Kim’s Story – Ciprofloxacin Poisoning

I am a 42 year old male (a husband and father of three children) from Tasmania, Australia. I have been suffering from suspected epididymitis since May 2017. After taking a number of courses of antibiotics (such as doxycycline) on and off over several months with some improvement, but no full cure, I was referred to a urologist. After a very cursory appointment of around 5-10 minutes he prescribed me Ciprofloxacin. No mention of any possible side-effects was made. Three days into taking this course of Ciprofloxacin (12 February 2018) I began getting pain down both shins. My legs also felt weak/heavy. By Day 5 the pain was considerably worse and had begun to spread to my ankles and feet. I decided to stop taking any more Ciprofloxacin tablets as the timing seemed to be too much of a coincidence (had now taken 10 tablets – 5 days of 2 tablets per day). I also read a number of peer-reviewed medical and research articles online and many other thoroughly researched articles online (from the US, Canada and Europe) that document thousands of cases of people who have had serious adverse reactions to Fluoroquinolone drugs – many whose initial symptoms were almost identical to my own. Over the next few days the pain continued to spread into my heels, ankles, feet, toes, shoulders, arms and elbows, with shooting pain in my tendons and muscles. I also started experiencing tingling sensations in various parts of my body – like little shocks of electricity that continued to move about the body – particularly limbs and face. My legs started to lose strength and I had difficulty walking. I also began to experience numb feet and toes. I have also experienced brain fog and considerable fatigue since this time.

On the 23 February 2018 my condition deteriorated rapidly. I was at work (I am a high school English teacher) and was walking to my classroom when my left ankle begun hurting much worse than I had been experiencing over the last few days. I was barely able to walk and just made it to my classroom by hopping. I went home and later that day to my GP, who referred me to Accident and Emergency. A number of tests, including blood tests were conducted there and the following week an MRI of my brain and spine was conducted. All results returned negative for other possible causes of my symptoms. A physician detected a lack of neurological sensations in my peripherals, particularly lower legs and feet. It is his opinion that my condition is fluoroquinolone toxicity caused by the Ciprofloxacin tablets I took.

I continue to have ongoing side effects. The pain has become more concentrated in my joints, especially ankles, shoulders, elbows and wrists, but I continue to have pain down my shins and arms. Just walking from my office to my classroom is difficult and painful as my ankles and lower legs become increasingly sore and weak with walking. Simply holding light objects such as a book for any period of time causes increased pain in my shoulder, arm, elbow and wrists. One of the side-effects that only emerged two months after the initial toxicity is a severe shivering/skin crawling that is very uncomfortable and bordering on painful (perhaps this is due to the weather cooling). I am taking the pain-killer amitriptyline (Endep) daily.

I have had to make the difficult decision of reducing my working hours to try to cope with the effects of this toxicity and give my body a greater chance to recover.

Other than my current physician and one other GP a few months ago who mentioned an antibiotic that might cure my epididymitis but could cause Achilles tendon ruptures (which he did not name but I now assume was Ciprofloxacin), all the other doctors I have seen have had no awareness of the well-documented and researched serious side effects of this drug. After speaking to two of the doctors, they (to their credit) went away and researched Fluoroquinolone Toxicity Syndrome and came back to me apologising that they had not previously been aware of this and intimated that this is likely what I am experiencing. In many countries this drug has been removed due to the acknowledgement of its serious and long-term side effects. In other countries, such as the US, this drug has the strongest warning label possible (black box warning), following pressure from many medical professionals and this issue resulting in court cases. The US has also already taken a number of other fluoroquinolone-based drugs off the market. It appears that currently Australia is considerably behind much of the developed world on this issue and it is my great desire that changes can be made in my country to avoid other people experiencing what I am experiencing – through the medical profession being made much more aware of the dangers of this drug, increasing the warning labels for this drug and prescribing this drug much more judiciously and as a drug of last resort (if at all).

I am grateful that I have a supportive wife, understanding children and a Christian faith and church community to help me wrestle with this condition. One of the most challenging aspects of this toxicity for me is the uncertainty: what will the next hour be like?  What will tomorrow be like? What will the next few weeks or months be like? I am still quite likely at the beginning of this journey (having read numerous people’s stories – many of whom are now years into their toxicity). I know that some have made almost complete recoveries within a few months and so am trying to be hopeful and realistic at the same time.

I would love to hear from any Australians who have suffered FQT, sharing what their experience has been like and whether they were able to get support from the medical profession or from others within Australia.

