Tammie’s Story of Cipro Poisoning

This is my Cipro story.

Prior to being floxed I was active all of my life. In my mid to late 30’s I worked on a Scuba Dive Boat. I was a water aerobics instructor, and a swim coach too. I played tennis regularly during my lunch breaks. In my mid 40’s, at the time I was floxed I was an avid Mountain Biker and hiker. I also walked or rode my bike to the gym 4-5 times every week. I walked everywhere because I lived in Baltimore where you can walk to get everything you need. In July 2011 at 45 years old, I was fit, active and never had any major physical ailments. I was in perfect health.

On July 13, 2011 I was prescribed 250mg of Ciprofloxacin to treat a “possible” UTI. (BTW: My UTI test came up negative). I took three 250mg doses between July 13th and 14th. After only 3 doses, I quickly developed pain in my feet and a tightness in my lower legs and heels. Since I had been to the gym doing calf-raises that day, I thought my muscles were tight due to exercise. Consequently I took a 4th dose not realizing it was the Cipro causing the pain in my feet and legs. After looking up the side effects I never took another pill. I was horrified!! Suddently my feet were in constant, severe pain! I also felt extremely tired everyday. My anxiety level heightened. I just didn’t feel well anymore. I didn’t feel like myself. My left foot was initially the worst. It was in severe pain even when I was sitting with it elevated. I would get shocks of pain out of the blue. All of my joints were affected. My elbows were extremely bad. I am still unable to do things I once took for granted. I was going to the gym and riding my mountain bike regularly before taking Ciprofloxacin. I walked EVERYWHERE.

When I was poisoned by Cipro, I could barely walk without being in constant pain. My heels and ankles would painfully pop and click every time I used the stairs. I couldn’t stand for more than 5 minutes without experiencing extreme pain. Think about it! I couldn’t stand to wash dishes, cook, or to even brush my teeth!! I could not stand in the shower with my back to the water because the slight slope of the tub floor would pull at the backs of my heels and cause me great pain. I couldn’t stand in the shower long enough to shave my legs. I went from walking everywhere to not being able to walk around inside my house without being in extreme pain! I used to walk to the grocery store and crarry my groceries home. I walked the 2+ miles one way to my gym 4-5 days a week too! Cipro took this away from me.

I was not informed of these serious side effects prior to taking this medication. Of course I got the little paper they always give you. I quickly looked it over and read that most of the adverse reactions occur in people over 60. I was only 45 years old when I took it. I was fit and in perfect health. I had never had an allergic reaction to any drug prior to taking Cipro. I assumed Ciprofloxacin was just like any other antibiotic I have taken prior. I assumed it was SAFE to take. I trusted the FDA, my doctor and pharmacist.

Cipro is not a safe drug. I want to know why doctors are still prescribing this POISON to someone like me who is HEALTHY?! Cipro and other drugs like it should be last resort drugs for someone who is dying! They should not be given to healthy people like me. Cipro changed my life forever. I have been in pain every single day after being poisoned by it.

I am doing better today than I was in 2011. But everyday is a another day to fight against the pain in my feet and joints. My skin has suffered too. I have severe psoriasis on my arms and legs. I never had it like this prior to taking this drug. I believe this is also a result of the Cipro poisoning.

I sent emails to Siantz and Kirk lawyers in 2011 when this first happened. They declined to help because I was not officially diagnosed wtih peripheral neuropathy. I also sent a formal complaint to the FDA and to Bayer. I never heard back from them at all. I stopped trying to pursue this because I was under the impression that I would actually HEAL!! I never expected I would still be fighting this over 8 years later. The realization that the poisoning I got from Cipro is going to be a permanent thing is a tough pill to swallow. Trust me… no pun intended. I have been fooling myself all this time. I thought this would go away. Just like any other illness. 😦 I thought my body would eventually heal itself. Sadly, this just won’t quit. Every time I feel like I am getting better, I get another painful setback.

I keep letting it go because in my mind I will not allow mysellf to accept that Cipro has caused permanent damge to my body. I decided I can endure whatever pain I have, etc. I can live with it. It will go away, etc. I dismissed it over and over again. I even tried to talk myself out of it thinking I am overweight, getting older, etc. But the fact that I cannot stand without being in pain. And the fact that my elbows get so sore that I cannot set them on my arm chair is not due to being overweight. It is not due to old age. It is not normal by any means. For over 6 years I could not even pull my bed covers up without causing extreme pain in my elbows. I can do it now. However, my elbows and wrists are always in pain. Not as severe as they once were. Yet still the pain is always with me. And my feet?! Well hell… they are the worst of the worst! That pain is severe and is unending. We cannot avoid using our feet everyday. The pain I have endured and continue to endure in my feet is indescribable.

For the longest time, I rarely talked about this because I would think to myself.. “why bother?” Who the hell wants to hear it? Not me. And I don’t want to be one of those people who bores others or drives them away with complaints about all that ails her. I refuse to be that person. I warn friends and family about the dangers of Fluoroquinolones through my facebook page. From time to time I post a warning in hopes it will help someone to avoid the pain I have endured. I tell people about it person to person too. Some doctors are even FINALLY coming around to understand how bad Cipro damage is. In the beginning every single doctor dismissed me. They would not believe Cipro did the damage it did to me.

Most people would never know, nor even conceive of how much pain I am in everyday. I guess we all deal with pain everyday in one way or another. Sadly, my physical pain is not due to natural aging. Cipro stopped me in my tracks at 45. And now at 54 I am still dealing with it.

*****

The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

*****

Amber’s Story – Death from Baytril

In Honor of Beloved Best Friend

AMBER

12/23/2006- 8/22/2019

I am writing this to help others to be aware of the names of two dangerous, destructive synthetic poisons that an ‘emergency Veterinarian” used on my dog that caused rapid and irreversible damage to all of her systems right down to the mitochondrial DNA and resulted in destroying her health and ability to walk or even sit up in a very short time.

It has taken me a while to write this since she passed away from all of their damaging, painful devastating effects on 8/22/2019.  It wasn’t until I stayed with her in her final days and hours and took care of her, that it clicked to go online and check on their side effects, that I knew what had caused this horrific disabling pain and her death.  They are both dangerous fluoroquinolones with extensive black box warnings.  Their names, in our case were: 1. Baytril ( Endofloxin) and 2. Clindamycin.

Additionally, these were given in combination with two steroids which multiply the bad side effects of both drugs ( Dexamethasone- administered during surgery), and Prednisone, after surgery. I don’t know about you, but I never thought I should need to question a Veterinarian prior to surgery to ask every drug they intend to administer during surgery but in this case it would have done no good.  I now know that she has been using this lethal and permanently disabling and destructive combo ‘routinely’ on all surgery patients and others outpatient as well for over 20 years.

Sadly and ironically, I thought I had been aware of these dangerous synthetic poisons being promoted on humans under different names: Cipro ( Ciprofloxin), Levaquan and Avalox ( and more) and had fiercely protected her from being dispensed Cipro by two prior Veterinarians ( I refused them).   I had even discussed this with the Vet – so she knew I said “ No Fluoroquinolones” but she was deceitful and averted her shifty eyes from mine and used both anyways.

