Bill’s Story – Tendon Pain from Cipro Ear Drops

Bill FQWall

Hello All,My name is Bill.I,m a 60yo who lives in Australia and a victim of cipro.I went to see my doctor and was prescribed ciproxin eardrops for an ear infection.They didn,t seem to help my ear so went back to doctors and told him my shoulders were very sore and I had a strange rash on my back.He sugested I may have tendonitis.Days later I discovered the conection ,cipro and shoulder pain ,on the internet.By this time my shoulders were a real problem.One had gone all clunky and the other, my left, had waves of searing pain.Lying down was unbearable and sleep none existant.I told my doctor that I suspected cipro, and was told , very unlikely.I got a second opinion from another doctor and he treated me like a fool.There are no warnings on my medication at all and none from either doctor.9months later and it just gets worse,awfull neck pain,twitching in my shoulder,constant fatigue,no sleep,pain that makes me vocalise at night,dry mouth, unable to lift arms above my shoulder etc.I was allways active and enjoyed playing my keyboard but that is now limited .I cant believe I,ve found myself in this situation.I now sleep alone so as not to disturb my wife .We , who are poisoned, need to warn others and let it be known,DO NOT TAKE CIPRO.
My sympathy to all,Bill

Missie’s Story – Cipro Side-Effects

Missie FQWall

This is a very hard story for me to tell. It all started four months ago with what I thought was a bladder infection. I called the doctor and had him prescribe something over phone. He called in a script for Bactrim which I took for three days but it didn’t make anything better so I decided to go to the doctor. I have a urine sample. They said there was no sign of infection but they would send it out for culture. In the meantime try cipro since its a broad spectrum drug. He asked if I had a problem with quinolone drugs. I had never taken cipro before so I told him I didn’t know since this would be the first time taking it. I took it starting march 12th for three days at 250 mgs twice a day so a total of six pills. On the third day I was walking up the stairs and felt a sharp pain in my knee. I had read about tendon issues so I immediately went online and what I read horrified me. I have anxiety issues already so reading all of these stories really put me over the edge. Five days later I got burning pain in both achilles and started to get non stop muscle twitching in my calves. I went to the emergency room and was told that this can happen from cipro and I was given lidocaine pain patches which didn’t do a whole lot. I started to get burning places all over my body and pin pricking sensations. I read all of the supplements that seemed to help people and tried many of them. Over the next month or so things seemed to be getting some better. The burning pains seemed to be dying down. I was getting sharper pains in my achilles tendons but they weren’t constant. Three months in I started doing physical therapy for my tendons and that really seemed to help the pain and strengthen them. Now just this past weekend four months in I started to get intense burning mainly in my hands and arms but intermittently in random places in my body. Some of the muscle twitches are coming back. I’m beyond terrified right now that this is going to be permanent. I’m only thirty years old and newly married. I’m afraid this is going to keep me from having a family and keeping my job. I can’t believe that this is all happening from an antibiotic that I didn’t even need. I keep trying to pray and stay as positive as I can but its very very hard. I get down very easily and cry alot. Especially because once I started physical therapy I really thought things were turning a corner. I hope that I don’t have permanent nerve damage and that this doesn’t get even worse. I hadn’t wanted to post my story before because it made it all too real that this was happening to me. But I know now it is real, it is happening and there’s not much I can do but hope that things don’t get worse and improve to a point where I can live my life and have the things that have always been so important to me.

Tamara’s Story – Ciprofloxacin Effects

Tamara FQwall

I was floxed by Ciprofloxacin February 4th of this year. I took two 500 mg doses of it, and began to feel like my leg was swelling, so I discontinued use. Two days later I was in the emergency room with what they thought was a blood clot. All tests came back negative. At this point any doctors I spoke to didn’t believe it was the cipro and I even had a nurse laugh at the suggestion of it.

It was then that I decided to look into it online and it opened up an entirely new, and scary world for me. Over the first week the pain began. I was in excruciating pain, it felt like my leg was being ripped apart. I was diagnosed with “tendon issues”, maybe tendonitis from my doctor and given percocet for pain and no other options.

