and tingling in my arms and legs. My husband had to carry me to the bathroom. I was in so much pain I couldn’t even fall asleep to escape it for awhile. I went to numerous doctors (neurologist, rheumatologist, orthopedic) who put me through all sorts of tests and blood work to rule out a variety of diseases. They finally had to conclude that the levaquin was the cause of all my symptoms. 13 months later, I am still unable to walk more than a quarter mile( and that I do very slowly with pain). I have to use a wheel chair or scooter when I go anywhere that I have to walk further than that. I cannot wear regular shoes because of the peripheral neuropathy caused by the levaquin. Please consider helping inform people of the possible severe side effects of the flouroquinolone antibiotics. They should be reserved for only those situations where no other antibiotics will work. Thanks for your time and consideration.
Nancy from PA
Here is my story, on July of 2010 I had a kidney infection. It was the first time that I ever had one. I consider myself real healthy and I exercise 4-5 days a week. I never ever go to the doctor. Although the infection was gradually getting better after a week, my fiance encouraged me to to go to the doctor. On April 4th 2010 I went to the doctor and I will never forget tha…t day. I lost complete faith in doctors. My doctor prescribed me 250mg of Cipro twice a day for 7 days. She stated this would clear it up completely. I was gradually getting better without any medication but I was like, “what the heck, go ahead and take it.” I picked up the drug from Walgreen and took one 250 mg once a day (I was suppose to take it twice a day but I didn’t read the prescription…thank God for that!). The first day I felt this excruciating pain on my wrist about four hours after I took the medicine. I thought that the pain was probably due to using the mouse at work for a long time so I just disregarded it. The next day after I took it, I felt the same pain but I didn’t make the connection. I also started to feel pain in my legs. The third day I took the drug, my whole right arm went numb. This is what freaked me out. That is when I made the connection with the medicine. Continue reading
Michelle Scott MacKinney
I share my story with the hope of saving others from a life of being floxed.
Because I have widespread tendonitis, my story will be brief in effort to save my hands from pain.
I was prescribed Cipro in April of 2009. The test result showed that I didn’t have an infection, but was given Cipro and told to take it “Just to be safe”. Little did I know the next five pills would change my life forever.
I felt off the next couple of weeks, almost in a daze with increased anxiety and fatigue. I contributed this to over extending myself at work and fought through it knowing that summer was just around the corner. Then I woke up one morning and had severe pain in my fingers on my dominant hand. Within a week I had this crawling/tingling feeling in my forearms and was unable to perform any repetitive task without getting this extreme nauseous feeling. Within three months my lower body was experiencing similar symptoms as my upper body. Other than my core my connective tissues throughout my entire body felt like string cheese and as the days passed I felt I was being pulled apart physically and emotionally. The next year would bring a long list of side effects including: widespread tendonitis, hives, joint pain, extreme muscle aches, pulsating nerve pain and the list goes on. Because I had been athletic and active all of my life with no prior health problems my symptoms became quite alarming. Continue reading
May 5, 2004. I was having dinner at Le Cirque at the Belaggio Hotel in
Las Vegas. It was my wedding anniversary and I was in one of the finest
restaurants in town. I had a $58.00 steak and payed the price for 6
years. Eight hours later I was rushed by the hotel security to a cab
because they didn’t think an ambulance would get there in time to save
me. The description of what Ecoli is like is too gruesome to share. I
was taken to the ER and shot up with Levaquin. The E-coli nightmare
stopped. I was to take 500 mg twice a day for 7 days. OK, I can do that,
not a problem. I slept for 4 days straight in a hotel room and boarded a
plane and went home where I was kept on Levaquin for a total of 14 days.