You can look up all the side effects yourself but to name a few- she had them all- including death, they were:  permanent and extensive nervous system damage, peripheral neuropathy, paralysis, limp rear legs, unable to walk up any incline, rapid deterioration of also her front legs, inability to lie down on her own and inability to eat.  In the end, I realized they- Clindamycin, especially caused her “ C. Difficile”- horrible, incurable, slimy diarrhea which is painful and like sludge only oozes and drips out forever ( she never had an unformed or inperfect poop every day of her whole, almost 13 years of life).

Also in the end, she had painful intracranial seizures as she neared her final breaths and succumbed to death in such horrific, painful fashion.  The seizures, I think were listed under Baytril side effects as well as inability to walk up any incline.  It was too late for me to save her, so I planned to write here to alert and hopefully save other pets.

Meanwhile, my other remaining dog had an emergency need for surgery and I took her to my trusted Veterinarian.  As he did the presurgery estimate and bloodwork, I happened to ask him what antibiotic he planned to use ( he only wrote ‘antibiotics’ on the estimate).  I was in shock when he answered “ Baytril ( Endofloxin)”.  I shook my head vehemently “ NO” and he, being reputable and honest and honoring the owner’s feelings, looked me in the eye and said “ No problem, we have other choices to use: Clavamox ( Amoxi based) or Keflex ( cephalexin).

I ok’d these and ended up bringing in left over Clavamox from my now deceased dog, so that was what was used.

From this, I realized how there was a reason to everything since if I had not witnessed all the devastation they caused, I wouldn’t have realized what they were and googled their side effects.

Also, if not for my first girl’s sacrifice ( Amber), I might have still not asked about antibiotic choice or even recognized what Baytril was!   I could have killed, lost or maimed my remaining dog.

So Amber saved my other dog,( her sister) from her fate. God Bless Her and hug her, R.I.P sweetheart.

Now that that surgery went well and she will make it to her suture removal appt this Monday, unlike Amber who passed away before hers, I feel finally able to write this to warn and hopefully save others.

The pharmaceutical companies are marketing these heavily and we need to protect ourselves and our beloved pets from their devastation and rapid destruction on every level.  I even read they now are pushing eardrops for children under age 4, called “ Ciprodex drops” and David Perlmutter, MD ( The Empowering Neurologist) further educates us as these are extremely neurotoxic, lethal drugs which do great neurological harm with each use.

I am in shock as to how many people ( and most Veterinarians as well as MDs) avidly defend their use, all the while minimizing or denying that they have damaging effects.  I hope and pray that our story can help others avoid these very destructive and permanently disabling drugs from hurting their beloved pets or themselves.  God Bless you all and please give your pets an extra hug for Amber tonight..   She is dearly missed, but finally out of pain, I know and trust.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Teri CiproVictim’s Story of Fluoroquinolone Toxicity and Pain

Sadly and so tragicly there are millions upon millions of victims all over the world that have been seriously damaged or worse from Fluoroquinolones…even just by one Fluoroquinolone (FQ) in any form!

I was given Cipro on April 30, 2013 for 10 days (1 pill a day, but I only took 9 of the 10) for a suspected UTI, which I didn’t even end up having. My first adverse reactions started within 2 hours after the first pill, and more followed that day, day-by-day, week-by-week, and then month-by-month eventually sustaining well over 30 serious damages from head-to-toe inside and out by the 7th month…I was dying and praying every night saying “Dear God, I know that I am dying and fast…But not fast enough! Please God; please please end my suffering now!” I always loved life and always use to say that “I wish that I could live forever!” Of course forever when you keep your health. But I never along with millions millions of other FQ victims who know what happened to them, ever imagined such a hidden world and abusive medical world existed. Bayer and Johnson & Johnson with their sales rep brainwashing our medical industry for decades on how FQs are the best antibiotics ever and the safest too. I had enough doctors laugh or just simple say “that is not possible!” Sure, there are many good doctors, but they don’t even know what treatements to do…and in the end many times you end even more damaged – if you can imagine – more damaged!

It’s unimaginable, the mindboggling excruciating insane pain that most FQ victims live 24/7. Some people don’t get immediate adverse reactions … a lot of people also can get their first adverse reactions 7 months after they stopped taking these antibiotics they were prescribed for a mere cold or sinus infection or pinkeye, etc. And then there are those who have taken Fluoroquinolones 2-3 times over several years, and then whamo! Suddenly their in a wheelchair or worse!

I’ve added some links that will help bring more awareness to these most dangerous Chemotherapeutic/Anthrax Drug disguised as a simple antibiotic given for minor bacterial infections. I am from Canada, where they still give FQs like Candy to this day (2019), and now they give it to infants and children too the past several year…all for minor bacterial infections and just case infections that can many times clear up itself like colds, ear infections, etc.

Dr. Mercola’s Fluoroquinolone Toxicity Article
http://articles.mercola.com/sites/articles/archive/2014/11/01/fluoroquinolone-antibiotic-side-effects.aspx

100s of Floxie Victims Youtube Video Alerts warning the public…
https://www.youtube.com/watch?v=kbsCLkBZHOY&list=PL3bTwG8S0rZcXxRJXvlLMmBszfZt5HD_l

Long-time Advocate’s webpage
http://www.myquinstory.info/fq-faq/

I also run several FluoroQuinolone mostly public groups like Toronto FLOX (FluoroQuinolone) Public Group to bring awareness not just Canada, but worldwide too, and my YouTube channel called “Teri CiproVictim” that I started in February 2014 that’s grown to over 1000 videos from Local TV News across North America, researches, and Floxie victims advocation to the public through their videos, and more.

Have you been FLOXED??? You need to know!!! So do your research in order to protect your loved ones.

I wish everyone the best and stay safe and healthy.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

 

Jim’s Story – Cipro Toxicity

Please watch Jim’s video –

Jim was healthy and active before he took Cipro. Now he struggles to do basic activities and is in pain.

None of this is okay.

Please watch Jim’s video and share it with others. Thank you.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Stu’s Story – Permanent Peripheral Neuropathy from Cipro

Six years ago I was put on a 3 1/2 week therapy(seems so paradoxical to even use that word)of Cipro twice a day. I have been in medical sales all of my professional career and should have taken closer notice, that my legs were hurting me and should have stopped immediately. I took a generic so there is no recourse legally for the damage that was done.

I have never recovered, in fact, in many ways symptoms have grown worse. Post Cipro I was left with Peripheral Neuropathy in both feet, shins, calves, 24/7 365.

It is daily torture and difficult to live with(but its better than the alternative). I also deal with diffuse pain all over my body and no doctor can tell me the cause. I have Idopathic Peripheral Neuropathy(meaning, there is no known cause).

Each doctor I have seen, I tell them that I know that the Cipro was the culprit, to which, they look at me like I have two heads.

I have been examined, tested, leaving me again with no answer(s). I have tried Lyrica, Amytriptoline, Nortriptoline, Gapapentin, they only made me feel really spaced out, with no relief.

I have been through Electric Signal Therapy, Reif Lamp Therapy, Himalayan salt foot bathes(to leech out the toxins), also with no relief.

I visit a Restorative/Rehabilitative MD, who has had me follow various diets(Elimination Diet, Detoxing Diet, Mitochondrial Diet)and lots of supplements directed toward reducing toxins in my body, reducing inflamation, improve the daily torture. As of yet, nothing has helped.

