Stu’s Story – Permanent Peripheral Neuropathy from Cipro

Six years ago I was put on a 3 1/2 week therapy(seems so paradoxical to even use that word)of Cipro twice a day. I have been in medical sales all of my professional career and should have taken closer notice, that my legs were hurting me and should have stopped immediately. I took a generic so there is no recourse legally for the damage that was done.

I have never recovered, in fact, in many ways symptoms have grown worse. Post Cipro I was left with Peripheral Neuropathy in both feet, shins, calves, 24/7 365.

It is daily torture and difficult to live with(but its better than the alternative). I also deal with diffuse pain all over my body and no doctor can tell me the cause. I have Idopathic Peripheral Neuropathy(meaning, there is no known cause).

Each doctor I have seen, I tell them that I know that the Cipro was the culprit, to which, they look at me like I have two heads.

I have been examined, tested, leaving me again with no answer(s). I have tried Lyrica, Amytriptoline, Nortriptoline, Gapapentin, they only made me feel really spaced out, with no relief.

I have been through Electric Signal Therapy, Reif Lamp Therapy, Himalayan salt foot bathes(to leech out the toxins), also with no relief.

I visit a Restorative/Rehabilitative MD, who has had me follow various diets(Elimination Diet, Detoxing Diet, Mitochondrial Diet)and lots of supplements directed toward reducing toxins in my body, reducing inflamation, improve the daily torture. As of yet, nothing has helped.

I started several weeks ago LDN (low dose Naltrexone), which is supposed to help with the pain and discomfort. We shall see, the jury is still out.

I have been ingesting CBD Hemp Extract for over six months now, hoping that it will bring relief, but the jury is still out on this one as well.

For over 30 years I was a very serious recreational athlete. I have been around the earth’s circumference two times(52,000 miles)as a result of running the New York City Marathon, having done 12 Olympic Distance Triathlons, thousands upon thousands of miles road biking, roller blading in the street for distance, swimming, running races, as well as being a gym rat.

All of the recreation that I loved so dealy, was taken away from me. I have been so inactive that I have suffered a great degree of muscle wasting. I am attempting to get back some strength by doing Aqua Therapy(but everthing I do feels good for the moment and than I hurt even more). I know that you are supposed to be sore after exercising, but the aftermath, is more than just soreness. I have not gotten yet to a place, where I might not experience the aftermath, as significantly.

Radical exceptance is what I have been told I must embrass. I have to be thankful, for many people, have it far worse. Depression and Anxiety are always close by and without medications to help me with that, I would be far worse off.

Sitting in a chair with my feet on the floor is often times unbearable. I try to walk in spite of knowing that I am going to hurt more as a result, but one foot in front of the other is my only true option.

I try to remain hopeful, that one day, things will improve. It is very difficult to overcome feelings of hopelessness at times, but I fight that monster under my bed, to the best of my ability.

It amazes me that my local Pharmacy sells over 1200 Cipro a week and other than me, no one has been harmed, in the manner that I have.

To all of you who are in similar situations, my heart goes out to you. I pray that we will one day find some peace of mind, body and soul. For those that were harmed, but healed from the damage done, I could not be more thrilled for you.

I don’t want anyone who reads my story to feel hopeless as a result of doing so. My daugther gave birth six weeks ago to our first grand child Brooklyn(girl). We are expecting another grand child in October(a boy). After being terminated from my job of 34 years, and having 2016 as a year I would rather forget(but can’t) I landed a new job whihc I truly love. The CBD Hemp Extract has impacted my emotions in a positive way, so I do not find myself being overly negative.  There is hope to those who believe. As long as we have hope, great things are possible.

I will pray for all who suffer each and everyday, as a result of Big Pharma, caring only about how many more billions they can make, while ruining people’s lives.,

Stu in New Jersey

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

8 thoughts on “Stu’s Story – Permanent Peripheral Neuropathy from Cipro

  1. Hi Stu, I was floxed 4 yrs. ago this past Feb. 2018 w/ Cipro as well. Although mine was given in the hosptial via intrevenous. I have the EXACT same problems that you have.. EXACTLY!

