Jeff’s Story – Cipro Is Poison

Jeff FQwall

Picture taken before Jeff took Cipro

Jeff’s web site is www.ciproispoison.com.  You can read more about his story there.

I lost my life to Cipro just days after my 30th birthday in October of 2009. I took just twelve pills over a six day period and have been crippled and essentially bedridden ever since. I have lost absolutely everything–my mobility, my income, my ability to live independently, my quality of life–everything is GONE. It’s a miracle that I’m even still alive, as I struggle with the urge to end this horrific existence every single day. And by “alive” I mean I’m still breathing, as I’ve certainly not been living for a VERY long time now. There is no way this is going to end well. I have put together a website to spread my story and get the truth out about the horrors of Cipro and fluoroquinolone antibiotics. If anything ever happens to me, I ask that someone please keep my site going in one form or another so that I don’t become another voiceless Bayer statistic. After all that, that’s what they’d want! Bayer would love for me to just shut up and die.

Nick’s Story – Levaquin Poisoning

Nick FQWall
Hello. My name is Nick Santino. I live in the NYC/Long Island area. I am 29 years old. I feel like I am 100 years old. My life was normal and I was a functional person prior to taking Levaquin in October of 2011. I had environmental allergies and I would get headaches and sinus infections from time to time but other than that I was normal. I had taken must lower doses of Levaquin in the past which could explain why I was getting the pressure headaches and at one time I had problems with focusing my vision. After taking 750mg of Levaquin for 14 days for a sinus infection I developed severe attacks of vertigo that sent me to the hospital. This occurred a few days after finishing the Levaquin treatment. During those immediate days following the last pill I didn’t feel like myself. I was weak and just felt weird. My allergist was the one who prescribed the Levaquin. It was obviously an overdose. I do not know if I should sue him. I have been sick for 7 months now. Over these past 7 months I have been getting worse. My most severe symptoms are: loss of balance, constantly dizzy (especially when turning my head), extreme fatigue, blurry/double vision, pains in my right arm hand leg and foot and hyperacusis. It is extremely difficult to do anything. I am basically disabled. Even thinking is hard. I drag myself to work every day. I do not know how much longer I can do it. I walk with a cane but it just helps me drag myself along. I have been to many many conventional doctors who have done many tests. No one knows what to do. I have been told I have fibromyalgia, ataxia, autoimmune diseases, Candida and other things. I should also mention that I was given a round of Cipro back in February of 2011 for an intestinal infection from eating a bad shrimp salad from a NYC salad place.


My finance left me in April. She didn’t believe I was sick. She thought I was making up the whole thing just not to get married. She also became very selfish and said she had to leave and think of herself. So I have lost the love of my life, my independence, had to drop out of my masters degree program and my life in general. Now my job is on the line. I do not know if I should go on disability or sue the doctor. I am searching for something anything that can relieve my disabling symptoms. Has anyone been successful with alternative treatments for loss of balance, dizziness, chronic fatigue, hearing sensitivities and vision problems? Glutathione? Ozone? Hydrogen peroxide? Diet? Supplements? Hyperbaric chamber? It seems like I have developed autoimmune diseases. Does any of this get better with time? Will I ever get my life back? I have been seeing an alternative doctor but all she has given me are some injections, Klonopin, Diflucan and supplements and told me to stay away from gluten, sugar and dairy. I know people have said to stay away from soy and meat with antibiotics in it. So what do you eat? I am sick of people saying what not to eat. So what do you eat? Just vegetables? I have lost almost 30lbs since getting floxed. I am so weak and frail. I made another appointment with another alternative dr who has more experience. Maybe he can help me. As I said my symptoms are increasing in intensity.
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Norah’s Story – Cipro Poisoning

Norah FQwall

I have had a blood condition that leaves me susceptible to many bacterial infections, and have had since I was 19. I have had many, many runs of antibiotics for many many reasons. I have no medical records to look at, but I believe I may have been poisoned as many as 5 separate times before this year. Here is the story of my poisoning.
In spring 2011, I separated from a long and soul killing 8 year marriage, took a job in Alberta and moved to Edmonton from BC. I was determined to go into my 45th year healthy and happy, and started a fitness routine and healthy eating plan of salmon, chicken, brown rice, veggies and fruit. No processed sugar, no gluten (been off that for years).