I started several weeks ago LDN (low dose Naltrexone), which is supposed to help with the pain and discomfort. We shall see, the jury is still out.

I have been ingesting CBD Hemp Extract for over six months now, hoping that it will bring relief, but the jury is still out on this one as well.

For over 30 years I was a very serious recreational athlete. I have been around the earth’s circumference two times(52,000 miles)as a result of running the New York City Marathon, having done 12 Olympic Distance Triathlons, thousands upon thousands of miles road biking, roller blading in the street for distance, swimming, running races, as well as being a gym rat.

All of the recreation that I loved so dealy, was taken away from me. I have been so inactive that I have suffered a great degree of muscle wasting. I am attempting to get back some strength by doing Aqua Therapy(but everthing I do feels good for the moment and than I hurt even more). I know that you are supposed to be sore after exercising, but the aftermath, is more than just soreness. I have not gotten yet to a place, where I might not experience the aftermath, as significantly.

Radical exceptance is what I have been told I must embrass. I have to be thankful, for many people, have it far worse. Depression and Anxiety are always close by and without medications to help me with that, I would be far worse off.

Sitting in a chair with my feet on the floor is often times unbearable. I try to walk in spite of knowing that I am going to hurt more as a result, but one foot in front of the other is my only true option.

I try to remain hopeful, that one day, things will improve. It is very difficult to overcome feelings of hopelessness at times, but I fight that monster under my bed, to the best of my ability.

It amazes me that my local Pharmacy sells over 1200 Cipro a week and other than me, no one has been harmed, in the manner that I have.

To all of you who are in similar situations, my heart goes out to you. I pray that we will one day find some peace of mind, body and soul. For those that were harmed, but healed from the damage done, I could not be more thrilled for you.

I don’t want anyone who reads my story to feel hopeless as a result of doing so. My daugther gave birth six weeks ago to our first grand child Brooklyn(girl). We are expecting another grand child in October(a boy). After being terminated from my job of 34 years, and having 2016 as a year I would rather forget(but can’t) I landed a new job whihc I truly love. The CBD Hemp Extract has impacted my emotions in a positive way, so I do not find myself being overly negative.  There is hope to those who believe. As long as we have hope, great things are possible.

I will pray for all who suffer each and everyday, as a result of Big Pharma, caring only about how many more billions they can make, while ruining people’s lives.,

Stu in New Jersey

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Ashley’s Story – Fluoroquinolone Toxicity

I only recently came across an article about quinolones that finally made everything over the last 22 years make sense.  I feel like a complete idiot for not putting it together long ago but I feel like that’s where my case is a little different.  But oh how hindsight is to crystal clear.

Around 10-11 years old I began having frequent UTI’s, one early on was very severe and I ended up in the local children’s hospital on IV antibiotics.  It was then that one pediatrician had a hunch and performed an ultrasound and found both kidneys loaded with small stones.  I remember hating it when the nurses came around with new bags of antibiotics because it made me feel so terrible while it was running.  I eventually recovered from the infection but strange things began to happen around that time.  I still had frequent infections that my mother was taking me to a urologist for, they would always treat me with the same course of meds.  After having to take them so often my mother would just give me the bottle and remind me to take it since I was so responsible with it.  I only ever remember having Cipro or Levoquin when they got really bad.

I remember sitting with my mother one night in the recliner (I was a very tiny child) and out of no where I had overwhelming chest pain and feeling like I couldn’t breathe.  She gave me a few minutes to see if it would pass and it only got worse and in a panic she called 911.  They told my mother it was pleurisy and sent me home.  These episodes came and went and new symptoms came extremely sporadically, nothing made sense.  During this time I would have problems with:

Migraines

vomiting

diarrhea

constipation

muscle cramps

fatigue

prone to viral infections

poor coordination

increased incidents of sunburn

It would all come and go.  I do remember one doctor asking if I felt bad when on Cipro, I have never felt worse when I’m on it.  These problems I would have were coming way after taking the medications and I think that that is the reason we never made the connection.  I saw doctors ALL THE TIME, of all sorts.  They would all say the same thing, “she’s fine” or “everything shows she’s normal”.  By the time I was 14 I remember hating going to another doctor only to have them dismiss me.  If I wasn’t being seen for any of those things, I was being treated for a myriad of sprains, strains and broken bones.  I had serious coordination problems that every single doctor would tell my mother, “you just have a really clumsy kid”.

I had an extremely traumatic even happen when I was 14, I was assaulted and have a child as a result.  The only reason I mention it is because it does have some bearing on events pertaining to my health. (I have raised my daughter and she is a wonderful creature and my reason to live)

Before we knew I was pregnant I had hives for the first time, no obvious triggers.  They lasted for about 3 weeks with no improvements with antihistamines.  The only complication during pregnancy was having kidney stones for the majority of the time.

About a week after delivery I began feeling very feverish, malise and vomiting.  More hard hitting antibiotics for a staph infection of my uterus.

There was one new thing that pregnancy brought, hip and knee pain.

So as one can imagine, the time following my daughter’s birth was extremely challenging.  I was deeply depressed and suffer still from PTSD.  There are times I look back on now that make me wonder how much of the psychosis was PTSD induced or drug induced.  But again, during this time frequent infections were still plaguing me so I really don’t know how many times I have used quinolones but it is a large number spanning over two-thirds of my life.

Around 16 years old I changed urologists and around 17 was when I had the cystoscopy performed and they saw the stenosis of urethra and ureters.  The doctor then performed hydro-dilation, which worked very well for me.  I went from having infections every other month to only about 3-4 times a year.  But during this time I saw a huge increase of muscle pain, cramps, extreme fatigue.  I would either sleep for 12+ hours or not at all.  I began having nightmares that I consider to be more like night terrors.  I was so low the only thing I ever thought about was how much I wanted to kill myself.  And the only thing that kept me from carrying out those thoughts was that I couldn’t leave this poor child on her own, she didn’t ask to be here any more than I did.

Insomnia has plagued me even before these drugs were ever given to me but I do think they made it even more severe.  I went through a lot of psychiatric drugs around that time, oh let me tell you just how broken things are with our lack of mental health care.  That’s where things start to get really hazy with what I do and don’t remember but I chock a lot of that up to the psych meds and trauma.

Here comes the really fun stuff.  I began college in nursing.

In 2004 when I was 19, I woke up with an odd rash on my inner thighs, I took benadryl and went about my day.  The day passed pretty uneventful until that night. I was out with a friend at a coffee shop we went to frequently when I began to feel ill.  She took me home, I was vomiting and running a fever and felt in a way I still cannot explain.  I drove myself to the emergency room.  While waiting to be seen I started to itch, everywhere.  I went to the bathroom and lifted my shirt, I’m covered in hives all over my entire body.  I went and showed a nurse who got me back quicker since I didn’t initially present with that.  They asked me what had changed, food, soap, anything I could be allergic to…nope.  The had my history of UTI’s, no one ever put it together.  They gave me benadryl and oral Prednisone, a little later is when they gave me epinephrine. In a few short minutes I couldn’t breathe, I slumped over losing control of my body, vomiting profusely all over myself and the nurse is screaming at me.  I was still conscious, though I could hardly move or speak.  Everyone was there in a whirlwind. Nurses trying to draw blood with no success, I can’t breathe, portable chest x-ray, left lung infiltrated 100%, right lung 45%.  I’m coughing up hot liquid, hives got worse.  Heart rate over 200 bps.  I remember them discussing intubation, I can hear but not much reaction.  Every person I could draw breath to I tell them to call my mother.  They’re about to admit me, shift change 7 hours after my arrival someone finally calls my mother.  They take me upstairs to a room and a new nurse is taking history.  Nurse “Any allergies?” mom “not until last night”, nurse “What??”  my mother goes over events of what she was told.  Nurse tries to get BP on machine, no reading.  Manually, can’t get it.  Sonar, 60/40.  The last thing I remember is her flipping me on my head in the bed and yelling for help.

