I was prescribed cipro for a toenail infection on October 22nd. I went to the emergency room at 3am because it hurt so bad (the ingrown toenail). I was given a script of cipro and ibuprofin 800mg. I went to walgreens, picked the script up, asked the pharmacist if it was okay to take together and he said “yes just make sure to eat something so your stomach doesn’t hurt”
I would say what I experienced was way more than a hurt stomach. I was dizzy, anxious, bedridden and eventually suicidal and wanting to hurt other people after taking this med. Just so you know I am a very loving person, just a very traumatic thing for me I had severe chest pains 24/7. I went to the ER eight times with no luck. I was sent to the psych ward against my will once and then the second time just for being suicidal. I was so suicidal I wanted to jump eight floors from my balcony or buy a gun and shoot myself in the head. I was actually going to go to the gun store down the road, buy a gun, drive two hours away to the hills just to end my life.
I would rather have had my toe amputated instead of going through life like I did bedridden and suicidal and wanting to attack other people especially loved ones. Just think how hard that is. I am also $2500 in debt just from completely clueless doctors after literally EIGHT er visits! Just glad I have insurance as my total care was over $50,000! I too have suspicions when going to the doctor now, just wondering if they really have any idea what they’re doing. Just before leaving the ER that night the doctor told me the med (cipro) was just a generic med, made it sounded fine, just trusted what he said and went and took it. I took 20 pills over the course of two weeks.
I would have liked to known blowing my brains out was a possibility. I would have liked to known about buying a guy driving two hours away to end my life was a possibility. I would have liked to known jumping eight floors or wanting to hurt other people was a possibility as well. I would have liked to have known about the eight ER visits and two psychiatric ward visits as well. I would have liked to known about the debt as well. I would have gave it (the cipro) right back to him. I would have opted for an amputated toe instead of this mess – left me traumatized basically. I would like an explanation how I go to a fun loving uncle on October 21st to picking my prescription up on October 22nd at 3 in the morning wanting to jump eight stories or blow my brains with a gun out the day after taking this medication. I would hope doctors share my story with their patients before giving them this medicine. FORTUNATELY, I am better now and back to normal. I am no longer suicidal and living a normal life now, just lucky I guess. I would have to put this med alongside with date rape drugs or something, just completely messed up medication. Just can’t help but wonder sometimes..just take this medication off the market. I wouldn’t know if it has uses or not. I wouldn’t know as I’m not a doctor, just a computer technician. Just as a follow up, this med and the other floros are on my allergy list now, just so I never take them again.
Tomorrow will be 4 weeks since I took Levaquin and ended up in the mental ward of the hospital. I am guessing that I had a psychotic reaction to the medicine. I told my doctor, but he said it only effects the joints.
I don’t like talking about it, I’ve only told 2 people.
I was given Levaquin for a chest cold. I took it and went to lay down for bed an hour later. I laid down and closed my eyes and saw in my mind’s eye a huge, flashing light. I freaked out and went to the kitchen. There was a knife on the stove and something was pushing me to grab it and do something to my husband. It was such a strong feeling. I grabbed my phone and ran out of the house to the street and called the sheriff and told them to come take me to the hospital. All I could see was that light, there was nothing in the world but me and that light. I got to the emergency room. While waiting for the doctor, I asked the nurses to restrain my hands. They wouldn’t. A male nurse came in to draw my blood. I had my eyes closed when he came in, but my sense of smell was so strong, I could smell his male scent and I wanted to attack him. I just laid there with my eyes closed.
They took me up to the mental ward, no one had any idea what was going on with me. I have dealt with panic attacks for years, so they kept giving me medicine for the attacks. My body rejects most medicine, so if one medicine made the attacks worse, then they gave me another and another. An antidepressant too.
I didn’t sleep for 50 hours, I lost track after that. With the flashing light came thousands of images that flashed through my head. Dark things that I have never seen. Eventually it all subsided, then they gave me the Levaquin again and the flashing light and images were back. I knew then what was causing it and told them not to give me the Levaquin again. Through the experience, I felt my brain being fried and parts of it shutting down like it had enough, so it quit firing. I still don’t feel most of my brain. It is numb or dead or damaged. I dunno.
The thoughts don’t come as often. Strange things that I never thought of before the Levaquin. Like, the thought of what the texture of roadkill would be like in my mouth, the thought of driving into oncoming traffic, the thought of hurting my beautiful little kittens, the thought that cat poop smells good and I should rub it on my body. I am so scared of everything now and I’m scared of myself. I was going to hang myself when I got home due to the dark thoughts.
