Michelle’s Story – Cipro Induced Lupus

Michelle Lupus

The diagnostic paperwork says, “Lupus – onset 3yrs ago: Triggered by Cipro use.”

 

Michelle’s story:

July 21st.2011 a day I will never forget. The day that I had my severe adverse reaction to Cipro.  The day prior I had went to my Dr.’s office because I felt the onset of a UTI, my children were in town and I didn’t want to be laid up in pain.

The Dr. asked me if I had taken Cipro before, I said “no.”

She then said to me really fast “If you feel pain in your arms let us know”. Then headed out to see the next patient.  I took 3 pills.. a dose and a half. An hour or so after my last pill I took I was so weak to lift my finger felt heavy.  My body ached everywhere. I then became so tired … It took my husband about 10 minutes to wake me up..to even get a reaction out of me.

Ever since then I have experienced heart racing, seizure, temporary hearing loss, stinging, burning, tingling, and numbing in my arms, legs, wrists ankles fingers shoulders…everywhere.  I have been up for hours at night crying in so much pain everywhere I just wanted to die.  So weak, exhausted. I have had loud ringing in my ears, my blood pressure has elevated to 140/100. I have never had high blood pressure. I am losing about 3 pouds a week. I have a huge loss of appetite.

I feel as though acid is running thru my veins and my body is burning inside.

These are just some of the things I have experienced , certainly not all.

Prior to Cipro I was active, loved to laugh, loved to go on walks. I smiled all the time. Now I am lucky if I can walk down 3 aisles at the store without stopping. It takes so much energy just to laugh.

Cipro has robbed me of me. Sucked everything out of me.

I didnt want my kids to have to deal with me in any kind of pain while they were here, I was doing the right thing by seeing the Dr.

What they ended up seeing was me in devistating pain, tears that will not stop and wondering if I was going to make it.

The Dr. didnt try anything else prior to giving me Cipro, didnt tell me that it had huge risks.. didnt even give me the option to choose.

I am forever scared of Dr.’s and they’re intent from now on.. never will I trust them.

I have told everyone I know to never take this , Those closest to me have seen the devistating effects of Cipro. For I have felt pain where I never knew pain existed..

My life has done a complete change.. the life I once had is gone. The mental anguish this has given me is beyond words..

everyday something new..the pain never stops.

Note – Three years after Michelle took Cipro she was diagnosed with Lupus.  Her paperwork stating that Lupus was brought on by Cipro is pictured above.

Christopher ‘s Story – Cipro changed my life forever

Swallow This

18 months ago, my liver shut down and I was diagnosed with end-stage Liver disease.  I was in and out of the hospital 13 times and the last time I was on my back for almost 3 months.  During the most critical phase of my treatment, I was prescribed ciprofloxacin (Cipro) to fight infection of the fluid that was gathering in my abdominal cavity.  I was given the Cipro in the hospital and then upon my release was prescribed 100mg Cipro daily.  The fluid eventually ceased to be a high priority concern, but even though I was under the care of several specialists, none of them were aware of the toxicity of this drug.

I was unaware of the danger too.  I was very sickly and symptomatic but figured that it was my liver causing all of these issues.  The fluid retention was directly due to my liver failure, but some of the other symptoms began to get worse and I thought that it was what dying felt like.  I can’t list ALL of the symptoms, but here is some of what began to happen; my vision began to deteriorate and I was seeing light and shadow forms.  I got glasses but grew out of the prescription in weeks.  My hearing became distorted.  I started to have a lot of forgetfulness and confusion.  When I went places I would blank out and not know where or why I was there.  I started to find it difficult to remember how to speak, I couldn’t remember the last word I said or what I was even talking about.  I was fatigued all of the time to the point where I had to lay down during my meals.  My blood pressure was so low that I had some mini-strokes and have some permanent residue from them.   I couldn’t lift my arms above my head and it was painful to stand up.  I started getting injured a lot…in bed!  I would roll over on a pillow and something tore in my ribcage.  The pain from these injuries would last about a month and this happened 6 or 7 times.  Finally my teeth started to deteriorate and calcify as well.  This happened very suddenly.  My teeth then began cracking and breaking off at the gum line.  Eventually I lost all of my teeth.  It was the scariest thing I have ever experienced in my life.   Eventually it got to the point that I felt as if I had gone crazy and there was no return.  I began planning my funeral.