I woke in ICU, the doctor asks me what brought me in.  I went over all of it, they didn’t even have on the admitting forms the drugs they had given me.  I stay in ICU for 7 days because my vitals are so unstable.  I spent another 3 under regular observation.  All anyone can tell me is that it looked like I had an anaphylactic event.  I had never been allergic to anything at all.  Upon discharge I still had massive hives.

My hives would sometimes stay constant for up to 2 years.  Edema so bad that I couldn’t put a long sleeve shirt on, I had to wear my shoes as loose as I could. The hives were also across mucosal membranes, in my nose, mouth, eyelids. people in public didn’t even try to hide the fact that they didn’t want to come anywhere near me.  Cashiers didn’t want to take my money.

After that life altering moment I sought out an allergist in efforts to never have this happen again.  It took months to recover.  After that event I had hives off and one and with them: vasculitis, edema, extreme abdominal pain.  So much so that one day when my mother was trying desperately to find me help I told her I wanted to die because I couldn’t take the pain anymore.  More ER visits.  Any time for no reason I would get hives and my BP would drop very low.  Over 400 prick tests were performed chasing my allergy, nothing.  No one could give me any answers or relief.  The pain in my muscles became unbearable.  In seeking answers I began to be treated VERY VERY poorly by the medical community.  They would ask me if I had a psychiatrist or outright say I was faking it all, that it was all in my head.  That I was making myself break out in hives or making my blood pressure drop.  They would say I wasn’t in pain, they told me I was drug seeking.  All the while taking quinolone drugs several times a year. Family would act as if they thought that too.  I lost friends, relationships, job opportunities, college courses because I couldn’t  function.  I missed so much time from middle school all the way through college.  I never got a degree.

I began working in my passion, in a veterinary field as an assistant.  My constant health problems and getting my body battered by working with animals took a heavy toll.  I missed a lot of time.  They would all say “she’s a great worker, when she’s here.”

Once my husband came home to find me unable to do anything other than lay there with my eyes like faucets, visible muscle knots across my body.  I couldn’t move, I was stiff all over, almost seizure-like.  He called an ambulance, they sedated me at the hospital after saying that 23 was too young to be diagnosed with fibromyalgia and saying I was abusing my meds.  The nurse told my husband I might not wake up, can he care for me in this state for the rest of my life? At that point I stopped seeking help, I stopped taking many of my medications.  I tried the whole suck-it-up-buttercup routine.  Doctors were rude to me, I would often leave appointments in tears asking myself “are you really this f***ing crazy?!” Was it all in my head?

I often got bronchitis and “walking pneumonia”, they would give me Avelox.

Trying to keep a medical journal with all of this was so depressing I had to stop.  No obvious pattern, again, I wouldn’t get any new or worsening symptoms until weeks after taking those drugs.  I was conditioned to trust these people, these doctors.

I had on the job training in assisting veterinarians, so my knowledge of medications really only extended so far.  I knew there were certain medications that were not to be given to puppies and kittens but I didn’t know why.  Thinking back to all those times I filled prescriptions for pets taking that same class of drugs makes me feel physically ill.

Throughout all of this time we were trying to figure out if I had some sort of rare ailment or something genetic.  My paternal grandmother had too experienced much of what I was going through, so we logically thought there had to be something there.  Well there was, urethral and ureter stenosis.  She too had be on those drugs many, many times.  We were just looking in the wrong direction.

My hearing has never been great, as a kid my best friend asked my why I always looked at everyone’s mouth when they were talking, or why was I always so loud.  Little did I know I learned to speach read.  Around 27 years old I had a sharp decrease in my ability to hear.  I was also on the cusp of my interstitial cystitis diagnosis.  They threw all sorts of drugs at me.  I had a hard time understanding men when they talk or I couldn’t understand dialog on TV no matter how loud it was.  It started interfering with work so I saw an ENT, low pitch hearing loss of unknown cause.  After being given Levoquin even though I had negative urine cultures, things got so much worse.

I began experiencing tendonitis, I would get searing pain through my feet, dangerous when carrying an intubated and sedated animal.  I couldn’t hold the dental scaler without extreme pain in my hands.  I was in a very toxic animal clinic and made the decision to leave the veterinary field altogether because my body could no longer take it.  I had broken down enough to seek help, I couldn’t live with the pain.   I spent so much time bed or couch bound, the pain unbearable, so heavily drepressed.

I was so broken down I began taking Lyrica, desperate to get a grip on things.  I am so very happy to now be off of it.

I became allergic to red dye.  Out of the blue, I noticed after drinking red gatorade (to restore the electrolytes that my antidepressant screwed with), my mouth was itchy very tight throat feeling.  So I gave it a few days and tested my theory on something simple and sure enough.  I have had a severe reaction to it, blistered mouth and all.

Months later I noticed the same feeling but had had nothing with red dye.  After recounting what I had eaten I zeroed in on milk, but not all dairy.  Something they put in general whole milk set off my contact allergy, creamer and cheese…all fine.  I can drink organic whole milk without a problem.

While I hold no religious beliefs but I will admit that sometimes it can’t just be coincidence.  After walking out of the job abruptly I landed a job with an acupuncturist.  I am exactly where I am supposed to be.   I am very proud to be helping others with pain and dysfunction, acupuncture really can help.  It doesn’t help every one for every thing but it is certainly worth the try.  There is some pain that it hasn’t helped much on, but keeping other pain down makes it a bit easier to cope with the really hard stuff.  I love working with pregnant women who use acupuncture to enduce, they all say it makes the babies go nuts moving all over the place.

By 2017 I was fitted with my first pair of hearing aids, I have severe loss in my right ear and moderate/severe on the left.  A few months ago I stumbled across an article a friend had posted about FQAD.  Suddenly my entire life was in focus.  I was floored.  The very same people who treated me so miserably were the ones who had made me this way.  I was so angry, at them, at myself.   How had I missed this.  Every single unexplained bodily problem, it all made so much sense.  And worse, that my child had taken this for her first UTI.  I poisoned my kid.  She has some of the same problems I have but to a much much lesser extent.

My boss is from China, he was a surgeon there and told me how much he hated those drugs and never used them because of their danger.  I took this information to my GP who seemed like this had crossed her mind before but I got the feeling that she wasn’t allowed to talk about it.  She said “there is no way anyone can prove that this isn’t what’s wrong with you”

My pain has been so significant since I last took a quinolone.  Recently I woke in the night with extreme pain on the left side of my neck, shoulder and arm.  GP said upon assessment that I have two bulging discs, absolutely no trauma to cause it.  I refused the steroid treatment my GP wanted to prescribe, Prednisone was another drug I had horrible reactions with.  She wanted to send me for MRI and to a cardiologist about my worsening tachycardia but alas, no insurance.  She expressed concern about the drugs effects on my heart, strongly urged me to call if anything changed or got worse.