I have the physical symptoms that floxed people talk about, but what does the body matter without the mind?
My story begins in 2005 when I was working at a startup that had mostly management and very few hourly employees. Most had startup experience and would not work all the hours the ownership wanted. So at the most critical time of the companies history I was working 13-16 hour days and was totally exhausted and forgot I had an old water cooler filled with tap water that had been sitting there unattended for 8 months. I woke up half sleep walking from exhaustion and mistakingly had a cup full of the water. Not realizing it had algae growing in it and what ever toxins that where in it.
2 days later I was suffering from a severe infection and was sweating and drinking gallons of water, sleeping in pools of water and working 13-16 hours while trying to keep the company going and trying to ensure every one else kept their jobs. I finally made it to the doctor during the off hours and he gave me zythromax with no stool sample taken or anything to try to figure out what I was infected with. By then the damage was done and I had insomnia and a compromised immune system and spent the next 4 years seeing different doctors and taking any number medications trying to treat the insomnia and the slew of symptoms related to the damage.
After having insomnia for 4 years and only getting 2 hours of sleep maybe every other day and crashing hard sometimes and in and out of the hospital every winter during flu season and my body had given up I was prescribed levaquin for a upper respiratory infection on November 10 of 2009 I took one dose and slept. I took the second dose and was awakened to my tinnitus screaming like a cannon had gone off by my head. I had noise induced tinnitus from being a armorer in the USMC but this was something new and ungodly. Also my whole body was on fire and my heart was freaking out in my chest. I jumped up and hopped in my car and hauled my self down to the hospital.
They switched antibiotics and monitored me for a few days. I kept going in and out of afib every time I had to much stimulants like alcohol and coffee and cigars or any slew of triggers and my immune system kept crashing. Eventually they had to cardiovert me and at some point after that I lost my job so I went to the VA to try to get help. They treated my elevated tinnitus with in ear sound generators but would not buy the fluoroquinolone reaction as having anything to do with my CNS problems. So I was back to square one with the new doctors.
One day I went to the VA complaining of heart pain and they sent me to specialists that did a treadmill stress test. They found SVT induced afib and started me on propafenone which stopped the afib and also allowed me to sleep. During this time all kinds of other symptoms started to show up like inability to sweat, could not exert myself and still catching every cold and flu around. Since it looked like no one was going to believe me I started to research everything I could and one of my coworkers mentioned that a relative was in the Gulf War like I was and he said it sounded just like Gulf War Syndrome. So I started looking up all the info and researching all the things everyone has tried and started doing that. Supplements that stimulated brain growth factor, immune growth factor, nerve growth factor, neuroprotectant supplements, B vitamins, Iodine therapy, Acetylcholine cofactors, colostrum for mycoplasma and immune support.
All the while waiting for the catheter ablation techniques to improve until one comes along I could feel confident trying. I eventually stumbled on the Flox report and started looking into vagus nerve damage and neurotransmitters which lead me to acetycholinesterase inhibitors and racetams and nootropics. After coming up with my own cocktail of nutrients and supplements and damaged nervous system supplements. I took this for about a 1 year adding some new ones and subtracting some that seemed not to do anything while changing my diet and finally sleeping 8 hours or more a day and most of the symptoms resolved and the tinnitus almost back to pre-levaquin levels except for afib and the run away heart from stimulation via to much food, alcohol, tobacco or exercise. I can keep from going into afib and keep the heart under control with ACE inhibitors or high affinity choline uptake enhancers (coluracetam, oxyracetam). If I stop them then I can go into afib again if I have alcohol or tobacco or a big meal. It seems to have messed up something in my hippo campus and or vagus nerve system that controls the sympathetic and parasympathetic systems.
July 21st.2011 a day I will never forget. The day that I had my severe adverse reaction to Cipro. The day prior I had went to my Dr.’s office because I felt the onset of a UTI, my children were in town and I didn’t want to be laid up in pain.
The Dr. asked me if I had taken Cipro before, I said “no.”
She then said to me really fast “If you feel pain in your arms let us know”. Then headed out to see the next patient. I took 3 pills.. a dose and a half. An hour or so after my last pill I took I was so weak to lift my finger felt heavy. My body ached everywhere. I then became so tired … It took my husband about 10 minutes to wake me up..to even get a reaction out of me.