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

 

Jon’s Story – Tinnitus from Fluoroquinolones

In December 2016 I fell from a ladder and fractured my Coccyx, one of the complications that came on about 2 weeks after the impact were symptoms of a non-specific urinary tract infection and blood in my semen. I was prescribed by my doctor a 1 week course of Ciprofloxacin, 2 tablets a day. I’m usually reluctant to take antibiotics but due to the worrying nature of the symptoms I started the course in good faith.

Mid way into the course of treatment (having taken 9 out of 14 tablets), I returned home from work that day feeling dizzy and unwell and went to bed at 9pm. At about midnight I woke with the most alarming ringing in my ears, completely deafening in volume that made me leap from the bed and shout to my wife in a highly stressed state. The ringing subsided slightly over about 15 minutes so I tried to calm down and return to sleep. As soon as I started to fall into a light sleep the ringing would return to maximum intensity and wake me with a fright. This was the start of an alarming cycle which meant I was getting no more than about 30 minutes light sleep before waking up due to the tinnitus.

I called my doctor the next day and as my infection symptoms has subsided he agreed I should stop taking the Ciprofloxacin and that my tinnitus should disappear as the medicine left my body. However this was not to be the case, during that first day I was aware of a constant hissing in my left ear and a higher pitch whistle in my right ear. That night when I tried to sleep the same cycle continued, on falling asleep the tinnitus would ‘spike’ and wake me a short time later at such a loud volume if felt like a pressure valve going off in my head. It would subside over several minutes, I’d fall back asleep but the same pattern would continue. After a few days I became increasingly exhausted and distressed, the hissing ‘soundstage’ would remain during the day and at night the spikes continued I’d have the most terrible time sleeping. I couldn’t work and returned to the doctor several times in those first couple of weeks who said I was experiencing an acute stress reaction to the sudden onset tinnitus. I returned to work after about 3 weeks but had never felt so broken and at a low ebb.

The months that have followed have been tough. The tinnitus is always there during the day and still very loud during the night, I’ve found that it is quieter in the morning and builds throughout the day in volume. It also varies in intensity in each ear day to day and this changeability makes it very hard to habituate. I’ve been seeing an ENT consultant who reported my reaction to the drug and carried out an MRI scan to check if there was anything underlying that could have caused the problem – there wasn’t. He confirmed that my hearing has been affected and I’ve experienced moderate high frequency hearing loss in both ears.

I’ve had some cognitive therapy treatment from a hearing specialist working with tinnitus sufferers which has helped a little. I’ve found coping techniques such as playing ocean noises at night have helped improve my ability to sleep which has meant life has returned more or less to normal. I do however feel my tinnitus symptoms are gradually worsening over time, I seem to have more bad days and nights than I used to in the early months. Recently I’ve had a head cold and that seems to have worsened them still and at times i struggle with daily life and feeling positive. My ears are very sensitive to loud noises now. My wife and I sleep in separate rooms because of the sleeping issues, this has impacted on our relationship and the ease of doing things we used to enjoy such as nights away. What saddens me most is that my life feels compromised, my wife see less of my fun side and not able to be the strong one in our relationship any more.

My wife recently became pregnant for the third time and we were concerned that my health issues along with some other significant pregnancy health risk factors affecting my wife that a third child (3 under 3 years) would put both too much risk and pressure on our family. We made the unbelievably difficult decision in December 2017 for an early termination of the pregnancy to ensure we can focus our love and attention on our 2 young boys already here. Whether we would have made the same decision if I’d never taken Cipro and the challenges that this has brought into our lives is something that will haunt me to the grave.

My wife and I both felt something positive needed to come from our sad decision so this year I’m committed to getting the support i need to help me with my tinnitus starting with a local tinnitus support group and audiology assessment later this month. I’m focusing on the loved ones in my life and being thankful every day for what i have. I’m making sleeping separately the exception rather than the norm (trialling a sleep headband that plays sound). I’m eating healthily, drinking in moderation, going to bed earlier and doing more structured fitness all which helps with my mood and general well being. I’m determined to live life to the full and bring happiness to those i love despite what has happened to me.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Erin’s Story – Disability from Ciprofloxacin

Erin’s story was originally published on http://pointsnorthatlanta.com/important-questions-to-ask-your-pharmacist/. Thank you for sharing your story, Erin! 

As I left the gastroenterologist’s office in late July 2015, I did so with hope. I’d been experiencing unexplained nausea and bloating for a few weeks and, while hospital test results showed normal white blood cell counts and I had no fever, I was sent home with antibiotics as a ‘ just in case.’

I’d be better in no time; I just knew it.