It has gotten worse, I have had a pain in the left side of my chest and in that same area on my back as well.  This does not feel like the pinched nerve pain and sensations caused by my discs.  This is like someone is driving a wedge through my chest and back trying to meet in the middle.  I called my doctors office and they said that she would be out on the only day I could come that week and she would be out all of the following week.  They strongly advised me to go to the emergency room, again no insurance.  They persuaded me to see one of the others, I wish I hadn’t.  “Gaslighting” is what they call it, it happens so often it has it’s own term.  He was very quick to dismiss me.  He said if I couldn’t afford the nuclear stress test that he couldn’t help me.  He glazed right over me mentioning my history with those drugs, right on to saying that if it gets worse to go to the ER.  He said because of my age I am not at risk, because there’s no family history I am not at risk.  My husband piped up to say that “32 is pretty young to have significant hearing loss, nothing about her is textbook”.  And we were out the door, dismissed per usual.  I can’t go into the ER and rack up thousands of dollars in debt for them to dismiss me as well.  I can’t afford to risk that money, even for my health, just to be turned away again.

So for now I am hoping that I can speak with my GP when she returns.  I hope that if something does come of this gut feeling I have, that they can fix it in time.

I’ve taken so much for so long, the damage is very real and very in my face.  It’s imposible for me to try to project thought of the future, no one knows if I will get better or worse.  I have had to steel myself, to push any fear way down and simply hope for the best until a better option comes my way.

I try to keep happy moments at hand and focus on them, keeping myself in a positive direction is challenging but essential.  My boss agrees about all that’s wrong with me and says he is very worried about my condition.  Since working for him my quality of life has drastically improved.  I do take Baclofen for my muscle pain, it’s a big help but doesn’t last very long.

Acupuncture has helped with a lot along a wide range but for very specific types of pain it doesn’t always help.  I sleep much better and am even taking my Ambien less often which is HUGE for me.  I’m no longer on Lyrica or antianxiety meds.  If I’m feeling anxious I use a chinese herb sold as Soothewell, works like a charm.  Formula 303 which is passion flower, magnesium and valerian root works well for some spasming and as a natural relaxant.  I have been getting massages for over six months, we have had to cut back on cupping and deep tissue massage due to the tendon problems but it’s been pushing daily pain down little by little.  There are Chinese herbs for just about everything and they have been a help as well.  I also get regular chiropractic adjustments and that’s been a help, I’ve seen a chiropractor for years.

Stretching daily helps with tightness, ice goes a long way to reduce inflammation and is very underrated.  Epsom baths with essential oils are very relaxing and can at least cut back on some of the pain.  I look for every tiny bit of improvement and count it as a small victory.

And for many different infections be them viral or bacterial Chuan Xin Lian which is Isatis root, dandelion, and andrographis has kicked every UTI I have had over the last 12 months.  As far as pain goes, nothing beats cannabis.  No, it doesn’t make me pain free but it makes most days manageable. I have found that personally smoking it doesn’t come close to the benefit of eating it.

I find that mental well being effects all of the symptoms that I have.  I have cut away extra stress in all the ways I can.  I have had to cut off many people to focus on getting better. Finding something cathartic for yourself has done so much for me.  I love gardening, I can lose myself and shut out all else.  It’s a good problem solving tool as well.  Fresh air!  Not being kept up within four walls is cleansing, even if you’re just sitting.  I have to limit physical exertion but when that’s the case I turn to succulents, little outdoor tasks.  Pick up a hobby, when I’m confined to rest I crochet while listening to the TV.  It helps with restlessness, it makes time spent inactive worthwhile, you’re getting SOMETHING accomplished.  Reading can be great, exercise your brain when you can’t exercise your body.

Keep your home bubble calm, as it’s your daily retreat from the world. Believe in yourself, you can get through this.

I think there is hope.
So over the years I have experienced:
Tachycardia
Hearing loss
Tendon damage
Tendonitis
Poor grip
Widespread muscle spasms
Severe pain at muscle attachments
Muscle weakness
Fatigue
Difficulty concentrating
Brain fog
Memory loss
Anxiety
Depression
Suicidal thoughts
Insomnia
Blurred visioin
Chronic dry eye/mouth
Poor coordination
Numbness/tingling
Strange sensations in extremities
Sensitivity to hear/cold
Tremors and spasms
Photosensitivity
Joint pain
Pleurisy
Hives
Edema
vasculitis
Gastroparesis
Bulging discs
Sudden onset of contact allergies

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Tikvah’s Story – Ciprofloxacin Toxicity

Feb. 1, 2014 I was taken to the ER for acute pancreatitis which was caused from my gallbladder’s acute inflammation.  They kept me in the hospital for 4 days, no food no water, to get the pancreatitis taken care of so they could get the GB taken out after that.  I was pumped full of 3 bags of ciprofloxicin which was toxic to my body.

In the course of just a little over 2 yrs. now [i.e. Mar. 2016]. I have gone from not being able to dress myself, nor get out of bed, nor turn over in bed by myself to being able to get up o/o bed by myself in the first 4 mos. after the surgery to then not being able to walk without help, or get up and down in or out of a chair or a sitting position without excruciating pains throughout my body.  I could hardly take care of my personal hygiene in the bathroom for the first 6 or 7 mos.

Then I graduated to more easily being able to dress myself, but still with struggles and to walking with a walker.  Still needing help getting up and down, in and out of sitting/laying positions.

Have never been able to sleep well for the past 2yrs.  And it’s gotten worse.  I also have tendonitis in both of my heels, left heel is worse, and it generates all of the way back up my leg.  My feet hurt terribly by the end of the day, each day and I can hardly walk.  I can not go up/down stairs easily at all.  I need something to hold on to, or someone, and I must take ONE step at a time with both feet on one step.

I went from using a walker for 1/2 a year to using a walking cane for a year.  Now Nov. 2015 I stopped using my walker, and can walk on my own, although I must take is slowly.

I am no longer able to uphold my duties as a wife sexually or the household duties.  I can go to the store and do some shopping but by the time I get home, I am in excruciating pain and must rest a complete 24 hours or more.

I have pains throughout my body that, in my opinion, mimic fibromyalgia and MS.  The pains in my muscles and joints are in my shoulders, elbows, wrists, hands and fingers, my lower and mid section of my back on the left side, my hips, knees, calves, ankles and feet.

My eyesight has been deteriorating and I have had 4 teeth fall out.  I have ALWAYS had a good healthy set of ALL of my teeth prior to this. I have also developed tinnitus.  I have also gained weight since I have been unable to perform daily activities or exercise.

I have bouts of depression from not being able to do the normal tasks of daily life.  I have to stay away from certain foods now, such as any meats wherein the animals have been given antibiotics as they tend to increase flare ups of inflammation and pain.

I supplement daily now with magnesium, D3, calcium, MSM, iron, and I have recently added in iodine weekly.

I also have a topical magnesium spray that I spray on my tendons in my heels that helps.  I can tell if I miss my doses of magnesium as the pain sets in.