In October of 2011, I was jogging to work as usual. It is about 5 k, and I noticed a hip pain. Within 3 days, I was unable to walk on my hip, and had to cease jogging. I continued to walk, but the pain intensified and within a week or two, I was unable to walk to work as well. I simply stopped the exercise believing it was an exercise related injury, and as I sat all day at work, things settled down. In January of 21012, I went to the gym (gained weight sitting around doing nothing), and the pain was instantaneously back.


In January 2012, I started a new job. I was on my feet all day, and my hip progressively got so bad, that the knee and ankle became involved. I was also exhausted, suffering from multiple mouth sores, skin infections and I couldn’t eat due to nausea. I went to a walk in clinic (new to province, no doctor), I saw a doctor who ran blood work as a matter of course. My white cells were low (normal for me), and I had an enzyme in my pancreas that was acting up.
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Amanda’s Story – Levaquin Side-Effects

Amanda FQWall

II Corinthians 4:16-18 “For which cause we faint not; but though our outward man perish, yet the inward man is renewed day by day. For our light affliction, which is but for a moment, worketh for us a far more exceeding and eternal weight of glory; while we look not at the things which are seen, but at the things which are not seen: for the things which are seen are temporal; but the things which are not seen are eternal.”


First of all, I want everyone who reads this to know that there is hope of healing. Never ever give up hope!

My name is Amanda Myers and here is my story:

On November 17, 2011, I went to my doctor with back pain thinking it was perhaps a UTI or kidney infection. I had been to my doctor the day before, because it had been a while since my last checkup and I was feeling tired all the time and aching. He did some blood work and my iron and potassium were low, so he prescribed iron and potassium pills. However, the next day my back was hurting, and I could not even lie down or barely sit in a chair. The doctor had me come in for a urinalysis, but this was negative. He drew blood and sent it off to check for further kidney issues. He did check my back and it was sore in the area of my kidneys. He prescribed me Levaquin ( I took the generic form) 750mg once a day for 7 days.

He did not warn me about any harm this drug could possibly do to my body. He did say that this was one step under going in the hospital. So, after the first dose I noticed my knees started to pop a little. No big deal since there wasn’t any pain. I played basketball and volleyball in school and had some minor knee injuries, so this wasn’t even a red flag. Second day and second dose was when I started getting a little sore in my joints and feeling a little weak. At this point, still thinking I had a kidney infection and that this was just the infection causing me some issues. I called my doctor that night and he asked if the medicine was working. My back was still hurting. I said maybe, but I couldn’t really tell yet. By the third dose, my whole body was hurting and that night I broke out in hives. I called my doctor and he said to come in the office on Monday, and he would do some blood work to check for arthritis. He said that the medicine would help my kidney infection and to keep taking it. The hives were on my arms and he said just to watch and if they spread or turned red to call him back. Please understand that at this point I thought I had a major kidney infection, and I didn’t want to be put in the hospital. My blood work for the “possible kidney infection” was not back yet. The next morning was a Sunday, and I took the fourth dose. Two hours later I was in so much pain I was crying and was out of my mind. I called my doctor and told him that I wasn’t taking any more of the Levaquin and had flushed it down the toilet. He said that was okay, but to still come in Monday for the arthritis test. He didn’t think it was the Levaquin causing my problems.

Monday morning, I went for more blood work to test for arthritis and muscle disorders, as my muscles were also hurting. By this point I had many side effects including: nausea, loss of breath, burning sensations in sinuses, sore and blistered throat, hives, insomnia, tingling in hands, water retention in hands, high and low blood pressure, ringing in ears, rapid heartbeat, nightmares, sense of dying, tendon pain and popping, muscle pain and weakness, muscle loss, joint pain and popping, overall weakness, burning sensations in arms/chest/abdomen and back, back pain, weight loss, constipation, burning feeling in eyes, vision issues, cold hands and feet, low body temps, anxiety, panic attacks, enlarged veins, inability to sweat, muscle twitching, uncontrollable trembling, and head tremors. ( I did have two delayed side effects that are now gone – headaches and vertigo.) My doctor called me Tuesday morning and told me that my blood work for my kidney infection came back negative, and he still did not believe the Levaquin had caused me all of these problems.