I began a strict eating plan and “detox” schedule. I used schizandra tincture and detox tea, as well as eating a mostly vegan, high veggie and juicing diet. I went through many “detox symptom” days. I can’t say this has helped my reaction to be less severe than it would have been, but it’s possible. I also have been able to spend the entire 7 weeks post floxing at rest. This also could add to a quicker turn around.

It’s been a long seven weeks. My main symptoms have been tendonitis from hip to toes in my right leg. I’ve also experienced insomnia, tremors, anxiety/panic attacks, muscle atrophy from not using my leg, bouts of nausea , headaches, lethargy, burning/shooting pains throughout my body.

I am a dancer, I have been for 25 years. I competed, I ran a very successful agency for performers (including performing myself) for the last 4 years. I sold my portion of my company to move back out into BC, Canada, in nature and go back to teaching dance. This has completely stolen that from me…let alone being able to do most anything most days.

I have been seeing a naturopath who has been doing myofascial release on my leg to free up tightness. (I spent the first 5 weeks with my leg in a permanent semi bent position). We have also been doing Myer’s Cocktail and Glutathione IV therapy.

As of this week, I finally have some mobility in my leg, but the anxiety and panic attacks have worsened. I know it’s been suggested that the fluoroquinolone is stored in the tissues and I figure the myofascial release has been releasing it into other parts of my body.

The worst part of this for me is facing my greatest fear of not being able to do what I love: dance.

I have hope that i will get better, and maybe sharing what I have done will help others to gain some relief.

Lastly, I hope this serves as a warning to anyone who is thinking of taking the fluoroquinolone class of antibiotics. It’s just not worth it!

The picture I have attached is of me performing last summer in front of 14,000 people…now I can’t even walk. What a shame.

Traci’s Story – Cipro Poisoning

Traci FQWall

It has almost been 3 years since I took a 30 day supply of Cipro for a UTI that has
changed my life drastically. During the course of of taking Cipro the first thing I
noticed was how incredibly weak my body felt and fatigue hit so hard I couldn’t
keep myself awake for anything. I would sleep for days, calling in sick to work,
somedays were so bad I couldn’t even manage the phone call and slept right
through the day. A couple weeks after stopping Cipro the aches and pains started
first in the top of my feet and ankles. Then my wrists and forearms as if I had some
harsh form of tendonitis. I started wrapping my wrists, arms and feet with K Tape
on a daily basis.

I had no idea what was causing these issues, but started the research on Cipro as I
had read about tendon ruptures. I went back to my doctor whom I had been seeing
for 10 years and mentioned the problems and she immediately became defensive
and made a comment about how people should not read forums and try to
diagnose themselves. Basically she made me feel like I was way off base and had
no idea what I was talking about. That was my last visit to her. Not because I knew
she was wrong, but because she didn’t listen and very clearly did not want a simple
minded patient telling her what they felt was wrong. After all she did have 7+ years
of med school.

My eye sight started going bad very quickly which for some reason I attributed to
age (I was 41) even though it was only a matter of months after an eye doctor visit.
Within the first few months after taking Cipro I had constant tingling, numbness,
brittle feeling as if I had no muscle in my body, depression that I couldn’t control,
loss of balance and running into things that were right in front of me, anxiety, panic
attacks so bad that I would not leave the house, insomnia that lasts for days at a
time, and nightmares. I started to see a holistic doctor, not covered by insurance,
but I was hoping she could find cause of pain. I didn’t mention the Cipro I had
taken a year earlier as I thought I was wrong about the cause and thought if it was
really the reason for my problems it wouldn’t be on the market. My holistic doctor
diagnosed me with fibromyalgia and chronic fatigue syndrome and wanted to run
tests to find heavy metal toxins in my system after a couple of months of taking
some supplements such as magnesium, omega-3, vitamin K, B-12, and prescription
strength vitamin D.