So all in all then, in just a little over 2 yrs. I have gone from not being able to walk at all to using a walker, then a cane, now nothing.  But I still can not go up and down stairs alone, and it is still painful and slow moving to walk. and I have some symptoms that seem to be permanent.  The tendonitis, and the symptoms that seem to mimic fibryomyalgia and MS.  The tinnitus, the weight gain, and the loosened teeth.

I hope that my story, my input, and others will help to remedy the problems and get these type drugs off of the market for every day type infections in adults and children and only be used for what they are intended for and from what I understand that would be something that is life threatening and extremely serious in the family of a deadly plague.

Fast forward now ~ update January 18, 2018, the residual affects that remain are the problems w/ the tendons, especially in my heels and that go up to the hips, the sciatica, what mimics MS and fibromyalgia, the daily depletion of magnesium and vit. D from the body, among other minerals, the decay in my eyesight, and I still have problems with walking up and down stairs or for long periods of time.

I can go to the grocery store and shop, but by the time I get home, I can barely walk and get the groceries up the stairs and in the house and put up.  I am able to walk now without my cane, but in the winter, IF I have to go out, I take it along with me so I don’t slip and fall and I hold on to someones arm as I walk for safety.

I can dress myself now but I can’t get in/out of a tub by myself very easily at all, so opt for showers rather than sit baths, which I miss so much.  My hair has thinned.  I lost a total of 6 teeth in the back, but am taking extra good care of them and hoping that the extra care will help thwart the loss of any more.  Same with my eyes.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Kim’s Story – Ciprofloxacin Poisoning

I am a 42 year old male (a husband and father of three children) from Tasmania, Australia. I have been suffering from suspected epididymitis since May 2017. After taking a number of courses of antibiotics (such as doxycycline) on and off over several months with some improvement, but no full cure, I was referred to a urologist. After a very cursory appointment of around 5-10 minutes he prescribed me Ciprofloxacin. No mention of any possible side-effects was made. Three days into taking this course of Ciprofloxacin (12 February 2018) I began getting pain down both shins. My legs also felt weak/heavy. By Day 5 the pain was considerably worse and had begun to spread to my ankles and feet. I decided to stop taking any more Ciprofloxacin tablets as the timing seemed to be too much of a coincidence (had now taken 10 tablets – 5 days of 2 tablets per day). I also read a number of peer-reviewed medical and research articles online and many other thoroughly researched articles online (from the US, Canada and Europe) that document thousands of cases of people who have had serious adverse reactions to Fluoroquinolone drugs – many whose initial symptoms were almost identical to my own. Over the next few days the pain continued to spread into my heels, ankles, feet, toes, shoulders, arms and elbows, with shooting pain in my tendons and muscles. I also started experiencing tingling sensations in various parts of my body – like little shocks of electricity that continued to move about the body – particularly limbs and face. My legs started to lose strength and I had difficulty walking. I also began to experience numb feet and toes. I have also experienced brain fog and considerable fatigue since this time.

On the 23 February 2018 my condition deteriorated rapidly. I was at work (I am a high school English teacher) and was walking to my classroom when my left ankle begun hurting much worse than I had been experiencing over the last few days. I was barely able to walk and just made it to my classroom by hopping. I went home and later that day to my GP, who referred me to Accident and Emergency. A number of tests, including blood tests were conducted there and the following week an MRI of my brain and spine was conducted. All results returned negative for other possible causes of my symptoms. A physician detected a lack of neurological sensations in my peripherals, particularly lower legs and feet. It is his opinion that my condition is fluoroquinolone toxicity caused by the Ciprofloxacin tablets I took.

I continue to have ongoing side effects. The pain has become more concentrated in my joints, especially ankles, shoulders, elbows and wrists, but I continue to have pain down my shins and arms. Just walking from my office to my classroom is difficult and painful as my ankles and lower legs become increasingly sore and weak with walking. Simply holding light objects such as a book for any period of time causes increased pain in my shoulder, arm, elbow and wrists. One of the side-effects that only emerged two months after the initial toxicity is a severe shivering/skin crawling that is very uncomfortable and bordering on painful (perhaps this is due to the weather cooling). I am taking the pain-killer amitriptyline (Endep) daily.

I have had to make the difficult decision of reducing my working hours to try to cope with the effects of this toxicity and give my body a greater chance to recover.

Other than my current physician and one other GP a few months ago who mentioned an antibiotic that might cure my epididymitis but could cause Achilles tendon ruptures (which he did not name but I now assume was Ciprofloxacin), all the other doctors I have seen have had no awareness of the well-documented and researched serious side effects of this drug. After speaking to two of the doctors, they (to their credit) went away and researched Fluoroquinolone Toxicity Syndrome and came back to me apologising that they had not previously been aware of this and intimated that this is likely what I am experiencing. In many countries this drug has been removed due to the acknowledgement of its serious and long-term side effects. In other countries, such as the US, this drug has the strongest warning label possible (black box warning), following pressure from many medical professionals and this issue resulting in court cases. The US has also already taken a number of other fluoroquinolone-based drugs off the market. It appears that currently Australia is considerably behind much of the developed world on this issue and it is my great desire that changes can be made in my country to avoid other people experiencing what I am experiencing – through the medical profession being made much more aware of the dangers of this drug, increasing the warning labels for this drug and prescribing this drug much more judiciously and as a drug of last resort (if at all).

I am grateful that I have a supportive wife, understanding children and a Christian faith and church community to help me wrestle with this condition. One of the most challenging aspects of this toxicity for me is the uncertainty: what will the next hour be like?  What will tomorrow be like? What will the next few weeks or months be like? I am still quite likely at the beginning of this journey (having read numerous people’s stories – many of whom are now years into their toxicity). I know that some have made almost complete recoveries within a few months and so am trying to be hopeful and realistic at the same time.

I would love to hear from any Australians who have suffered FQT, sharing what their experience has been like and whether they were able to get support from the medical profession or from others within Australia.

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

 

Jon’s Story – Tinnitus from Fluoroquinolones

In December 2016 I fell from a ladder and fractured my Coccyx, one of the complications that came on about 2 weeks after the impact were symptoms of a non-specific urinary tract infection and blood in my semen. I was prescribed by my doctor a 1 week course of Ciprofloxacin, 2 tablets a day. I’m usually reluctant to take antibiotics but due to the worrying nature of the symptoms I started the course in good faith.

Mid way into the course of treatment (having taken 9 out of 14 tablets), I returned home from work that day feeling dizzy and unwell and went to bed at 9pm. At about midnight I woke with the most alarming ringing in my ears, completely deafening in volume that made me leap from the bed and shout to my wife in a highly stressed state. The ringing subsided slightly over about 15 minutes so I tried to calm down and return to sleep. As soon as I started to fall into a light sleep the ringing would return to maximum intensity and wake me with a fright. This was the start of an alarming cycle which meant I was getting no more than about 30 minutes light sleep before waking up due to the tinnitus.