November 26, 2011 was a very special day for our family. My son, Mark who is 5 years old, shot his first deer. A 6 pointer! He was so excited! At the same time that my husband and son were hunting, I was at the emergency room with my mom. My back pain was so painful that I was trembling and could not stop. The ER doctors did extensive blood work and x-rays. Everything was normal other than being a little dehydrated. They gave me IV fluid and a muscle relaxer. The ER doctor said that I was had an allergic reaction to Levaquin and it was causing side effects. THIS had been what I was trying to tell my doctor since my third dose! One of the ER nurses was truly my guardian angel. She told me to research FQ side effects and ADR’s online and to check for doctors in our area who have treated FQ toxicity.


That night I found a site where Jenne Wilcox had posted a reply that had the FQ Toxicity FB page listed. I found this page and also found HOPE! These people helped me more than any doctor. I cried when I read the stories of people who have healed from FQ toxicity, because at this point I was thinking that my life would be over soon.
I can honestly say that today (5 1/2 months later) I am about 85% better than I was.

Debra’s Story – Ciprofloxacin Poisoning

Debra FQwall

My name is Debra-Jolie Anderson, I am a 45 year old wife, mother of three grown children and the grandmother of a beautiful 4 year old granddaughter. Prior to last November I was a healthy active woman, who enjoyed her family and life to the fullest. My husband was days away from retiring and he had just bought a Harley Davidson touring bike for us to tour the country on this coming year. My life was looking like a dream come true. I had no clue that a storm was about to enter my life and shake it to its very foundation.

I woke-up on Nov. 1, 2011 with stomach cramping, diarrhea, and a low grade fever. I hurt all over and was wiped out, so I called my doc and she said it sounded like a stomach bug and then right over the phone she prescribed ciprofloxin, 500mgs. twice a day for five days. I thought nothing of it and went to the pharmacy to pick it up. I started it that day. By Nov. 5, 2011 I had finished the drug and felt mildly better. Three days later I would wake-up with the worst pain in my right ear. I was certain I had a terrible ear infection and immediately called the doctor. This time she had me come in, but to my surprise there was no infection. I could not believe this because I was in such horrific pain. I was sent home and told to see an ENT. By the next day the pain was unbearable and now I had noticed that I could barely hear out of the ear, although I was having extreme ringing in it. I also noticed that I was so dizzy that I needed help to even sit up and I was now very sick to my stomach. My husband said we needed to get to an ER something was very wrong, so off we went.

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Fran’s Story – Levaquin and Fibromyalgia

Fran FQwall

I took Levaquin for an sinus infection that would not go away and I had fluid in my ear. I had a terrible amount of increased pain in my Achilles tendon that was bothering me. Having fibromyalgia, pain is always a problem, but Levaquin made it worse. It took awhile to get out of my system. I was fortunate, and I am starting to feel better. I had horrible stomach pain while taking this drug also.

I made sure all of my doctors knew how terrible these drugs are, and patients with fibromyalgia should never be given these drugs. I was really upset at myself for not researching this drug before I took it. From now on I read about the drug before filling the prescription.

Rachel’s Story – Levaquin Poisoning

Rachel B FQWall

 I was given Cipro for chronic kidney infections, and Levaquin for chronic bronchitis and sinus infections. In 2006, I took Levaquin as a precautionary measure for a cough I was developing. It turned out that I didn’t even have an infection that time.

The side effects from the Cipro were mostly CNS related. Dizziness, body-wide jerking and twitching, body wide pain in my joints and muscles, muscle weakness, bilateral nerve damage, mostly in my arms. Nerve conduction tests showed extensive nerve damage. My body temperature drops and I often cannot get warm. The list of side effects is too long to type all of them out, but the ones I just listed were the main ones.