Ever since then I have experienced heart racing, seizure, temporary hearing loss, stinging, burning, tingling, and numbing in my arms, legs, wrists ankles fingers shoulders…everywhere. I have been up for hours at night crying in so much pain everywhere I just wanted to die. So weak, exhausted. I have had loud ringing in my ears, my blood pressure has elevated to 140/100. I have never had high blood pressure. I am losing about 3 pouds a week. I have a huge loss of appetite.
I feel as though acid is running thru my veins and my body is burning inside.
These are just some of the things I have experienced , certainly not all.
Prior to Cipro I was active, loved to laugh, loved to go on walks. I smiled all the time. Now I am lucky if I can walk down 3 aisles at the store without stopping. It takes so much energy just to laugh.
Cipro has robbed me of me. Sucked everything out of me.
I didnt want my kids to have to deal with me in any kind of pain while they were here, I was doing the right thing by seeing the Dr.
What they ended up seeing was me in devistating pain, tears that will not stop and wondering if I was going to make it.
The Dr. didnt try anything else prior to giving me Cipro, didnt tell me that it had huge risks.. didnt even give me the option to choose.
I am forever scared of Dr.’s and they’re intent from now on.. never will I trust them.
I have told everyone I know to never take this , Those closest to me have seen the devistating effects of Cipro. For I have felt pain where I never knew pain existed..
My life has done a complete change.. the life I once had is gone. The mental anguish this has given me is beyond words..
everyday something new..the pain never stops.
Note – Three years after Michelle took Cipro she was diagnosed with Lupus. Her paperwork stating that Lupus was brought on by Cipro is pictured above.
18 months ago, my liver shut down and I was diagnosed with end-stage Liver disease. I was in and out of the hospital 13 times and the last time I was on my back for almost 3 months. During the most critical phase of my treatment, I was prescribed ciprofloxacin (Cipro) to fight infection of the fluid that was gathering in my abdominal cavity. I was given the Cipro in the hospital and then upon my release was prescribed 100mg Cipro daily. The fluid eventually ceased to be a high priority concern, but even though I was under the care of several specialists, none of them were aware of the toxicity of this drug.
I was unaware of the danger too. I was very sickly and symptomatic but figured that it was my liver causing all of these issues. The fluid retention was directly due to my liver failure, but some of the other symptoms began to get worse and I thought that it was what dying felt like. I can’t list ALL of the symptoms, but here is some of what began to happen; my vision began to deteriorate and I was seeing light and shadow forms. I got glasses but grew out of the prescription in weeks. My hearing became distorted. I started to have a lot of forgetfulness and confusion. When I went places I would blank out and not know where or why I was there. I started to find it difficult to remember how to speak, I couldn’t remember the last word I said or what I was even talking about. I was fatigued all of the time to the point where I had to lay down during my meals. My blood pressure was so low that I had some mini-strokes and have some permanent residue from them. I couldn’t lift my arms above my head and it was painful to stand up. I started getting injured a lot…in bed! I would roll over on a pillow and something tore in my ribcage. The pain from these injuries would last about a month and this happened 6 or 7 times. Finally my teeth started to deteriorate and calcify as well. This happened very suddenly. My teeth then began cracking and breaking off at the gum line. Eventually I lost all of my teeth. It was the scariest thing I have ever experienced in my life. Eventually it got to the point that I felt as if I had gone crazy and there was no return. I began planning my funeral.
My liver numbers were getting better but I was feeling worse. People said that I was just run-down, but after my teeth fell out, I knew something was very strange. I started to get curious about some of the meds I was taking and found an article titled “Cipro is Poison”. In that article, the author mentions dental damage and then I started reading about the other symptoms. I had every single one of them. I immediately stopped taking Cipro. Slowly, very slowly some of the most painful symptoms began to subside a little. My memory started to come back, eventually I stopped tearing connective tissue, I could speak better and movements became less painful. Of course my teeth are never coming back but I took Cipro for 8 months at that dosage and I am just thankful for some of the symptoms to have ended before the damage even got worse.
I do not blame my doctors. I have great doctors, but they were not informed or aware of the long term damage that Cipro can do. They were too busy saving my life to do the research that should have been readily available to them. Both the manufacturer and the FDA minimize these findings and take what is plausible and try to pin it on the other’s side. No one will admit anything.