The following day, I experienced numbness in my hands and feet, but was encouraged to continue my course. I did so, but the following weeks saw multiple trips to the emergency room, presenting with increased and body-wide symptoms.

No doctor could figure out what was wrong. The symptoms continued to pile on, and I was baffled. Neither I nor my doctors made the connection to the ciprofloxacin antibiotic I’d been given.

I was hospitalized by mid-August, given more antibiotics, iron and steroids.

I have been disabled ever since.

Prior to taking the ciprofloxacin, I was a 34-year-old newlywed and world traveler whose career was going so well, I decided to strike out on my own. But that bout of nausea — which was later resolved by a simple proton pump inhibitor — and that fateful prescription for antibiotics set me on a course of 24/7, 365 pain that has not resolved.

The numbness became excruciating, burning nerve pain in my hands and feet. I spent all day in bed, covered in ice packs. Overnight, my previously perfect vision became light sensitive and blurry, and I developed a rare condition called visual snow. Head pressure, ear pain and popping became a ceaseless tinnitus. I was suddenly unable to sleep. At all. Ever.

At the same time, my blood pressure became unpredictable. My heart rate and body temperature vacillated wildly. When I stood, my heart rate would spike, and I would feel dizzy or faint.

I saw countless specialists, but none could help me. Most did not believe what was happening to me. I didn’t want to believe it either, but the evidence was all there: dozens of studies detailing the potentially permanent, debilitating side effects of Cipro and other antibiotics in the fluoroquinolone class. But I, like so many others, was never warned.

In March 2016, the body-wide joint, tendon and bone pain began. Suddenly, it became painful to walk, type or lift even light objects. My skin, eyes, nose and mouth became impossibly dry. My hormone levels were all over the place. My hair fell out by the handful. I was horrified. What kind of medication continues to affect you six months after you take it?

The answer: fluoroquinolone antibiotics.

In November 2015, the FDA held hearings with people like me who have become permanently affected, and, in some cases, profoundly disabled, from fluoroquinolone antibiotics. This year, the FDA issued a warning that these drugs should not be used except as a last resort where other antibiotics have failed. Risks cited include permanent musculoskeletal, nerve and central nervous system (brain) damage, for which there is no cure. What I, and many others, suffer from is called Fluoroquinolone Associated Disability.

Up to July 2015, I was a woman with no significant diseases or health problems. Today, I am a 36-year-old woman who has filed for Social Security Disability because I was given what I thought was a run-of-the-mill medication.

I tell my story to spare others the pain I continue to endure, and to encourage medical researchers to seek a cure.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with http://www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Aaron’s Story – Cipro Toxicity