In late 2006, I ruptured my Achilles tendon in my right ankle, which required surgery. The rehab took a long time and along the way, I was having pain in my left ankle/heel. The surgeon who operated on me said that he thought it was just tendonitis because I was shifting my weight to my other foot while recovering from surgery. I complained several times to him about it, but always got the same answer. I felt like something was really wrong in my other ankle. I turned out to be right.

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John’s Story – Levaquin Poisoning

John F FQwall

http://www.levaquinadversesideeffect.com/
http://www.michigandaily.com/opinion/letter-editor-coleman-should-help-levaquin-patients

John’s Story: I was prescribed Levaquin in 2005. I could never have imagined that something as simple as an antibiotic could cause such devastating long term suffering. I have burning nerve pain and tendonitis. I also have central nervous system damage from Levaquin that includes insomnia, tremors, chemical sensitivities, food intolerances, head pressure, and vision abnormalities. The pain medications help but I hate being on them. I have had some improvement from my acute stage but I seem to have leveled off over the last couple years. Continue reading

Mark’s Story – Levaquin Poisoning

Mark G FQWall

FLOXED!

I was floxed with Levaquin in the fall of 2007, probably before and since as well, but I’m not certain. Unfortunately, I also had another major medical mishap at the same time, as the Sierra Heparin and saline syringes I was given to rinse the PICC line in my arm were contaminated, so it has been hard to tell which horrible health problems came from which disaster. In fact, I just heard about the problems with Levaquin a few weeks ago and was pretty sure it was one of the many drugs I took during this long miserable ordeal. I dug through piles of old medical records and there it was; I took Levaquin orally just before my Peronial tendon ruptured. Continue reading

Karen’s Story – Levaquin Side-Effects

Karen FQwall

Karen’s story: I was given Levaquin in an IV for a back procedure on December 9, followed up with 750 MG Levaquin for 5 days. By the second day, my right calf hurt and by the 4th day, I could no longer walk. The pain management PA told me it was fibromyalgia or the flu–still will not admit that it is the Levaquin. I will never go back there. I cannot sleep, cry all the time, and have excruciating muscle, nerve and tendon pain and it feels like electric shocks are traveling all over my body. I had a total knee replacement October 19 and the pain from this is worse than the pain from my knee replacement recovery. I don’t know what to do other than drinking detox teas, taking epsom salt baths and making vegetable juices that are supposed to have anti-imflammatory properties in them. I see my primary doctor tomorrow and am hoping she can help. She is more of a natural medicine doctor.

 