I am still awaiting a liver transplant, but I am healthy. Besides my teeth, the most lingering effects of the Cipro are joint and muscle pain. I also feel my diet had a lot to do with my recovery, but that’s another topic. The only thing I can do at this point, is NOT TAKE CIPRO! For when I get my transplant, I have it written into my chart that I refuse Cipro in ALL situations. I hope this helps someone to cope as the article I read, did for me.
I took Cipro in October 2012. It was not my first time on this medication. Probably more like my 7th or 8th time on a Fluoroquinolone. But this time was one time to many. I was never warned of side effects, potential adverse reactions, black box warnings etc. even though I had some irregular heart beats from avelox previously. I had almost every ADR in the book when my reaction occurred. On my second day I had a few hives but didnt think much of it. On the third day burning pain started throughout my body as if someone had lit me on fire! The first month I slept about 15-18 hours a day. Could barely get around, it was like mono times 100. The pain was relentless. I didn’t think I would make it.
Here were my symptoms:
8)Hot and cold sensations
10)Electrical shocks shooting up spine
11) Brain fog/couldn’t remember words
12) Crying jags
13)Temperature regulation problems
14)Blood sugar problems
15)Connective tissue/tendon damage
16)Little blood vessels bursting
18) Worsened Reflux
19)Panic/neurological attacks(especially from dead sleep)
23) Sheer Exhaustion
24) Irregular heart beats
25) Shortness of breath
26)Extreme skin sensitivity to touch
I am sure I am probably missing some but you get the point. I would say today a little over two years later, I am probably 70- 75% recovered on most days (some relapses here and there), with some damage that may or may not be permanent. Only time will tell. I have some low grade to moderate chronic pain at times which varies on how good I am now with diet/health ,hormones,or my daily life, etc…. Very sensitive to everything but had a sensitive system before. I try to avoid any medications and treat any complications through alternative medicine.
What I did to heal:
1)Magnesium four times a day first couple months then twice a day
2)NAC twice a day
4)I did have to take xanax 0.25mg in the first few months to take tiny edge off pain
5)I pretty much lived on green drinks( juiced cucumber,kale and celery) and organic vegan fresh made soups and penta water for the first couple months)
6)Iced my joints a lot
7)Slept a lot
8)Acupuncture after month 4
9) Stretching after month 9
10) Short walks after 10 months
11) Diet strict no gluten, dairy
12)No meat for 6 months
13)No caffeine or alcohol the first year (still makes me flare up) can have some small soy lattes here and there
14)Epsom salt baths after 12 months
15)Gentle yoga after 14 months
16) Added vitamin C, multi, Bcomplex, digestive enzymes, vit D, coenzyme Q10 within the first year
17) Avoid medications and or toxins
18) Tart Cherry juice for pain
Rest don’t push yourself listen to your body, don’t compare how you were before try to just focus on the progress you make even if they are baby steps or sometimes one step forward and one back. Its a marathon not a sprint to heal from this.
Note – Lisa Bloomquist is the administrator of this site and all of the posts have her name at the top. This story is not Lisa Bloomquist’s story. It is Lisa Brady’s story. Sorry for any confusion!
In February 2012 I was suffering from a fairly severe upper chest infection and after two weeks of feeling like I was close to having walking pneumonia, I was begged by friends that I needed to see a doctor as I do not like going to docs unless absolutely necessary and very rarely ever take antibiotics ( I am sure I was floxed before in past surgeries throughout the years without my knowledge). After going to see ‘Doc in the Box’ ( Immediate Care Clinic) and my regular doc was out, I was seen by an abrupt internist, after a brief 3 minute examine, she indicated, ‘yes, you have walking pneumonia, I’ll give you this antibiotic that will wipe this infection out in two minutes flat!’. I replied, ‘Really? You know from my chart I have an autoimmune disease, is this drug ok to take with my sensitive system?’ ‘Of Course!’ says she…and it turns out after a chest xray, no pneumonia. However, consumption of Avalox has already been consumed…
Within 24 hours, the infection was getting better, the deep, crupe type cough was beginning to ease, however, I was feeling this terrible dread, like all of my happiness or positive feelings had been squeezed out of me, I know it’s a strange way to describe it, but that was the first of many, many Adverse Reactions I began and still, to this day experience, almost 3 years later, and no, it does not ‘leave your system after a few days’.