Aaron FQ Wall

I am finally ready to tell my story. On May 15th 2015 i was prescribed Cipro for a prostate infection. After the very first pill i had the worst insomnia i had ever experienced in my life. I used to think when you took medication the side effects were only temporary. How ignorant I was. I now also now know cipro is not a medicine, it is a toxic weapon of mass destruction that would probably be banned by the Geneva convention. The most sinister part of this poison is that for me the worst side effects came after the last dose. I began coming in to work late because i could not sleep well. One day i was eating my breakfast and 2 or 3 bites in i was literally sick and had no desire to finish it. My appetite was literally now non existant. I also had no thirst. Severe anxiety washed over me in waves. I got on the internet and started researching cipro side effects. What i read scared the hell out of me. This illness is degenerative and you will get worse for months or years before you get better IF you even get better at all. Thankfully I also found floxiehope and bought the fluoroquinolone toxity solution. I also read the Flox report cover to cover. I started suffering from severe chemical depression. The best way to describe chemical depression is “nothing you do brings you pleasure and you have no peace.” My heart began to race and palpatate. I literally thought i was dying. My wife was floxed at exactly the same time i was and was in a mental institution for attempting suicide. This is the first and hopefully only time my wife has ever attempted suicide. So other than help from my mother who is a saint and was very helpful. I was going through all of this alone. My son is nine years old, I hated for him to see me like this and I am sure it made for a bad summer for him. My legs hurt constantly. My joints were stiff and popped loudly. My mouth was constantly dry and i have braces. It is a very bad combination. I had not used wax on my braces since i first had them on but after cipro i had to wax them daily for months. My eyes were severely dry. My urine was and still is foamy because my kidneys are not recycling blood proteins like they should be. My skin was so dry it was peeling off in flakes like dandruff. I suffered sever tinnitus (constant loud ringing in my ears). My muscles twitched. I felt electrical shocks in my left shoulder blade. tingling in my lower back and finger tips. It always seemed worse when i was trying to fall asleep. I got a floater in each eye. I was seeing flashes of light and having blurry vision. I went to my eye doctor and he gave me that test where you look at a grid. The lines did not appear straight but were curved. This indicates optical nerve damage. I was refered to a specialist but never went since i figured it was just cipro damage and I did not think they could do a damn thing for me to fix it. I had brain fog so bad I literally wrote down every supplement i took and at what time and wrote down everything i ate and at what time. I had no appetite or thirst and a horrible memory so i had to force myself to eat every so often to survive. My muscles wasted away and i lost 30 lbs. in less than 2 months. After i urinated i had bladder leakage. I had sharp pains in my kidneys ( most likely cipro ripping holes in my nephrons on its way out. I could not stand up for any length of time without my constant leg and foot pain becoming more sever the longer i stood. I could not walk very long at all. I experienced what i have heard others call “wired but tired”. Wide awake yet exhausted mentally and physically. My hearing was hypersensitive and noises hurt my ears. My sense of smell was intensified. Women’s perfume would about choke me. I had a worsening of my existing acid reflux. Along with many other GI issues. I had tendonitis in my hands forearms and legs. I found Progressive Medical Center in Dunwoody Georgia and saw Dr. Malone who is awesome and knows about FQ toxicity. I recieved a Blood panel that revealed that my kidneys were working decent enough but my thyroid and adrenal glands were hit hard. My T3 was almost non existant. I received four Ozone UVB therapies. I would have had more but I did not really have the money and i also had to miss a day of work for each treatment. I am a department head for a small city and am glad i have that position. If my job was labor intensive i would not have been able to do it while going through my hyper-acute phase. I took a ton of different supplements the 2 that i felt an immediate improvement on were ASEA water and C60-OO. I took epsom salt baths very often. I read the recovery stories on floxiehope every day. I looked forward to my six month out point so i could evaluate myself and hoped i would not be severe. I have a water cooler and use Highland Mountain water. ( spring water) so i am not poisoning myself with flouridated water. I also use Tom’s toothpaste and Jason powersmile mouthwash all flouride free. I spent more time on the couch with my feet propped up than i ever have in my entire life. It seemed to reduce the constant pain in my legs. I watched a lot of Netflix. Six months came and I was thrilled at the results of my evaluation. With the exception of the floaters and foamy urine and im not sure about my adrenals or thyroid have not had another blood test yet, all of my other symptoms have improved or are completely gone. I was somewhere between mild and intermediate. It has been seven months now and the remaining symptoms are tolerable and i am hopeful that they will eventually be completely gone except for my floaters. floaters are permanent. I still suffer from foamy urine, a less reliable memory, minor tinnitus, minor and occasional foot pain. very minor and occasional neuropathy. more soreness than usual after excercise. No thirst. My appetite has returned but hunger feels different now. I just want to say thank you to everyone on this forum. Special thanks to Lisa Bloomquist and i would like to eventually tell my story on floxiehope. Special thanks to Bill Milligan. I related to your story thank you for sharing it.

** The story above is truthful, accurate and told to the best of the ability of the writer.  It is not intended as medical advice.  No person who submits their stories, nor the people associated with this site, diagnoses or treats any illness.  The story above should not be substituted for professionally provided medical advice.  Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site.

David’s Story – 15 Years of Being Floxed

David FQ Toxicity

I have also experienced devastating effects from taking Ciproxin. I was prescribed this drug for a suspected prostatitis in November 2000 .

I had a full health check before taking this drug and was in good health, in full time employment and taking regular exercise on a daily basis. I was 30 years old.

I was told I would need to take this drug long term 6 weeks at 2 x 500mg and 13 weeks at 1 x 500mg. The consultant also told me to take ibuprofen but I was unable to tolerate this painkiller as well as cipro.

Ciproxin did not help with my water works problem but it has left me with a number of other complaints. I have listed a few below

  • Peripheral Neuropathy – Moderately severe
  • Ulcerative colitis – with marked inflammation
  • Erosive Duodenitis with ulceration
  • Hiatus hernia
  • Thyroid problems
  • Joint pain
  • Ruptured Tendons
  • Ringing in the ears
  • Jauendice
  • Oedema
  • Panic Attacks
  • Eye/vision disturbances
  • Headaches
  • Fluctuating blood-sugar levels

I lost quite a lot of weight. My co ordination and concentration was very poor I stumbled on a daily basis and was only able to leave the house in a wheelchair.
My life was devastated and had become so restricted due to the side effects.