I called my doctor the next day and as my infection symptoms has subsided he agreed I should stop taking the Ciprofloxacin and that my tinnitus should disappear as the medicine left my body. However this was not to be the case, during that first day I was aware of a constant hissing in my left ear and a higher pitch whistle in my right ear. That night when I tried to sleep the same cycle continued, on falling asleep the tinnitus would ‘spike’ and wake me a short time later at such a loud volume if felt like a pressure valve going off in my head. It would subside over several minutes, I’d fall back asleep but the same pattern would continue. After a few days I became increasingly exhausted and distressed, the hissing ‘soundstage’ would remain during the day and at night the spikes continued I’d have the most terrible time sleeping. I couldn’t work and returned to the doctor several times in those first couple of weeks who said I was experiencing an acute stress reaction to the sudden onset tinnitus. I returned to work after about 3 weeks but had never felt so broken and at a low ebb.

The months that have followed have been tough. The tinnitus is always there during the day and still very loud during the night, I’ve found that it is quieter in the morning and builds throughout the day in volume. It also varies in intensity in each ear day to day and this changeability makes it very hard to habituate. I’ve been seeing an ENT consultant who reported my reaction to the drug and carried out an MRI scan to check if there was anything underlying that could have caused the problem – there wasn’t. He confirmed that my hearing has been affected and I’ve experienced moderate high frequency hearing loss in both ears.

I’ve had some cognitive therapy treatment from a hearing specialist working with tinnitus sufferers which has helped a little. I’ve found coping techniques such as playing ocean noises at night have helped improve my ability to sleep which has meant life has returned more or less to normal. I do however feel my tinnitus symptoms are gradually worsening over time, I seem to have more bad days and nights than I used to in the early months. Recently I’ve had a head cold and that seems to have worsened them still and at times i struggle with daily life and feeling positive. My ears are very sensitive to loud noises now. My wife and I sleep in separate rooms because of the sleeping issues, this has impacted on our relationship and the ease of doing things we used to enjoy such as nights away. What saddens me most is that my life feels compromised, my wife see less of my fun side and not able to be the strong one in our relationship any more.

My wife recently became pregnant for the third time and we were concerned that my health issues along with some other significant pregnancy health risk factors affecting my wife that a third child (3 under 3 years) would put both too much risk and pressure on our family. We made the unbelievably difficult decision in December 2017 for an early termination of the pregnancy to ensure we can focus our love and attention on our 2 young boys already here. Whether we would have made the same decision if I’d never taken Cipro and the challenges that this has brought into our lives is something that will haunt me to the grave.

My wife and I both felt something positive needed to come from our sad decision so this year I’m committed to getting the support i need to help me with my tinnitus starting with a local tinnitus support group and audiology assessment later this month. I’m focusing on the loved ones in my life and being thankful every day for what i have. I’m making sleeping separately the exception rather than the norm (trialling a sleep headband that plays sound). I’m eating healthily, drinking in moderation, going to bed earlier and doing more structured fitness all which helps with my mood and general well being. I’m determined to live life to the full and bring happiness to those i love despite what has happened to me.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Steve’s Story – Cipro Induced Chiari Malformation

I was poisoned in June of 2015 by cipro and it led to Chiari decompression surgery: taking a chunk out of the back of my skull, removing back half of my C1 vertebrae, and removing a piece (and then putting back) of the lining of my lower brain. IT CAUSED DRUG-INUCED CHAIRI. Then I had to fly to Barcelona, Spain to have the bottom of my spinal cord released to help reduce pressure on the bottom of my brain. Since the cipro I have been diagnosed with the following which I never had before taking the drug: chairi malformation, tethered cord syndrome, heart nodules, start of lymphoma, limpoma in groin, central apnea, obstructive apnea, peripheral neuropathy, cervical instability, and now a possible abdominal aortic aneurysm. Oh yeah, and I have gotten to spend the past two and a half years in bed.

Laura’s Story

i am currently 26 with SLE Lupus, liver disease, asthma, major back problems seizures, auto immune disease, unable to walk or stand. wheelchair bound severe nerve pain and numbness and tingling that get’s worse everyday. severe back pain my body starts shaking out of no where. i took cipro a few times for UTI but didn’t have any severe symptoms till the last time 2015. i had surgery ended up having a UTI gave me cipro after having to come back from an allergic reaction to percocet and morphine caused me to have seizures again after being seizure free for 10 years. i couldn’t stay awake and don’t remember much except what my family said that they gave me cipro through IV very high dose. i was hallucinating really bad having excruciating pain in my legs and bleeding it wasn’t my period either i took it till i got out then i stopped it cause it was to much. about a month later the pain in my stomach returned and i started losing feeling with sex and started having more pain every day. i was in so much pain i couldn’t work and the seizures started getting to the point they were every minute or less and i would have a long where i wouldn’t be able to talk and lose all my strength and energy that happened 5 times in in 2015.

my memory was going on me i felt so sick all the time didn’t want to eat sometimes. then i found out i had sever fatty liver disease 84% fat that was september 2016 and my gall bladder was severely diseased and had to come out. i was very sick after i got it removed and a month after i started having bladder problems where i couldn’t control my bladder and going all the time and starting having pain again in my stomach not as bad but some pain. may 2017 i was working at out of no where i got exhausted and couldn’t stay awake i finished my shift but barely able to stay awake or walk my husband had to help me to the car. next day i was extremely slow slower then a snail barely able to move and no energy. and then i couldn’t walk i went to sleep and went in a coma for a day and a half i couldn’t wake up i could hear off and on but couldn’t wake up. then i started having breathing problems while i was in the coma and started choking and shaking really bad and thought i was going to die i couldn’t catch my breath. i woke up ate a little something then went into another coma for almost 3 days and it was harder to wake from my whole body was shaking i couldn’t stay awake. since may i still haven’t got my energy back i’m exhausted and been in a wheelchair june i found out i have Auto immune disease july i found out Sle lupus.

August i started losing feeling in my feet and became tingly then my legs and worked up to my arms and hands and face. august 26th i was unable to move at all i started choking and not being able to breathe my whole body started shaking and my whole body became paralyzed i couldn’t move anything not even my mouth i couldn’t talk i was drooling and couldn’t stay awake. my entire body has been numb since until a few days ago where i started having nerve pain all the time feels like electricity is being run through me from my back , finger tips, arms, hands, legs, ankles and toes it’s to the point where i am starting to have to take pain medicine cause of how much pain i’m in. i am currently in rehab right now trying to get strength back so i can walk again i’m very weak and this pain is making it really hard. i also feel like an old person and wake up every day wondering what obstacles i’m going to face each day and will i wake up I hope your feeling better and get better my friend told me about this i never realized but it makes sense now.

Erin’s Story – Disability from Ciprofloxacin

Erin’s story was originally published on http://pointsnorthatlanta.com/important-questions-to-ask-your-pharmacist/. Thank you for sharing your story, Erin! 

As I left the gastroenterologist’s office in late July 2015, I did so with hope. I’d been experiencing unexplained nausea and bloating for a few weeks and, while hospital test results showed normal white blood cell counts and I had no fever, I was sent home with antibiotics as a ‘ just in case.’

I’d be better in no time; I just knew it.

The following day, I experienced numbness in my hands and feet, but was encouraged to continue my course. I did so, but the following weeks saw multiple trips to the emergency room, presenting with increased and body-wide symptoms.

No doctor could figure out what was wrong. The symptoms continued to pile on, and I was baffled. Neither I nor my doctors made the connection to the ciprofloxacin antibiotic I’d been given.