The other ‘side effects’ came on like a sunami raging not only my body, but in my head too. I was already in deep chronic pain from a fall down a deeply steep hardwood stairway in my home, resulting in many fractures in my sarcum, also my cocxyx has twisted off and had attached itself to my lower spine, and went unnoticed by the Doctors for three months in 2008, resulting in two spine surgeries and chronic pain that felt like I was turning into the girl from the ‘Exorcist’. The first night I took one 500mg Avalox, my joints felt like acid was running through my veins, and it felt as if my olfactory was destroyed, I could only ‘smell’ deep, burning rubber. Then my heart started fluttering and felt as if it would come out of my chest. That night the hellish nightmares started and it has not let up on me. I was unable to walk for up to two weeks, could not lift my legs that had turned into water and the fatigue, and lethargy are indescribable. I also experienced psychosis, deeply disturbing suicidal thoughts, could not stop crying for months ( sounds like depression!) absolutely could not hold cognitive thought process, vomiting for days on end, tremors, anxiety, hallucinations, severe dizziness, numbing, burning sensations of hands, feet, legs, bleeding gums, bone pain, dry mouth, weight gain, increased thirst, problems with speech, complete brain fog and the list goes on and on. Because of 5 pills I took, (only took 5 of 10 pills prescribed) the results have been flung far and wide:
I lost a very lucrative corporate catering contract I had under my consult for the past 15 years that at times earned me over six figure income that supported my daughter and myself.
I lost many friends that thought ‘it was all in my head’ and ‘An antibiotic couldn’t do this to you or it would be banned from the market, right?!’
I lost the person I used to be. The person whom never thought something like this would happen to me. (Humility one oh one)
I lost the ability to support myself and my daughter and now looking at filing bankruptcy, cannot get disability, almost zero child support and now living day to day.
HOWEVER, I am not going to let this devil of a drug take the rest of my life from me, from us! I have always been a fighter, even though I fight from my sofa, I will get better!
Thank you to all the FB groups whom have been so helpful and in my darkest moments, have helped me crawl towards the light…
This video describes Genifer’s story –
I write this with great difficulty and almost at the point of despair. I have never felt as unutterably ill as I am feeling at this moment. I am losing sensation in my arms and I am having difficult gripping objects. My legs feel disconnected from my control and I walk like a Thunderbird puppet. Every part of my body is screaming at me as waves of electrical shudders start in my brain and travel outwards. I have terrible head pressure with loud tinnitus. It feels like a high pressure hose has been inserted into the centre of my brain and that my consciousness is being squeezed to a narrow point. The brain fog is painful and impenetrable and I experience no respite; only unremitting Groundhog Day hell with one difference, each day is worse than the one before. I am not exaggerating. I cannot express in words adequately what I have experienced during the last three and a half years. Please bear with me.
In March of 2009 I experienced some pelvic pain. Before this point, I had never had any pain worth mentioning. I had never had muscle or joint pain of any description, I could swim and cycle, and more importantly, I had a sharp and clear mind that was able to teach Chemistry and I was in a plum job working part-time in a local grammar school. Such times are distant memories. I saw a Urologist who diagnosed Non-Bacterial Prostatitis and he prescribed 6-week course of CIPROFLAXACIN. I took the first tablet and two hours later my life changed completely. I experienced electrical brain zaps and other indescribable head sensations that stopped me in my tracks. I was at the kitchen sink thinking I was having a fit. I knew something was wrong. Dreadfully wrong. I rang the GP Out-Of-Hours service who “advised” me to continue with the course of tablets. Foolishly I did. I should have trusted my own judgment but at that point, I still had faith in the medical profession. After all, I was a scientist! I returned to the sofa where I stayed virtually for two weeks. Brain fog descended which I cannot adequately describe. It was and still is like trying to think through an electrical mist and that somehow one is not able to think properly. Then came an awareness that something was going wrong throughout the whole body. I felt as if I had been systemically poisoned with strange pains developing everywhere. I went to see my GP who suggested that I discontinue the treatment. I did so, but of course, the damage had been done.
From then on, I rapidly descended into a hell from which I am trying to escape. Then began a sequence of visits to the A&E department. Each time I was informed that their checks revealed no abnormalities. LETHARGY AND STRESS WAS A POSSIBLE DIAGNOSIS. Take a valium!
I must be going mad.