We also talked about stress management due to my job and I decided after 16 years
I would leave my position and went to a smaller startup company. But the
problems persisted and after three months with the new company they let me go as
I could not make it to work, I missed at least one day a week and could not control
it. I would be so exhausted from insomnia that when I tried to close my eyes I
would see faces of people shouting at me and immediately jerk back awake.

I couldn’t explain and was afraid to tell any doctor for fear that they would label me
psychotic. Again more research pointed to Ciprofloxacin-induced acute psychosis.
Not only had I left a company I had been with for my whole career and lost a great
salary and great benefits, but I’ve lost years of time with my family. I lost moments
that I will never get back. I still have up and down days, the symptoms come and
go, short term memory is horrible and embarrassing at times.

Finally a few months ago I heard FDA announced the link to peripheral neuropathy
and started reading about what Cipro has done to others I at least know I am not
crazy. Levaquin almost sounds worse. I am not about to let Bayer get away with
what has happened and I have an appointment with neurologist coming up. 3 years
and I can say symptoms showed up from first couple of weeks during treatment and
new symptoms continued over months after completing the drug. Some even a
year later.

I’ve reported adverse reaction to FDA, signed petitions to remove the drugs from
the market, and participated in a study over a year ago with a college that
contacted me after a post I left on http://www.askapatient.com, and I’ve contacted a
lawyer and I plan to be an advocate every day of my life especially after reading
about how many others have been impacted, lost their lives, or completely disabled
on the various support groups on the internet. I don’t want to delay any longer, I
want to make sure no one ever goes through this. I am no longer ashamed and that
is because of these support boards and stories from others that are so helpful. I
appreciate every single person that has came forward to tell what these drugs have
done to them. Don’t ever let a doctor make you feel stupid when you ask questions
about medicines or symptoms. Some have such ego problems or just completely
uninformed that they don’t take the time to listen. You know your body better than
anyone.

Linda’s Story – Levaquin Toxicity

Linda FQWall

January 4, 2013 I went to the ER with kidney stone pain and was admitted overnight and given an antibiotic one time via IV because my white blood cell count was elevated. I was released the next day, no prescription to get filled, just went home.

January 14,2013 I go back to the ER with kidney stone pain and was admitted to the hospital for 3 nights/4 days. I gave the ER/hospital all of my past medical information/surgeries and meds I take just as I had done the time before. I told them in 2011 I had a torn tendon in my foot repaired and 2009 a tear in my left shoulder repaired and 2004 a tear in my right shoulder repaired. While in the hospital I was having some shoulder pain which I thought was from not sleeping in my own bed. I was given an antibiotic for 4 days via IV. When I was released I was given a prescription of Levaquin 500mg to take for 7 more days. After I got home from the hospital I started to have pain in my foot and shoulder. I got the prescription filled and read the warnings and about flipped out! I was hoping that the hospital didn’t give me Levaquin after I told them my past history of torn tendons. I began to have pain in both shoulders and both knees so I went to the hospital to copies of all my records from both times I was there. I could not believe it when I read they gave me Levaquin! I’m still SHOCKED! I’m also shocked because I didn’t have an infection either, only a small amount of bacteria in my urine. Having the kidney stone issue and a doctor telling me I need to have part of my kidney cut off I went to the Mayo Clinic in Arizona to get a second/REAL opinion. I mentioned to the Mayo doc about the Levaquin and his exact words were ” I don’t understand why doctors continue to prescribe Levaquin or any of the Quins, they prescribe it like its candy”. So as I sit here, happy I found you on FB, I’ve recently had one knee surgery and an MRI showing a new tear in my right shoulder and waiting to have MRI’s on my other knee and shoulder. My life has gone down the tube, depression, mood swings, anxiety can’t do the things I use to could do, I rarely leave my house these days. I’m 56 and have 2 young grandkids and now I’m so limited I can’t stand it! I use to go on bike rides but now I do good to get up the stairs in my house! Why on earth would a doctor/hospital/ER give me a drug that has such a strong warning about tendon issues when I told them I had 3 past surgeries for torn tendons? What is wrong with some of these medical professionals and drug companies ? PLUS I still have a freakin kidney stone and I don’t need part of my kidney cut off. What is going on??? I need a lawyer!