I had to stop work as I became so ill and wheelchair bound I was unable to look after my self at this point my partner was having to take care of me.

Although my symptoms started whilst taking ciproxin The Sheffield National Health Service turn a blind eye to this and told me cipro was a safe antibiotic.

The last 15 years have been very difficult my relationship broke down because of the severe impact these side effects was having on my quality of life I was unable to go on holidays or out for a meal.

I have tried to stay strong and with determination I managed to get out of the wheelchair and on to crutches and in 2010 I was able to walk short distances independently.

My diet is to eat plain bland food like boiled potatoes, carrots, cauliflower and poached cod. I take a liquid multivitamin as this is easy for me to digest.

My recovery started when I was referred to see a rheumatologists. I was tested for autoimmune diseases as my condition indicated that I could be suffering from one of these. All test came back clear but showed a number of vitamin deficiencies I was commenced on b12 injections and started to take a liquid multivitamin. Nerve conduction studies showed a Moderately severe nerve damage and a bone scan showed osteoporosis further blood test ruled out pernicious anaemia and there was no metabolic bone disorders causing the osteoporosis.

 

Lynda’s Story – Ciprofloxacin Poisoning

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On Friday, March 13, 2015, I went to a walk-in clinic as I was experiencing muscular soreness in my lower back, buttocks, and thighs. I was accustomed to dancing at an advanced level in Zumba classes as well as in other dance classes for about 25 years (two hours per day). The physician assistant had me take a urine test; he then came racing in the room saying more than once, “This is the worst infection I have ever seen!” He gave me a prescription for ciprofloxacin, 500mg x twice daily for five days. Understand, I didn’t present with a single symptom of a bladder infection, I wasn’t ill, I am 72 and weigh 100 pounds. Furthermore, he called me Monday to tell me that the culture had come back negative and that I never had an infection in the first place. I foolishly didn’t read about the drug before taking it and begin to experience symptoms almost immediately – so much so that I stopped the cipro after taking 5 of the 10 pills. The only other antibiotic I ever had a reaction to was clindamycin taken 22 years earlier; it took 5 months to get rid of clostridia difficil – vancomycin and cholestyramine were repeatedly administered. These are my symptoms from the cipro: ear ringing, eyes burning, muscle pain and weakness, muscle twitches, burning calf muscles, forearm pain, upper back pain, thumb, wrist, ankle and Achilles tendonitis, popping and cracking joints, widespread body pain, anxiety attacks, insomnia and extreme fatigue. I haven’t exercised at all since taking the cipro for fear of rupturing a tendon. I have seen many specialists, but to no avail. Needless to say, this is the worst experience of my life; I am terrified of what is to come. Each day, I truly feel like I have been poisoned – because in actuality, I have. There have been just a few better days during the past six and a half weeks that I have been suffering. As horrific as this has been (I have even had to pay drivers to take me to my medical appointments), I sense that my body is desperately trying to overcome these adverse events. If it turns out that I make a slow but steady recovery without any significant relapses, it may be that it was not ingesting fluoroquinolones in the meat supply for 29 years that was the main factor in my recovery. On the other hand, if the converse is true, it would mean that not being exposed to fluoroquinolones in meat, made no difference at all in my recovery. At the time of being prescribed cipro, I was 100% healthy and feeling wonderful; I can barely get through the day now and unlike my former self, am completely inactive, virtually housebound. Nonetheless, I remain hopeful and have been very kind, understanding, and forgiving of the physician assistant who prescribed cipro to me.

Rob’s Story – Ciprofloxacin Devastation

Rob FQWall

I write this with great difficulty and almost at the point of despair. I have never felt as unutterably ill as I am feeling at this moment. I am losing sensation in my arms and I am having difficult gripping objects. My legs feel disconnected from my control and I walk like a Thunderbird puppet. Every part of my body is screaming at me as waves of electrical shudders start in my brain and travel outwards. I have terrible head pressure with loud tinnitus. It feels like a high pressure hose has been inserted into the centre of my brain and that my consciousness is being squeezed to a narrow point. The brain fog is painful and impenetrable and I experience no respite; only unremitting Groundhog Day hell with one difference, each day is worse than the one before. I am not exaggerating. I cannot express in words adequately what I have experienced during the last three and a half years. Please bear with me.