My liver numbers were getting better but I was feeling worse.  People said that I was just run-down, but after my teeth fell out, I knew something was very strange.  I started to get curious about some of the meds I was taking and found an article titled “Cipro is Poison”.  In that article, the author mentions dental damage and then I started reading about the other symptoms.  I had every single one of them.  I immediately stopped taking Cipro.  Slowly, very slowly some of the most painful symptoms began to subside a little.  My memory started to come back, eventually I stopped tearing connective tissue, I could speak better and movements became less painful.  Of course my teeth are never coming back but I took Cipro for 8 months at that dosage and I am just thankful for some of the symptoms to have ended before the damage even got worse.

I do not blame my doctors.  I have great doctors, but they were not informed or aware of the long term damage that Cipro can do.  They were too busy saving my life to do the research that should have been readily available to them.  Both the manufacturer and the FDA minimize these findings and take what is plausible and try to pin it on the other’s side.  No one will admit anything.

I am still awaiting a liver transplant, but I am healthy.  Besides my teeth, the most lingering effects of the Cipro are joint and muscle pain.  I also feel my diet had a lot to do with my recovery, but that’s another topic.  The only thing I can do at this point, is NOT TAKE CIPRO!  For when I get my transplant, I have it written into my chart that I refuse Cipro in ALL situations.  I hope this helps someone to cope as the article I read, did for me.

Heather’s Story – Cipro and Avelox

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Lisa’s Story – Avelox Effects

Lisa Brady Pic

Note – Lisa Bloomquist is the administrator of this site and all of the posts have her name at the top.  This story is not Lisa Bloomquist’s story.  It is Lisa Brady’s story.  Sorry for any confusion!

In February 2012 I was suffering from a fairly severe upper chest infection and after two weeks of feeling like I was close to having walking pneumonia, I was begged by friends that I needed to see a doctor as I do not like going to docs unless absolutely necessary and very rarely ever take antibiotics ( I am sure I was floxed before in past surgeries throughout the years without my knowledge). After going to see ‘Doc in the Box’ ( Immediate Care Clinic) and my regular doc was out, I was seen by an abrupt internist, after a brief 3 minute examine, she indicated, ‘yes, you have walking pneumonia, I’ll give you this antibiotic that will wipe this infection out in two minutes flat!’. I replied, ‘Really? You know from my chart I have an autoimmune disease, is this drug ok to take with my sensitive system?’ ‘Of Course!’ says she…and it turns out after a chest xray, no pneumonia. However, consumption of Avalox has already been consumed…

Within 24 hours, the infection was getting better, the deep, crupe type cough was beginning to ease, however, I was feeling this terrible dread, like all of my happiness or positive feelings had been squeezed out of me, I know it’s a strange way to describe it, but that was the first of many, many Adverse Reactions I began and still, to this day experience, almost 3 years later, and no, it does not ‘leave your system after a few days’.

The other ‘side effects’ came on like a sunami raging not only my body, but in my head too. I was already in deep chronic pain from a fall down a deeply steep hardwood stairway in my home, resulting in many fractures in my sarcum, also my cocxyx has twisted off and had attached itself to my lower spine, and went unnoticed by the Doctors for three months in 2008, resulting in two spine surgeries and chronic pain that felt like I was turning into the girl from the ‘Exorcist’. The first night I took one 500mg Avalox, my joints felt like acid was running through my veins, and it felt as if my olfactory was destroyed, I could only ‘smell’ deep, burning rubber. Then my heart started fluttering and felt as if it would come out of my chest. That night the hellish nightmares started and it has not let up on me. I was unable to walk for up to two weeks, could not lift my legs that had turned into water and the fatigue, and lethargy are indescribable. I also experienced psychosis, deeply disturbing suicidal thoughts, could not stop crying for months ( sounds like depression!) absolutely could not hold cognitive thought process, vomiting for days on end, tremors, anxiety, hallucinations, severe dizziness, numbing, burning sensations of hands, feet, legs, bleeding gums, bone pain, dry mouth, weight gain, increased thirst, problems with speech, complete brain fog and the list goes on and on. Because of 5 pills I took, (only took 5 of 10 pills prescribed) the results have been flung far and wide:

I lost a very lucrative corporate catering contract I had under my consult for the past 15 years that at times earned me over six figure income that supported my daughter and myself.

I lost many friends that thought ‘it was all in my head’ and ‘An antibiotic couldn’t do this to you or it would be banned from the market, right?!’

I lost the person I used to be. The person whom never thought something like this would happen to me. (Humility one oh one)

I lost the ability to support myself and my daughter and now looking at filing bankruptcy, cannot get disability, almost zero child support and now living day to day.