Lorri’s Story – Cipro Poisoning

Lorri FQwall

I am not the best with computers but I will try to tell my
story. I was given cipro and flagyl in July 2011 for a
“suspected” bacterial infection by a nurse practitioner. I
have a history of anxiety/depression and IBS which she was
well aware of. I did not realize it but I had taken cipro
before in 2010 when I had a cyst removed. I felt so bad
after taking it, I asked for it to be changed after 2 days
and they did and I felt better. Well, after taking cipro in
July I got severe diarrhea after day 8 and I mean SEVERE. I
had taken flagyl once before about 3 yrs. ago and it caused
some stomach issues but it was nothing like this. I stayed
on the toilet for almost 8 hrs. Finally, I stood up, looked
in the toilet and saw blood (sorry if tmi). That was my
first trip to the er. ER doc said probably a fissure from
straining, go to your dr. on Mon. This was on a Fri. night.
On Sat., I completely lost my mind – had the worst panic
attacks and anxiety EVER. I had anxiety before but never
like this and I had it mostly under control with a natural
remedy. Well, not anymore! It was downhill from there to
the point where I was ready to die. Went back to np on Mon.
She said yes, probably fissure, my IBS was probably acting
up and guess what, my bloodwork was back (that was done 4
days after starting cipro). So.. no bacterial infection, I
never even needed an antibiotic! I told her about all the
mental problems I was having and asked if she could give me
something to control the horrible anxiety and she said that
was impossible, cipro COULD NOT cause those type of
reactions and she would absolutely not give me anything
addictive.(But, it was ok to give me poison!) Bloodwork
showed blood sugar was a little high so she said I was most
likely diabetic (what! never been high before) and I should
start taking something for it. Also, my bp was 140/90, so
she put me on bp meds and sent me to have an abdominal
ultrasound because of the severe diarrhea and stomach pain.
Ultrasound was ok and when I went back for followup, my bp
was 86/60. I took myself off of bp meds and changed dr.’s!
Before I could see the new dr. I had a severe panic attack,
thought I was having a heart attack and wound up back at the
er. I was very depressed by this time, thinking I was
headed to a mental ward. EKG was good, bloodwork good
except for blood sugar a little high but less than before.
I did not know what was going on, called my parents and
scared them to death, told them to please help my husband
with the kids because I was on the way out. That night I
started googling my symptoms and found “askapatient” which
eventually led me to this page and I was saved! Thank God!
I finally figured out what was going on. Went to new dr.
(internist) who was great but didn’t really believe what I
was telling him. He really helped me though, gave me
klonopin to help with anxiety, checked bp LOTS of times and
it averaged 117/75. No bp meds! Had me to check blood
sugars for a month, they were fine. I have slowly gotten
myself back after 4 months of pure hell. I got my stomach
under control by taking metamucil and probiotics. The
anxiety and “brain fog” is so much better that I am not
using the klonopin at all. I had mild acid reflux before
but after cipro it became BAD. That was one of the things
that made me think I was having a heart attack. It is
mostly under control now with prilosec. I have a LOT of
pain in neck, back of head, shoulders and upper back that I
never had before. Went to chiro and turned out I had a
pinched nerve- still working on that. The heating pad is my
new best friend! Before cipro I walked 2 to 3 miles every
morning, for a while I couldn’t walk at all, then I could
walk but I felt dizzy, breathless, and faint. That has
gradually gotten better. I can walk about a mile now before
my calves and shins start to cramp up and burn. I am
feeling more like myself so there is hope! At one time I
was in complete despair. My whole family has suffered
through this as you all know and I have told everyone I can
not to take this horrible poison. I’m sure cipro has saved
people who have had bad infections and were at death’s door
but it IS NOT for everyone and I think there should be a way
to screen for this BEFORE you take it. I also believe it
makes any health issues you have 1000 times worse and should
only be used as a last resort. This is my LONG, LONG story
and if you read it all- bless your heart! I would be glad
to help anyone I can if there are any questions you have,
just ask.

Cheri’s Story – Cipro Toxicity

Cheri FQwall

I was prescribed Cipro 500mg for 7 days in August 2011. I ended up only taking 5 pills before this nightmare started, in which I immediately quit taking the pills. Neither the doctors, or the pharmacists warned us of the potential dangers of these drugs, or that it was such a STRONG antibiotic and that it even has a black box warning on it, and after reading online, I had one of the pre-existing conditions it said NOT To prescribe these drugs for…and still, nobody warned us. We thought it was just another simple antibiotic that I’ve always taken. I was only 22 years old, and prior to cipro I was in relatively decent health. No medical problems, no physical issues….After taking just 5 pills…my life as I knew it had been taken away from me. Instead of going out with my friends, or working to save up money to go off to college, I was stuck at home in bed/on the couch, going to stores in wheelchairs, and watching all my friends and family go about living their normal lives while I was stuck on the sidelines. This is my story, and I hope it will not happen to anyone else.

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Tom’s Story – Cipro Toxicity

Tom FQwall

 

This is my Cipro story, I am 14 months out. I’m writing some personal history, Cipro effects, and recovery..
History: I’m a 34 year old male, previously very healthy. I played football in high school, and was relatively active in my 30’s (weight training, skiing, etc). My only known allergy was penicillin. I probably took a prescription antibiotic once every couple years, (I don’t have a good medical history of prescriptions recorded, but the last antibiotic I’m sure I took was a one week course of Avelox in 2007, with no known side effects). I’m married, and have a three year old son (2 at the time I took Cipro). I have worked in the aviation field for the last 15 years, and have had no major medical problems. I consider myself independent in most of my philosophies, and probably “old school” when it comes to matters of health. One thing I find very ironic, is the amount of “illegal drugs” I consumed in my youth with no permanent side effects, and now I’m faced with life altering side effects from a prescription antibiotic. I have found my life has permanently changed from taking Cipro, some for the worst, and some for the better. You see, in the past I was running through life on autopilot, I had no patience for anything, work, money, and insignificant problems consumed my life, and in basic terms you could have called me an a$$h*le. Continue reading