In March of 2009 I experienced some pelvic pain. Before this point, I had never had any pain worth mentioning. I had never had muscle or joint pain of any description, I could swim and cycle, and more importantly, I had a sharp and clear mind that was able to teach Chemistry and I was in a plum job working part-time in a local grammar school. Such times are distant memories. I saw a Urologist who diagnosed Non-Bacterial Prostatitis and he prescribed 6-week course of CIPROFLAXACIN. I took the first tablet and two hours later my life changed completely. I experienced electrical brain zaps and other indescribable head sensations that stopped me in my tracks. I was at the kitchen sink thinking I was having a fit. I knew something was wrong. Dreadfully wrong. I rang the GP Out-Of-Hours service who “advised” me to continue with the course of tablets. Foolishly I did. I should have trusted my own judgment but at that point, I still had faith in the medical profession. After all, I was a scientist! I returned to the sofa where I stayed virtually for two weeks. Brain fog descended which I cannot adequately describe. It was and still is like trying to think through an electrical mist and that somehow one is not able to think properly. Then came an awareness that something was going wrong throughout the whole body. I felt as if I had been systemically poisoned with strange pains developing everywhere. I went to see my GP who suggested that I discontinue the treatment. I did so, but of course, the damage had been done.

From then on, I rapidly descended into a hell from which I am trying to escape. Then began a sequence of visits to the A&E department. Each time I was informed that their checks revealed no abnormalities. LETHARGY AND STRESS WAS A POSSIBLE DIAGNOSIS. Take a valium!

I must be going mad.

In 2010, I underwent bilateral endarterectomise and in December 2010 I suffered a stroke – infarct in the right frontal lobe and haemorrhage in the right parietal lobe. A stroke brings with it its own physical and emotional challenges. Whilst in hospital I was given Zopiclone to help me to sleep. On discharge, it was added to my general prescription list and I took it for a year! My Neurologist, on discovering this was extremely concerned. He told me to stop taking it as it was affecting my mind and mood. I subsequently discovered that Z drugs are for very short-term treatment only. I discontinued and about 10 days I started to experience withdrawal symptoms. I was prescribed Diazepam. No withdrawal protocol was provided. After four months, I demanded that the GP get me off this stuff. I cannot believe the complacency and indifference displayed by whose vocation it is to care for the ill. I slowly withdrew, but the toll the benzo was having on my already cipro-damaged and sensitised body was becoming too much. I went cold turkey from 3mg a day on the 7th of December 2012. I am now going through withdrawal nightmare!

My damaged neuromuscular and CNS is exquisitely hyperexcited. I have insomnia of industrial proportions. I continue to have every symptom described by others who have been affected by fluoroquinolone toxicity. I feel medically abandoned, isolated, vulnerable and frightened. I don’t recognise any part of my body or personality. I honestly don’t recognise my FB profile picture. I have lost 15 years of memories. I know I used to teach but I cannot recall my subject. I have been transformed from a reasonably healthy and fit man to a mental and physical wreck.

Cipro has cost me a relationship, my livelihood, my sanity and my health, unwittingly aided by a medical profession whose attitude to adverse drug effects is one of complacency and indifference Ignorance can be rectified, wilful ignorance is abuse!

My only sin was to have a misplaced faith in doctors.

It has been a descent into iatrogenic hell. A hell that even Dante could not have conceived!

To all who read this – THINK LONG AND HARD BEFORE TAKING FLUOROQUINOLONES!

The help and support from family and friends is what sustains me. Thank you!

Tamara’s Story – Ciprofloxacin Effects

Tamara FQwall

I was floxed by Ciprofloxacin February 4th of this year. I took two 500 mg doses of it, and began to feel like my leg was swelling, so I discontinued use. Two days later I was in the emergency room with what they thought was a blood clot. All tests came back negative. At this point any doctors I spoke to didn’t believe it was the cipro and I even had a nurse laugh at the suggestion of it.

It was then that I decided to look into it online and it opened up an entirely new, and scary world for me. Over the first week the pain began. I was in excruciating pain, it felt like my leg was being ripped apart. I was diagnosed with “tendon issues”, maybe tendonitis from my doctor and given percocet for pain and no other options.

I began a strict eating plan and “detox” schedule. I used schizandra tincture and detox tea, as well as eating a mostly vegan, high veggie and juicing diet. I went through many “detox symptom” days. I can’t say this has helped my reaction to be less severe than it would have been, but it’s possible. I also have been able to spend the entire 7 weeks post floxing at rest. This also could add to a quicker turn around.

It’s been a long seven weeks. My main symptoms have been tendonitis from hip to toes in my right leg. I’ve also experienced insomnia, tremors, anxiety/panic attacks, muscle atrophy from not using my leg, bouts of nausea , headaches, lethargy, burning/shooting pains throughout my body.