In 2010, I underwent bilateral endarterectomise and in December 2010 I suffered a stroke – infarct in the right frontal lobe and haemorrhage in the right parietal lobe. A stroke brings with it its own physical and emotional challenges. Whilst in hospital I was given Zopiclone to help me to sleep. On discharge, it was added to my general prescription list and I took it for a year! My Neurologist, on discovering this was extremely concerned. He told me to stop taking it as it was affecting my mind and mood. I subsequently discovered that Z drugs are for very short-term treatment only. I discontinued and about 10 days I started to experience withdrawal symptoms. I was prescribed Diazepam. No withdrawal protocol was provided. After four months, I demanded that the GP get me off this stuff. I cannot believe the complacency and indifference displayed by whose vocation it is to care for the ill. I slowly withdrew, but the toll the benzo was having on my already cipro-damaged and sensitised body was becoming too much. I went cold turkey from 3mg a day on the 7th of December 2012. I am now going through withdrawal nightmare!
My damaged neuromuscular and CNS is exquisitely hyperexcited. I have insomnia of industrial proportions. I continue to have every symptom described by others who have been affected by fluoroquinolone toxicity. I feel medically abandoned, isolated, vulnerable and frightened. I don’t recognise any part of my body or personality. I honestly don’t recognise my FB profile picture. I have lost 15 years of memories. I know I used to teach but I cannot recall my subject. I have been transformed from a reasonably healthy and fit man to a mental and physical wreck.
Cipro has cost me a relationship, my livelihood, my sanity and my health, unwittingly aided by a medical profession whose attitude to adverse drug effects is one of complacency and indifference Ignorance can be rectified, wilful ignorance is abuse!
My only sin was to have a misplaced faith in doctors.
It has been a descent into iatrogenic hell. A hell that even Dante could not have conceived!
To all who read this – THINK LONG AND HARD BEFORE TAKING FLUOROQUINOLONES!
The help and support from family and friends is what sustains me. Thank you!
Hello All,My name is Bill.I,m a 60yo who lives in Australia and a victim of cipro.I went to see my doctor and was prescribed ciproxin eardrops for an ear infection.They didn,t seem to help my ear so went back to doctors and told him my shoulders were very sore and I had a strange rash on my back.He sugested I may have tendonitis.Days later I discovered the conection ,cipro and shoulder pain ,on the internet.By this time my shoulders were a real problem.One had gone all clunky and the other, my left, had waves of searing pain.Lying down was unbearable and sleep none existant.I told my doctor that I suspected cipro, and was told , very unlikely.I got a second opinion from another doctor and he treated me like a fool.There are no warnings on my medication at all and none from either doctor.9months later and it just gets worse,awfull neck pain,twitching in my shoulder,constant fatigue,no sleep,pain that makes me vocalise at night,dry mouth, unable to lift arms above my shoulder etc.I was allways active and enjoyed playing my keyboard but that is now limited .I cant believe I,ve found myself in this situation.I now sleep alone so as not to disturb my wife .We , who are poisoned, need to warn others and let it be known,DO NOT TAKE CIPRO.
My sympathy to all,Bill
This is a very hard story for me to tell. It all started four months ago with what I thought was a bladder infection. I called the doctor and had him prescribe something over phone. He called in a script for Bactrim which I took for three days but it didn’t make anything better so I decided to go to the doctor. I have a urine sample. They said there was no sign of infection but they would send it out for culture. In the meantime try cipro since its a broad spectrum drug. He asked if I had a problem with quinolone drugs. I had never taken cipro before so I told him I didn’t know since this would be the first time taking it. I took it starting march 12th for three days at 250 mgs twice a day so a total of six pills. On the third day I was walking up the stairs and felt a sharp pain in my knee. I had read about tendon issues so I immediately went online and what I read horrified me. I have anxiety issues already so reading all of these stories really put me over the edge. Five days later I got burning pain in both achilles and started to get non stop muscle twitching in my calves. I went to the emergency room and was told that this can happen from cipro and I was given lidocaine pain patches which didn’t do a whole lot. I started to get burning places all over my body and pin pricking sensations. I read all of the supplements that seemed to help people and tried many of them. Over the next month or so things seemed to be getting some better. The burning pains seemed to be dying down. I was getting sharper pains in my achilles tendons but they weren’t constant. Three months in I started doing physical therapy for my tendons and that really seemed to help the pain and strengthen them. Now just this past weekend four months in I started to get intense burning mainly in my hands and arms but intermittently in random places in my body. Some of the muscle twitches are coming back. I’m beyond terrified right now that this is going to be permanent. I’m only thirty years old and newly married. I’m afraid this is going to keep me from having a family and keeping my job. I can’t believe that this is all happening from an antibiotic that I didn’t even need. I keep trying to pray and stay as positive as I can but its very very hard. I get down very easily and cry alot. Especially because once I started physical therapy I really thought things were turning a corner. I hope that I don’t have permanent nerve damage and that this doesn’t get even worse. I hadn’t wanted to post my story before because it made it all too real that this was happening to me. But I know now it is real, it is happening and there’s not much I can do but hope that things don’t get worse and improve to a point where I can live my life and have the things that have always been so important to me.