Lisa’s Story – Levaquin Poisoning

Lisa BZ FQwall

“I always smile regardless of the pain because my 7 year old son doesn’t need to share in my pain, too.”~Lisa

Lisa’s Story: August 23, 2011, I was prescribed Levaquin (500 mg once a day) along with Prednisone. I took it for 5 of the 10 day prescription. The biggest mistake of my life. I had finished a Zpak but it didn’t kick the sinus infection / Bronchitis. Had I been patient, another Zpak and time would have healed me just like the other dozen times I have had this. But, I was swamped at work and needed to heal quickly. In an attempt to sleep through the “most common side effects” of most antibiotics (stomach issues), I took the Levaquin at bedtime. It worked except that I started sleeping 12-15 hours a day and I was practically comatose and confused all the time. The last night, I didn’t go straight to bed and within a half hour I was having full body spasms, was sick to my stomach and told my husband I have to go to sleep, I feel like I’ve been poisoned – I’m even hallucinating! The next day, I googled Levaquin side effects because my hair was singed on the ends. It was burned like it had been lit on fire. I thought it might have something to do with this medicine, and I pulled up Web MD and numerous other sites and all of the thousands of patient reviews were horrific, permanent nerve damage, tendonitis, life long illness…I freaked out. I obviously didn’t take any more pills, but it was too late. That night I had tendon pain in one wrist so bad that it sent me to my knees in front of my 7 year old son. I didn’t cry, I didn’t scream. My breath was knocked out of me and I had all I could do to not pass out in front of him. Once it subsided, I caught my breath and said “Mommy just fell down, everything is fine…”. I walked into the bathroom, closed the door and cried for 5 minutes. It’s happening to me. I cannot believe this is happening to me. I kept telling myself to not be so dramatic – it will go away.


The next day, when I got out of bed, every joint in my body was cracking and popping like a bowl of rice crispies. Then, another wrist pain that sent me to the floor and this time, with no one home, I screamed at the top of my lungs in agony and frustration. How could a wrist hurt like that? It felt like a butcher knife went right through it! I spent the next two days in bed from pain in my face and head combined with convulsive vomiting. I told my husband “I just took a painkiller and some nausea/vomiting medicine that should knock me out– but if I don’t fall asleep in 5 minutes, you will probably have to take me to ER because I think I’m going to die.”
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Greg’s Story – Cipro Poisoning

Greg FQwall

My name is Greg. My wife and I are college professors in California. She teaches biology; I teach philosophy. We have two sons. I’m sharing my story with you in so that you may know about this issue and help prevent people from suffering the same fate as I am. It’s too late for thousands of us, but elevating this issue could help others.

In 2009 I was very healthy. I commuted to work by bicycle, …worked out at the gym 2-3x per week, and I hiked Half Dome in Yosemite National Park, but I am typing this seated on the couch… the same position I’ve been in since March, 2010. Why? Because now virtually every tendon, ligament, and nerve in my body has been damaged by the antibiotic Cipro.

In February of 2010, I took a two week prescription for an antibiotic, Cipro (ciprofloxacin) for a suspected minor infection. One week later, I woke up and it felt like my ankles were on fire. Checking the bottle, I saw that tendonitis was a “black box” warning, so I immediately stopped using the drug and made an appointment with my doctor. I googled tendonitis treatments, and saw that I should immediately implement RICE: Rest, Ice, Compression, Elevation. I called in sick to work and sat on the couch. By the time I saw my doctor a couple days later, the pain had spread to my feet, calves, hamstrings, shoulders and hands. Continue reading