I am a dancer, I have been for 25 years. I competed, I ran a very successful agency for performers (including performing myself) for the last 4 years. I sold my portion of my company to move back out into BC, Canada, in nature and go back to teaching dance. This has completely stolen that from me…let alone being able to do most anything most days.

I have been seeing a naturopath who has been doing myofascial release on my leg to free up tightness. (I spent the first 5 weeks with my leg in a permanent semi bent position). We have also been doing Myer’s Cocktail and Glutathione IV therapy.

As of this week, I finally have some mobility in my leg, but the anxiety and panic attacks have worsened. I know it’s been suggested that the fluoroquinolone is stored in the tissues and I figure the myofascial release has been releasing it into other parts of my body.

The worst part of this for me is facing my greatest fear of not being able to do what I love: dance.

I have hope that i will get better, and maybe sharing what I have done will help others to gain some relief.

Lastly, I hope this serves as a warning to anyone who is thinking of taking the fluoroquinolone class of antibiotics. It’s just not worth it!

The picture I have attached is of me performing last summer in front of 14,000 people…now I can’t even walk. What a shame.

Eric’s Story – Cipro Poisoning

Eric FQwall

02/10/13

So, if I had a time machine…I would travel only once into the past. I would not revisit my youth. I would not undo any relationships, or resolve any issues of unrequited love. I would not try to right many wrongs, or turn my failures into successes. I would not say goodbye to those who were lost, that I hope to one day see again.

No…what I would do is…set that motherf***ing dial, for the exact moment that those drug pushing, poison peddling, whore-mongering, non-hippocratic-oath-observing, big pharma ass kissing, slow to learn and quick to earn, pathetically useless bastards, when they first asked me to take an FQ for my health and physiological betterment…and simply say, “No thanks… BITCH!!” “Now ask me again…GO AHEAD ASK ME AGAIN!! I DARE YOU – I DOUBLE FUC***ING DARE YOU!!!”

Ah yes, if WE only had a time machine…of this I am most certain. Continue reading

Daniel’s Story – Ciprofloxacin Side-Effects

Daniel FQWall

Daniel Sheridan 01/18/13
My name is Daniel L. Sheridan, I am now 58 yrs. of age. I was prescribed Ciprofloxacin for a total of 37 days. I have had multiple non-traumatic tendon ruptures. My knee, both arms, tendons in my lower back. Because of the lack of support from my ruptured back tendons it has caused accelerated spine degeneration. I had 1 back surgery 2 yrs. ago. Now in 1mth., another back fusion surgery. Cipro has also weakened the tendons in my eyes causing double vision. My vision was corrected with Prisim lenses. Doctors have determined that Ciprofloxacin was the cause. I am now 100% disabled and on Social Security Disability. Not only do I still have all of the ruptured tendons I have tendenosis affecting my back, chest, and shoulders and arms. After back surgery, I am going to have my shoulders repaired. Cipro was prescribed for a sinus infection.

On 9/13/14 Daniel added that he had been diagnosed with peripheral neuropathy.

Victoria’s Story – Cipro Adverse Effects

Victoria FQWall

My name is Victoria Morency and I am disabled and on Social Security Disability since 2009. I have been having peripheral neuropathy (PN) since 2002. Some of my previous professional positions were as follows:

2006-2007 Licensed Real Estate Salesperson and Office Manager for Windermere Real Estate
2000-2005 IT Manager and Marketing Manager for Honolulu Symphony
1996-1999 IT Manager and Membership Coordinator for Hawaii Theatre
1992-1995 Computer Consultant and Classroom Instructor for Software Plus
1985-1992 Office Manager, Legal Assistant for Robert E. Warner, Esq.
1979-1984 Legal Assistant for Davis, Playdon & Gerson, Attorneys at Law, A Law Corporation
1980 Licensed real estate salesperson (License # RS-25608 and RS-68891)

Summary:
I went to North Kohala Hospital on December 2, 2009 with severe abdominal pain. I was diagnosed with an UTI (urinary tract infection) and was treated for such. I was given Cipro and Levaquin to treat said UTI. Dr. Goldberg treated me and released me from the Hospital December 2, 2009 at 6:31 PM. I WAS GIVEN CIPRO AS AN HOME/NIGHT PACK WITH NO INSTRUCTIONS (INFORMATION SHEET) THE Cipro should not be used for the first line of treatment for a UTI if that is what I had (PDR citation)?