I was floxed by Ciprofloxacin February 4th of this year. I took two 500 mg doses of it, and began to feel like my leg was swelling, so I discontinued use. Two days later I was in the emergency room with what they thought was a blood clot. All tests came back negative. At this point any doctors I spoke to didn’t believe it was the cipro and I even had a nurse laugh at the suggestion of it.
It was then that I decided to look into it online and it opened up an entirely new, and scary world for me. Over the first week the pain began. I was in excruciating pain, it felt like my leg was being ripped apart. I was diagnosed with “tendon issues”, maybe tendonitis from my doctor and given percocet for pain and no other options.
I began a strict eating plan and “detox” schedule. I used schizandra tincture and detox tea, as well as eating a mostly vegan, high veggie and juicing diet. I went through many “detox symptom” days. I can’t say this has helped my reaction to be less severe than it would have been, but it’s possible. I also have been able to spend the entire 7 weeks post floxing at rest. This also could add to a quicker turn around.
It’s been a long seven weeks. My main symptoms have been tendonitis from hip to toes in my right leg. I’ve also experienced insomnia, tremors, anxiety/panic attacks, muscle atrophy from not using my leg, bouts of nausea , headaches, lethargy, burning/shooting pains throughout my body.
I am a dancer, I have been for 25 years. I competed, I ran a very successful agency for performers (including performing myself) for the last 4 years. I sold my portion of my company to move back out into BC, Canada, in nature and go back to teaching dance. This has completely stolen that from me…let alone being able to do most anything most days.
I have been seeing a naturopath who has been doing myofascial release on my leg to free up tightness. (I spent the first 5 weeks with my leg in a permanent semi bent position). We have also been doing Myer’s Cocktail and Glutathione IV therapy.
As of this week, I finally have some mobility in my leg, but the anxiety and panic attacks have worsened. I know it’s been suggested that the fluoroquinolone is stored in the tissues and I figure the myofascial release has been releasing it into other parts of my body.
The worst part of this for me is facing my greatest fear of not being able to do what I love: dance.
I have hope that i will get better, and maybe sharing what I have done will help others to gain some relief.
Lastly, I hope this serves as a warning to anyone who is thinking of taking the fluoroquinolone class of antibiotics. It’s just not worth it!
The picture I have attached is of me performing last summer in front of 14,000 people…now I can’t even walk. What a shame.
It has almost been 3 years since I took a 30 day supply of Cipro for a UTI that has
changed my life drastically. During the course of of taking Cipro the first thing I
noticed was how incredibly weak my body felt and fatigue hit so hard I couldn’t
keep myself awake for anything. I would sleep for days, calling in sick to work,
somedays were so bad I couldn’t even manage the phone call and slept right
through the day. A couple weeks after stopping Cipro the aches and pains started
first in the top of my feet and ankles. Then my wrists and forearms as if I had some
harsh form of tendonitis. I started wrapping my wrists, arms and feet with K Tape
on a daily basis.
I had no idea what was causing these issues, but started the research on Cipro as I
had read about tendon ruptures. I went back to my doctor whom I had been seeing
for 10 years and mentioned the problems and she immediately became defensive
and made a comment about how people should not read forums and try to
diagnose themselves. Basically she made me feel like I was way off base and had
no idea what I was talking about. That was my last visit to her. Not because I knew
she was wrong, but because she didn’t listen and very clearly did not want a simple
minded patient telling her what they felt was wrong. After all she did have 7+ years
of med school.
My eye sight started going bad very quickly which for some reason I attributed to
age (I was 41) even though it was only a matter of months after an eye doctor visit.
Within the first few months after taking Cipro I had constant tingling, numbness,
brittle feeling as if I had no muscle in my body, depression that I couldn’t control,
loss of balance and running into things that were right in front of me, anxiety, panic
attacks so bad that I would not leave the house, insomnia that lasts for days at a
time, and nightmares. I started to see a holistic doctor, not covered by insurance,
but I was hoping she could find cause of pain. I didn’t mention the Cipro I had
taken a year earlier as I thought I was wrong about the cause and thought if it was
really the reason for my problems it wouldn’t be on the market. My holistic doctor
diagnosed me with fibromyalgia and chronic fatigue syndrome and wanted to run
tests to find heavy metal toxins in my system after a couple of months of taking
some supplements such as magnesium, omega-3, vitamin K, B-12, and prescription
strength vitamin D.