    I could not walk for almost 2 yrs. and used a walker, then a cane, now.. at least in the spring, summer and fall, no need for one. Up/down stairs is excruciating. You are in my prayers, and we know one day we will receive new bodies from YAH, I look so forward to that.

    Shalom

  2. So sorry Stu. It is horrific what these poisons do. I have posted before, but to let you understand what happened to me before I tell you what I did, here it is briefly: (BTW I was injured after only one pill but went on to take three more, not making the connection. I also was given prednisone at the same time that I believe was the reason I was damaged to such a great extent.) It is hard to even describe what I have gone through. Suffice it to say I prayed for death all day, every day for a year. Due to either nerve damage or mitochondrial damage to the heart muscle, I was left gasping for every single breath, every moment of the day. I didn’t think I would make it for 10 minutes. I was like that for several months, and even after the feeling of being suffocated left, my breathing was still not normal. I was hit with so many floaters that it felt like (as a fellow floxie so accurately described) looking through egg drop soup. For months I could not see more than 2 feet in front of me. I had devastating light sensitivity (even with sunglasses, hat and holding an object in front, it was painful.) I had olfactory nerve damage that defies description it was so nightmarish, EVERYTHING in the world asphyxiated me. The closest I can come to describing it…it was like constantly being surrounded by open vats of bleach. (no way I could have live had it not finally subsided although it did not go away completely). I lost 1/4 body weight and it would take ten minute to shuffled to the bathroom, a few feet away. I had excruciating mid back pain, worse than when I had cracked ribs. It made having double phneumonia feel like a day at the beach. I felt like I was dying. There were dozens more side effects: PN in my feet and hands, spasming fingers, hair coming out in chunks, hives all over my body, torn meniscus, horrific anxiety to where I was in a constant state of panic; paranoia; complete insomnia; fluid around my heart; diagnosed with early stage macular degeneration and more. (And this is the short version!)

    So, after being thrown under the bus by doctor after doctor, I ended up with an ND that does IV therapy. I have had 100, but was much better after around 50. The one I got the most of, which I think probably helped the most with my damage was phosphytidalcholine, which is purported to help both the nerves and the mitochondria. (I also received high dose C, glutathione, myers and H2O2 (I would have been given ozone instead, but there is much overlap and this was to help with another issue.)

    Today, I am 90-some % better. I still have the fluid around my heart which need to be checked periodically to make sure it has not grown. I still have vision issues, although it is certainly clearer than it was and the sensitivity is greatly improved. My toes are still numb. I still on occasion get pelvic area pain and pressure. I don’t know if the effectiveness of IV therapy lessens with time or not (time of injury.) As for the torn meniscus, I had prolozone injections in both knees (not to be confused with prolotherapy) and so far so good! I could not put any weight on my right knee and was using a can at the time. Today I am back to doing pretty much everything I did before, although I try to avoid hard impact. The prolozone takes a few months to work, but it helps your body heal itself. MY ND did the injections but many sports medicine doctors now do it. Good for other connective tissue damage, like tendons. If that is the cause of some of your pain, I would look into that. Wishing you some recovery.

    • Wow “L”, so many similar stories. I too have floaters that appeared o/o NOWHERE, and light sensitivity myself. I still have to shuffle around to and fro, especially early in the AM’s, late in the PM’s and if I get o/o bed in the middle of the night. The excruciating pain continues throughout my body and it travels, I think mimicking fybro and MS. Prayers for you as well “L”. Thank you for sharing.

      • Interestingly, once I started the IVs one of the first things to go was the excruciating pain. (It was so horrific—worse than when I had cracked ribs—that I actually went to a local ER, after swearing off allopaths. They wanted to do a bunch of tests and I left without anything.) I hope you see some improvement.