I was hospitalized by mid-August, given more antibiotics, iron and steroids.

I have been disabled ever since.

Prior to taking the ciprofloxacin, I was a 34-year-old newlywed and world traveler whose career was going so well, I decided to strike out on my own. But that bout of nausea — which was later resolved by a simple proton pump inhibitor — and that fateful prescription for antibiotics set me on a course of 24/7, 365 pain that has not resolved.

The numbness became excruciating, burning nerve pain in my hands and feet. I spent all day in bed, covered in ice packs. Overnight, my previously perfect vision became light sensitive and blurry, and I developed a rare condition called visual snow. Head pressure, ear pain and popping became a ceaseless tinnitus. I was suddenly unable to sleep. At all. Ever.

At the same time, my blood pressure became unpredictable. My heart rate and body temperature vacillated wildly. When I stood, my heart rate would spike, and I would feel dizzy or faint.

I saw countless specialists, but none could help me. Most did not believe what was happening to me. I didn’t want to believe it either, but the evidence was all there: dozens of studies detailing the potentially permanent, debilitating side effects of Cipro and other antibiotics in the fluoroquinolone class. But I, like so many others, was never warned.

In March 2016, the body-wide joint, tendon and bone pain began. Suddenly, it became painful to walk, type or lift even light objects. My skin, eyes, nose and mouth became impossibly dry. My hormone levels were all over the place. My hair fell out by the handful. I was horrified. What kind of medication continues to affect you six months after you take it?

The answer: fluoroquinolone antibiotics.

In November 2015, the FDA held hearings with people like me who have become permanently affected, and, in some cases, profoundly disabled, from fluoroquinolone antibiotics. This year, the FDA issued a warning that these drugs should not be used except as a last resort where other antibiotics have failed. Risks cited include permanent musculoskeletal, nerve and central nervous system (brain) damage, for which there is no cure. What I, and many others, suffer from is called Fluoroquinolone Associated Disability.

Up to July 2015, I was a woman with no significant diseases or health problems. Today, I am a 36-year-old woman who has filed for Social Security Disability because I was given what I thought was a run-of-the-mill medication.

I tell my story to spare others the pain I continue to endure, and to encourage medical researchers to seek a cure.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with http://www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

What gets me through

Another teen devastated by a fluoroquinolones. When is this going to stop??

CIPRO...A RX FOR DISASTER

My name is Catherine.  I am a sophomore at Christopher Newport University, in Newport News, VA.  Until the summer of 2016, I was a healthy, active college girl, and maybe just a little klutzy. I love to be outside, hang with my friends, worship, and have been working hard toward my undergraduate degree, to reach my goal of being, of all things, a Pharmacist.  Cipro, an anti-biotic known as a Fluoroquinolone, has derailed me, in many ways. Physically, emotionally, academically, socially…The irony is not lost on me.

This is my story…

* * * * * * * * * * * *

Although I may appear fine, I am not. Nothing going on inside of my body, and sometimes on the outside, is fine. Rather, it is like an active volcano, with daily eruptions of hot lava surging through me.

Imagine your mom walking in and finding you on the bathroom floor…

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This antibiotic will ruin you.

Mountains and Mustard Seeds

4739Hi there, we need to talk. I have almost written this post at least 20 times and got too overwhelmed and abandoned it. Well here goes…

The antibiotics you took or are taking for your sinus infection, UTI, skin infection, laser eye surgery…ect…may have already damaged you.

Cipro, Levaquin, Avalox, nearly every generic ending in “quin”, “oxacin,””ox,”…are all part of a large family of antibiotics called “Flouroquinolones.” The FDA finally updated their warning on these antibiotics as of July 2016. They site “multiple system damage that may be irreversible. Permanent you guys. Here is the link for the warning if you are a doubting Thomas  https://www.fda.gov/Drugs/DrugSafety/ucm500143.htm. Take a gander real quick if you are reading this with an eyebrow raised. Trust me, I wish I had been given the opportunity to soak up this information before it was too late.

In 2010, I took Cipro for a UTI and it changed…

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Dear Doctors: A Letter from a Patient

dear-doctor

Written by S:

The following is what I have written in the hopes to one day be able to travel and see doctors and nurses in the eye and talk and see that we are human too. I am getting worse I am out of money and waiting for my long term disability to be approved to get more testing done. Till that time I hold on to hope I get my IV once a month and I look forward to a day when this will be but a memory and a issue I have over come. I really do think that now all over the world people are crying out for change. I believe in every part of what we currently use for process for the world to move forward this change must occur in all parts of government to the medical system the banking system etc… It’s hard for me to sit and do nothing. I can’t do much but I can try to help push for change. So if you like what I have written what has taken me months to properly formulate due to my symptoms please share. 

Dear Doctors,

I’m 36 years old and I have been damaged severely by antibiotics.

I know these words will make you tense some of you may have already stopped listening but I ask you to think why you are so afraid to hear my words, to quickly discount me, to try and silence me.

I am 2 years out from this and have gotten worse. I had zero of my current symptoms prior to taking the medication and yet Drs are quick to look at other possible reasons for my symptoms that have lead to me becoming disabled rather than accepting the fact that side effects from pills caused this.

My question to you is why? That is something that each of you must answer for yourself. It may be fear that you have indeed done harm by prescribing these antibiotics to others, it may be ego, it may be because me standing here telling you that the rates at which people are being damaged by pills is growing and that offends you because how dare someone who has not gone through the training you have dare question you.

I know that it is a difficult job to be in the field of HEALING. I use that word because that is truly the field you have chosen. It is to heal. My question to you is then why are we floxies so scary? Why do you want to discount us? I may be one person but I represent thousands of men, women, and children who have been harmed. Who are continued to be harmed. We looked for healing and because it is called the “medical” field and not the healing field and because Drs are encouraged and trained to see as many patients as quickly as possible do not become attached don’t see me as a human I am discounted and marginalized. I am quite real and there is a problem with the way we look at healing today.

I ask and would love the answer as to why naturopathic and holistic healing are not combined in a larger scale today. Why patients are not allowed to choose to have an IV or oil of oregano as their antibiotic rather than one made by the pharmaceutical industry. If it’s really all about healing than why can’t these worlds be combined and outside companies who have not been tainted be used to see if integrative methodology of healing is truly the best form? When you laugh or smirk at this that is your ego talking. No one person knows everything and yet naturopathic and holistic healing is consistently down played in western society as a whole. My question is it ego that is preventing this integration to increase, is it pressure and power from the pharmaceutical industry to only use their methods, is it lack of knowledge about natural and holistic healing? My belief is that it is a combination of all three and I am sure other issues such as the question has healing become a business and when you turn people away due to lack of funds  or when the billing department dictates who gets to be seen by a Dr based on insurance and not need what message does that send.

I ask that you look at me as see I am very real, I am human and I deserve and every person on this planet deserves to be treated as such. When you marginalize me or say well side effects happen all of the time you are telling us that we are an accident and we do not count. We do count I can assure you the pain and the frustration alienation that we receive are very real. The message to us is very clear that we scare you that we are a reminder that western medicine does do harm and you want us to go away. I am here to say please stop fearing us and let’s all work together to find a way to minimize damage to create better methods to hold those that create drugs that do damage accountable and to get back to healing everyone by using the safest and most effective method.

-S

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.