Stephanie’s Story – Levaquin Effects

Stephanie FQWall

I fell onto a sharp metal object on our farm in the summer of 2011, sustaining a gash in my leg and other injuries. I received minimal treatment in the ER and was sent home. Three days later my GP prescribed a 7-day course of levaquin as a precaution against infection, without mentioning side effects for a diabetic. To make matters worse, his nurse applied triple antibiotic ointment to my wound, despite my warning I was allergic to it.

When I picked up my prescription and saw the side effects included potentially permanent nerve damage, I request a change to cephalexin and started on the pills. However, the wound blistered from the ointment and I landed in the hospital the same night with cellulitis. I was again prescribed levaquin and discharged on the second day. My wound exploded with pus and blood when the stitches were removed and I was hospitalized again. A surgeon was finally consulted and started salene gauze packing. I was going numb up both legs and then throughout the body including my face and mouth. My protests were ignored. I also had extreme pain extending to all joints of the body. I was losing my hearing and vision. There were dramatic changes to my skin, which were also ignored.

I thought I might recover at home in the following weeks and months, but the effects are getting worse. I now understand the role of the autonomic nervous system (ANS), affecting my digestion, elimination, heartbeat, breathing, blood pressure, etc. My body has been thrown off course, and I do not know how much longer I can stay alive. My blood sugars are wide ranging, unlike what they were previously. I went from 125 to 106 pounds. I have muscle wasting, tendonitis and bone damage. The vision damage, macular edema where there was none previously, is the worst part. Levaquin should never be administered to high risk groups, such as people over 60 yrs and diabetics.

I had extensive testing done about 5 years previous to the fall, when I made application for a research program for diabetics at the U of M. My former doctor stated for the record that despite years of diabetes, I had no retinopathy, coronary artery disease, gastroparesis or GI problems. My circulation was good and I was an active and productive person. Now Mayo testing shows vascular insufficiency and I walk short distances with a cane.

Laurie G’s Story – Levaquin and Cipro Effects

Laurie G FQWall

I am a 42 year-old female living in San Antonio, TX. I was a daily runner, in great health, and own my own Service Dog training company for wounded warriors and civilians with disabilities. In mid 2011, I was prescriped Levaquin for an upper respiratory infection. I had a classic swollen tongue-type reaction. The doctors noted this, took me off the Levaquin, and started me on something else. In December of 2011, I went to the military ER for a bad UTI. Despite my big red band that said severe allergy to Levaquin, I was given Cipro. I asked the doctor THREE times if he was sure I could take this. I then asked the PHARMACIST three times if I could take it. (My husband, and AF Officer, was with me the entire time). I went home, took two doses of the Cipro, and my life has never been the same. I was in such excruciating lower back pain, pain down my buttocks, and down my legs into my ankles that I was probably at the ER at least 6 times during the next three months to be put on IV Dilaudid or Morphine just to dull the pain. Then, I was sent home with Vicodin. The episodes would come any time I did a lot of physical activity, so I had to stop running. I also had to lessen my hours as a dog trainer (for which I received my Masters) because of the pain. Fortunately, I had a neurologist at the military medical center who had heard of fluoroquinolone toxicity. I had many, many workups done, and also consulted with Dr. Jay Cohen in San Diego. We sued the military hospital and they settled with us for a paltry $95,000 – of which we got $75,000. I am writing this because I just got home at 5 am this morning from yet another run to the ER with excruciating low back pain – so bad that my husband had to carry me. That makes probably over 15 visits to the ER in the past two years for exactly the same pain. It is indescribable. The effect it has had on my life, my career, everything – words could never express. If I could go back and write that doctor a personal note to let him know that his “tiny”mistake changed the course and quality of my life with two pills, I would.