        • me too, I’m NOT willing to be used as a gunea pig any longer, no tests, no hospitals, no more doctors. I’m trying holistic, and it’s helped. They call it all a “practice – medical practice” for a reason. **sigh** I digress.

  3. Hi Stu,
    I just wanted to give you a link to a supplement that has helped me tremendously!!
    Seanol and Ecklonia Cava – A New Powerful Healing Seaweed | Relax Into Success
    https://paulhaider.wordpress.com/2013/09/03/seanol-and-ecklonia-cava-a-new-powerful-healing-seaweed/
    I’m 4yrs and 2mos out from Cipro (and 3 other antibiotics) with steroids – I had every symptom I’ve read about. I thought I was definitely going to die.
    Anyhow, this supplement helps me with my brain issues, pain, joints, sleep, recovery time – for example when I would do a lot around the house or yard it would take me 3 or 4 days to recover. Now I can do whatever I want and I don’t need any recovery time. Also, I have PN on my back and it takes it away. It truly helps with everything Cipro caused.

    This is the one I buy
    Ecklonia Cava Extract 99% pure by Ortho Nutrition, Inc on Amazon. They’re 30$ for 60 count (a month’s worth)
    I hope you try it and get some relief.
    I pray God heals you! 😊
    P.S. I tried LDN And it made me worse, so be aware. I thought I should let you know just in case

  4. Stu, I have had a similar experience with 2 1/2 years after CIPRO treatment, in being in hospital in Hastings, New Zealand for 3 nights, being discharged 2 days ago. Over our weekend, I will post a large reply, but for now I will post a brief summary of my ideas of what is going on and what can be done about it.

    In my opinion what this CIPRO problem is –
    a. Your bacterial system goes out of balance, leaving a residue of bacteria which are resistant to anti-biotics. Technically you have Dysbiosis, a dominance of bad bacteria over good bacteria. Our guts can cope with this to a point, but when these bacteria get into our tissue with poor maintenance we have a problem. Such places are nerves, tendons, connective tissue etc. For example a single nerve cell goes from the spine to the tip of your toe and blood gets to it poorly.

    b. These Bad Bacteria have developed over millennia and have strategies to stay in the host. In my case it is probably a or many species of Pseudomonas. This is an interesting bacteria. It is Aerobic and Anaerobic, can attack plants and animals and releases toxins when under attack.

    c. To quickly deal with the pain these 2 strategies that I have used at times, one learned from Lisa.

    d. Strategy 1 – apply Doterra Digestzen Essential Oil to your skin. I applied 4 drops to my stomach skin and 15 to my right thigh last Monday Night. You rub this over the skin by hand, perhaps diluting it with cocnut oil. Its Ingredients are Anise Seed, Peppermint Plant, Ginger Rhizome/Root, Caraway Seed, Coriander Seed, Tarragon Plant, and Fennel Seed essential oils. I was able to get up from the Hospital bed and use a frame to walk about 7 metres the next morning. On the previous day, I had massive pain and could not move a step. The bacteria was releasing toxin.

    e. Strategy 2 – A parasite cleanse called Para-Cleanse,which you take twice per day, 6 different capsules at a time. This took 4-5 days to eliminate the pain when I first used it. It contains old natural remedies such as Black Walnut, wormwood and dozens of others. It will also eliminate your worms , yeasts and all sorts of parasites.

    f. Long term I am about to start taking Kyolic which the Japanese developed centuries ago. Garlic is aged for 20-22 months, fermented etc. This is taken by mouth and can pass through ANY tissue in the body over time and eliminate bacteria in nerve cells for instance. I found this years ago for a 90 year old friend who had a herpes virus in the light sensitive cells in her eyes. The Kyolic solved the problem over about 6 months. The Ecklonia Cava Extract is probably functioning in a similar manner.

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