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Betsy’s Story – Ciprofloxacin Poisoning

BetsyFQwall

My name is Elizabeth (Betsy) Hamill. I was an active healthy mother of 3 who exercised regularly. Then I took 4 pills of Ciprofloxacin in Feb. of 2007 for sinusitis. I had a severe reaction. I had pressure in my head, couldn’t walk without holding onto something, was disoriented, and was extremely tired but couldn’t sleep. I thought that once I stopped taking the medication that made me sick I’d be fine as long as I didn’t take it again. I was wrong.

I felt better after I stopped taking Cipro but then I began having chills so bad I couldn’t get warm. I went skiing and had much less endurance. I developed sore knees and quit jogging. I was losing pilates holds I’d done for years. As time went on the weakness got worse and new symptoms developed. I had strange burnt orange colored urine which I later learned is a sign of rhabdomyolisis and would explain why I was losing muscular strength. I developed right foot drop, right leg weakness, and my eyes became highly sensitive to sunlight. The next winter I could barely ski 3 hours before my legs would shake so badly I had to stop. My skin aged seemingly overnight and I developed IBS and other digestive track issues. I had trouble holding a glass or utensils, had muscle twitches, difficulty sleeping, vertigo, extreme pain/temperature sensitivity, tinnitus, blurred/smokey vision, memory loss, overwhelming fatigue, difficulty speaking, random shooting pains, cramping/muscle spasms, and sensations of chills or vibrations running up and down my legs. It was all I could do to get through a day at work. The cold caused me to stiffen up severely and I developed tremors that would come and go and I had no idea why. Continue reading

Ariana’s Story – Ciprofloxacin Poisoning

ArianaFQwallpic

My name is Ariana. Writing this story is difficult for me. I never expected a medicine to affect my life the way this one has.

One month ago today, on april 3rd, I took ciprofloxacilin for a suspected kidney infection (it wasn’t a kidney infection). My doctor wrote me the prescription and I went to fill it with no problem. It was 500mg tablets that I was to take twice a day for 10 days. The pharmacist informed me that I shouldn’t exercise while taking it. That was fine with me. I didn’t exercise much anyway.

I went home and took the first pill and took a nap. I woke up feeling dizzy with a rapid heartbeat. My stomach was fluttering so I took some maalox. I thought that I was just hungry since I hadn’t eaten all day. I ate a bit of rice because I didn’t think I would be able to keep anything else down. After that I went back to sleep, my boyfriend woke me up to take my second pill. I took that and went back to bed. When I woke up the next morning I was feeling better, the pain in my side was gone. I took my third pill and got some breakfast. After eating I felt like I was going to faint, so I went to lay down. The package insert for the ciprofloxacilin was on my night stand so I figured that it was as good a time as any to actually read it. Reading it made me very scared, I couldn’t believe that my doctor would give me a medicine that could cause tendon rupture, blindness, or death! I hopped on my laptop and decided to do some googling, I couldn’t believe that the side effects would be that bad. I was shocked to find all the horrible reviews. I called my doctor right away and told him that I refused to take anymore of this drug and that I wanted something else. He prescribed bactrim. I went and picked it up and prayed that I wouldn’t have any side effects since I’d only taken 3 pills. Boy was I wrong…

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Lisa’s Story – Ciprofloxacin Side-Effects

Lisa wall of pain

Lisa’s story –

I took 500 milligrams of Cipro/ciprofloxacin twice a day for 3.5 days in 2009, and again in 2011, to treat urinary tract infections.  In 2009, I did not react badly at all and was able to continue living my life as a normal 29-30 year old.  When I took Cipro/ciprofloxacin again in 2011, I experienced a severe adverse reaction to the drug.

Before I reacted badly to Cipro/ciprofloxacin, I was a very active, healthy, happy 32 year old.  I enjoyed hiking, crossfit, reading, dating, dancing, traveling, etc.  I was so fit that I had hiked the entire 500 mile Colorado Trail in the summer of 2010.  I was “healthy as a horse” as they say and never needed to go to the doctor – except to treat the occasional urinary tract infection that I got about once every 2 years.

After I took Cipro/ciprofloxacin, I experienced the following adverse effects:

  • Weakness in my legs.  I could barely walk.  The steps that I could take took a tremendous amount of effort and energy.  I couldn’t stand for more than a minute.
  • Tightness of the tendons in my legs.  I had inflammation, and possibly tears, in most of the tendons in my legs and feet.  My hips, knees and ankles, to simplify things, didn’t work right.
  • Loss of use of muscles / loss of strength.  My muscles, especially the muscles in my legs, wouldn’t move like they used to.  All of my movements were slow and deliberate.

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