We also talked about stress management due to my job and I decided after 16 years
I would leave my position and went to a smaller startup company. But the
problems persisted and after three months with the new company they let me go as
I could not make it to work, I missed at least one day a week and could not control
it. I would be so exhausted from insomnia that when I tried to close my eyes I
would see faces of people shouting at me and immediately jerk back awake.
I couldn’t explain and was afraid to tell any doctor for fear that they would label me
psychotic. Again more research pointed to Ciprofloxacin-induced acute psychosis.
Not only had I left a company I had been with for my whole career and lost a great
salary and great benefits, but I’ve lost years of time with my family. I lost moments
that I will never get back. I still have up and down days, the symptoms come and
go, short term memory is horrible and embarrassing at times.
Finally a few months ago I heard FDA announced the link to peripheral neuropathy
and started reading about what Cipro has done to others I at least know I am not
crazy. Levaquin almost sounds worse. I am not about to let Bayer get away with
what has happened and I have an appointment with neurologist coming up. 3 years
and I can say symptoms showed up from first couple of weeks during treatment and
new symptoms continued over months after completing the drug. Some even a
I’ve reported adverse reaction to FDA, signed petitions to remove the drugs from
the market, and participated in a study over a year ago with a college that
contacted me after a post I left on http://www.askapatient.com, and I’ve contacted a
lawyer and I plan to be an advocate every day of my life especially after reading
about how many others have been impacted, lost their lives, or completely disabled
on the various support groups on the internet. I don’t want to delay any longer, I
want to make sure no one ever goes through this. I am no longer ashamed and that
is because of these support boards and stories from others that are so helpful. I
appreciate every single person that has came forward to tell what these drugs have
done to them. Don’t ever let a doctor make you feel stupid when you ask questions
about medicines or symptoms. Some have such ego problems or just completely
uninformed that they don’t take the time to listen. You know your body better than
January 4, 2013 I went to the ER with kidney stone pain and was admitted overnight and given an antibiotic one time via IV because my white blood cell count was elevated. I was released the next day, no prescription to get filled, just went home.
January 14,2013 I go back to the ER with kidney stone pain and was admitted to the hospital for 3 nights/4 days. I gave the ER/hospital all of my past medical information/surgeries and meds I take just as I had done the time before. I told them in 2011 I had a torn tendon in my foot repaired and 2009 a tear in my left shoulder repaired and 2004 a tear in my right shoulder repaired. While in the hospital I was having some shoulder pain which I thought was from not sleeping in my own bed. I was given an antibiotic for 4 days via IV. When I was released I was given a prescription of Levaquin 500mg to take for 7 more days. After I got home from the hospital I started to have pain in my foot and shoulder. I got the prescription filled and read the warnings and about flipped out! I was hoping that the hospital didn’t give me Levaquin after I told them my past history of torn tendons. I began to have pain in both shoulders and both knees so I went to the hospital to copies of all my records from both times I was there. I could not believe it when I read they gave me Levaquin! I’m still SHOCKED! I’m also shocked because I didn’t have an infection either, only a small amount of bacteria in my urine. Having the kidney stone issue and a doctor telling me I need to have part of my kidney cut off I went to the Mayo Clinic in Arizona to get a second/REAL opinion. I mentioned to the Mayo doc about the Levaquin and his exact words were ” I don’t understand why doctors continue to prescribe Levaquin or any of the Quins, they prescribe it like its candy”. So as I sit here, happy I found you on FB, I’ve recently had one knee surgery and an MRI showing a new tear in my right shoulder and waiting to have MRI’s on my other knee and shoulder. My life has gone down the tube, depression, mood swings, anxiety can’t do the things I use to could do, I rarely leave my house these days. I’m 56 and have 2 young grandkids and now I’m so limited I can’t stand it! I use to go on bike rides but now I do good to get up the stairs in my house! Why on earth would a doctor/hospital/ER give me a drug that has such a strong warning about tendon issues when I told them I had 3 past surgeries for torn tendons? What is wrong with some of these medical professionals and drug companies ? PLUS I still have a freakin kidney stone and I don’t need part of my kidney cut off. What is going on??? I need a lawyer!