I could not get out of bed for 2 months. No one even recognized me
because I looked so deathly. I was sure it was the E-cloi. I struggled
with the diarrhea and cramping,the rashes, the memory loss, sore body
and broken mind. Surely it was the E-coli. Then the eight month came. It
began with itching and my lips and eyes swelling shut. Well, I do have
allergies so maybe that’s it. I began to have severe reactions to every
food I ate so I became very selective. As my food choices narrowed my
diet adjusted and i eliminated almost everything. Doctors had no idea
what this was an kept giving me cortisone shots and telling me to take
Advil for pain. They knew as much about Levaquin as I did. I had
developed full blown angioedema, a severe, and can be life threatening
condition, that makes everything from the neck up swell so badly that
the windpipe can swell shut. I couldn’t go anywhere. I needed to be
within 15 minutes range of a hospital at all times. I was down to being
able to eat rice , milk products, apples and green vegatables. I did this
for 6 years. No meat, a very hard task for a carnivore like me. I WAS
lucky enough to have a good marriage and a husband who watched me go
through all of this in disbelief and give me complete support. Continue reading
In September of 2011 my Dad was admitted to the hospital because he fell in his house bending to get his shoes. He was 93 years old and sharp as a tack. He did crossword puzzles all day long while smoking his cigars. He walked a lot and still drove. He lived alone and had a wonderful lady friend. When I got the call that he was in the hospital I told the nurse, no FQs although why would they use antibiotics for a fall but I wanted to warn them anyway. We drove from NC to FL the next morning and by the time I saw him he was not the same man I spoke to a day before. He was hallucinating. I asked the dr what happened and he said they THOUGHT he had pneumonia so they IV’d him with one bag of Levaquin. Guess nobody got my orders. He never had pneumonia and he never stopped hallucinating for the next 6 weeks when he died on November 5th 2011. Fluoroquinolones should definitely not be given to the elderly.
My name is Susan Price, I am a victim of Levaquin and have had 14 surgeries to fix torn tendons. I have been floxed forever! I am attaching a picture of myself and youngest grandson. I pay for days after holding him in my arms. I think the drug companies involved should be held accountable and responsible for the damage and devastation they have caused, by releasing this life altering drug, hiding the information, and financially benefiting at other people’s expense.
I too have been stricken with the terrible side effects of Levaquin. Had multiple courses of the drug for pneumonia before getting hit with all of the terrible toxicity impacts in mid-January. Since getting off the drug I have been fortunate that things have gotten better a little at a time. I know my life has changed, but at least… I am not dealing with the debilitating pain of feeling like an 80 year old man when I am only 50.
I will write my story more fully to share with others….but wanted to share some of the things that have helped me. First and foremost was reading “The Levaquin Tendonitis Solution” by Kerri Knox. It was eye opening and pointed me down some valuable paths. Here are some things I did that I believe have helped me eliminate most of the pain. Hopefully I can exercise again soon.
Believe it or not, it has been over 16 years since I put two and two together that I was a victim of being “Floxed”! In May of 1997 after a hysterectomy and being discharged from the hospital at the ripe old age of 46, I became quite ill two days later and was back in the hospital with an unknown infection. For 5 days I was IV’d with Floxin and Flagyl and for those 5 days I thought I was going to die! Every tendon hurt, every muscle, my heart raced, I couldn’t remember words, my eyes were blurry, my stomach was badly affected, panic attacks started to set in, tingling, burning, numbness, yet when I complained to the nurses and the doctors, they just thought it was my “condition.
When they told me I needed to take a walk, my knees were giving out on me. They were so painful. Again I questioned this, but they had no answers. After I was discharged I was given Floxin pills to continue for several more days. Continue reading
I am a clown, and a children’s entertainer. And I feared that I would never do what I loved ever again.
My Fluoroquinolone story started on December 7th, 2004 when I was prescribed Avelox for sinus infection/bronchitis. After my first dose, I got severe flu –like symptom and could not stand. I laid down and became concerned that the nausea and severe fatigue was too sudden. The next morning, I took my second dose of Avelox. After the second dose, I got much worse. I ached, couldn’t stand and felt extremely weak and nauseated. I called the doctor and told them that I believed I was having a reaction to the Avelox. They immediately had me stop taking it and prescribed a non-fluoroquinolone antibiotic. Within a day I began to feel better, I assumed, because the drug was out of my system. However, in the month ensuing I began to develop joint pain and fatigue. To my surprise, I began to lose weight. Not less than a month after the ingestion of the Avelox, nerves and muscles throughout my body began to twitch. It was maddening! Then the god-awful burning nerve pain began. I lost all my stamina and wasn’t able to stand more than 5 minutes. I had to stop working as I had no strength and the pain made my life unbearable. My PCP doctor (same office that first prescribed the Avelox) sent me to a neurologist who also gave me a brain MRI to look for Multiple Sclerosis. It was negative. I was also giving a multitude of blood tests looking for the diseases that are similar to an FQ poisoning: Lupus, Lyme and a few exotic diseases. All negative. Continue reading