HOWEVER, I am not going to let this devil of a drug take the rest of my life from me, from us! I have always been a fighter, even though I fight from my sofa, I will get better!

Thank you to all the FB groups whom have been so helpful and in my darkest moments, have helped me crawl towards the light…

Rob’s Story – Ciprofloxacin Devastation

Rob FQWall

I write this with great difficulty and almost at the point of despair. I have never felt as unutterably ill as I am feeling at this moment. I am losing sensation in my arms and I am having difficult gripping objects. My legs feel disconnected from my control and I walk like a Thunderbird puppet. Every part of my body is screaming at me as waves of electrical shudders start in my brain and travel outwards. I have terrible head pressure with loud tinnitus. It feels like a high pressure hose has been inserted into the centre of my brain and that my consciousness is being squeezed to a narrow point. The brain fog is painful and impenetrable and I experience no respite; only unremitting Groundhog Day hell with one difference, each day is worse than the one before. I am not exaggerating. I cannot express in words adequately what I have experienced during the last three and a half years. Please bear with me.

In March of 2009 I experienced some pelvic pain. Before this point, I had never had any pain worth mentioning. I had never had muscle or joint pain of any description, I could swim and cycle, and more importantly, I had a sharp and clear mind that was able to teach Chemistry and I was in a plum job working part-time in a local grammar school. Such times are distant memories. I saw a Urologist who diagnosed Non-Bacterial Prostatitis and he prescribed 6-week course of CIPROFLAXACIN. I took the first tablet and two hours later my life changed completely. I experienced electrical brain zaps and other indescribable head sensations that stopped me in my tracks. I was at the kitchen sink thinking I was having a fit. I knew something was wrong. Dreadfully wrong. I rang the GP Out-Of-Hours service who “advised” me to continue with the course of tablets. Foolishly I did. I should have trusted my own judgment but at that point, I still had faith in the medical profession. After all, I was a scientist! I returned to the sofa where I stayed virtually for two weeks. Brain fog descended which I cannot adequately describe. It was and still is like trying to think through an electrical mist and that somehow one is not able to think properly. Then came an awareness that something was going wrong throughout the whole body. I felt as if I had been systemically poisoned with strange pains developing everywhere. I went to see my GP who suggested that I discontinue the treatment. I did so, but of course, the damage had been done.

From then on, I rapidly descended into a hell from which I am trying to escape. Then began a sequence of visits to the A&E department. Each time I was informed that their checks revealed no abnormalities. LETHARGY AND STRESS WAS A POSSIBLE DIAGNOSIS. Take a valium!

I must be going mad.

In 2010, I underwent bilateral endarterectomise and in December 2010 I suffered a stroke – infarct in the right frontal lobe and haemorrhage in the right parietal lobe. A stroke brings with it its own physical and emotional challenges. Whilst in hospital I was given Zopiclone to help me to sleep. On discharge, it was added to my general prescription list and I took it for a year! My Neurologist, on discovering this was extremely concerned. He told me to stop taking it as it was affecting my mind and mood. I subsequently discovered that Z drugs are for very short-term treatment only. I discontinued and about 10 days I started to experience withdrawal symptoms. I was prescribed Diazepam. No withdrawal protocol was provided. After four months, I demanded that the GP get me off this stuff. I cannot believe the complacency and indifference displayed by whose vocation it is to care for the ill. I slowly withdrew, but the toll the benzo was having on my already cipro-damaged and sensitised body was becoming too much. I went cold turkey from 3mg a day on the 7th of December 2012. I am now going through withdrawal nightmare!

My damaged neuromuscular and CNS is exquisitely hyperexcited. I have insomnia of industrial proportions. I continue to have every symptom described by others who have been affected by fluoroquinolone toxicity. I feel medically abandoned, isolated, vulnerable and frightened. I don’t recognise any part of my body or personality. I honestly don’t recognise my FB profile picture. I have lost 15 years of memories. I know I used to teach but I cannot recall my subject. I have been transformed from a reasonably healthy and fit man to a mental and physical wreck.

Cipro has cost me a relationship, my livelihood, my sanity and my health, unwittingly aided by a medical profession whose attitude to adverse drug effects is one of complacency and indifference Ignorance can be rectified, wilful ignorance is abuse!

My only sin was to have a misplaced faith in doctors.

It has been a descent into iatrogenic hell. A hell that even Dante could not have conceived!

To all who read this – THINK LONG AND HARD BEFORE TAKING FLUOROQUINOLONES!

The help and support from family and friends is what sustains me. Thank you!