Tammie’s Story of Cipro Poisoning

This is my Cipro story.

Prior to being floxed I was active all of my life. In my mid to late 30’s I worked on a Scuba Dive Boat. I was a water aerobics instructor, and a swim coach too. I played tennis regularly during my lunch breaks. In my mid 40’s, at the time I was floxed I was an avid Mountain Biker and hiker. I also walked or rode my bike to the gym 4-5 times every week. I walked everywhere because I lived in Baltimore where you can walk to get everything you need. In July 2011 at 45 years old, I was fit, active and never had any major physical ailments. I was in perfect health.

On July 13, 2011 I was prescribed 250mg of Ciprofloxacin to treat a “possible” UTI. (BTW: My UTI test came up negative). I took three 250mg doses between July 13th and 14th. After only 3 doses, I quickly developed pain in my feet and a tightness in my lower legs and heels. Since I had been to the gym doing calf-raises that day, I thought my muscles were tight due to exercise. Consequently I took a 4th dose not realizing it was the Cipro causing the pain in my feet and legs. After looking up the side effects I never took another pill. I was horrified!! Suddently my feet were in constant, severe pain! I also felt extremely tired everyday. My anxiety level heightened. I just didn’t feel well anymore. I didn’t feel like myself. My left foot was initially the worst. It was in severe pain even when I was sitting with it elevated. I would get shocks of pain out of the blue. All of my joints were affected. My elbows were extremely bad. I am still unable to do things I once took for granted. I was going to the gym and riding my mountain bike regularly before taking Ciprofloxacin. I walked EVERYWHERE.

When I was poisoned by Cipro, I could barely walk without being in constant pain. My heels and ankles would painfully pop and click every time I used the stairs. I couldn’t stand for more than 5 minutes without experiencing extreme pain. Think about it! I couldn’t stand to wash dishes, cook, or to even brush my teeth!! I could not stand in the shower with my back to the water because the slight slope of the tub floor would pull at the backs of my heels and cause me great pain. I couldn’t stand in the shower long enough to shave my legs. I went from walking everywhere to not being able to walk around inside my house without being in extreme pain! I used to walk to the grocery store and crarry my groceries home. I walked the 2+ miles one way to my gym 4-5 days a week too! Cipro took this away from me.

I was not informed of these serious side effects prior to taking this medication. Of course I got the little paper they always give you. I quickly looked it over and read that most of the adverse reactions occur in people over 60. I was only 45 years old when I took it. I was fit and in perfect health. I had never had an allergic reaction to any drug prior to taking Cipro. I assumed Ciprofloxacin was just like any other antibiotic I have taken prior. I assumed it was SAFE to take. I trusted the FDA, my doctor and pharmacist.

Cipro is not a safe drug. I want to know why doctors are still prescribing this POISON to someone like me who is HEALTHY?! Cipro and other drugs like it should be last resort drugs for someone who is dying! They should not be given to healthy people like me. Cipro changed my life forever. I have been in pain every single day after being poisoned by it.

I am doing better today than I was in 2011. But everyday is a another day to fight against the pain in my feet and joints. My skin has suffered too. I have severe psoriasis on my arms and legs. I never had it like this prior to taking this drug. I believe this is also a result of the Cipro poisoning.

I sent emails to Siantz and Kirk lawyers in 2011 when this first happened. They declined to help because I was not officially diagnosed wtih peripheral neuropathy. I also sent a formal complaint to the FDA and to Bayer. I never heard back from them at all. I stopped trying to pursue this because I was under the impression that I would actually HEAL!! I never expected I would still be fighting this over 8 years later. The realization that the poisoning I got from Cipro is going to be a permanent thing is a tough pill to swallow. Trust me… no pun intended. I have been fooling myself all this time. I thought this would go away. Just like any other illness. 😦 I thought my body would eventually heal itself. Sadly, this just won’t quit. Every time I feel like I am getting better, I get another painful setback.

I keep letting it go because in my mind I will not allow mysellf to accept that Cipro has caused permanent damge to my body. I decided I can endure whatever pain I have, etc. I can live with it. It will go away, etc. I dismissed it over and over again. I even tried to talk myself out of it thinking I am overweight, getting older, etc. But the fact that I cannot stand without being in pain. And the fact that my elbows get so sore that I cannot set them on my arm chair is not due to being overweight. It is not due to old age. It is not normal by any means. For over 6 years I could not even pull my bed covers up without causing extreme pain in my elbows. I can do it now. However, my elbows and wrists are always in pain. Not as severe as they once were. Yet still the pain is always with me. And my feet?! Well hell… they are the worst of the worst! That pain is severe and is unending. We cannot avoid using our feet everyday. The pain I have endured and continue to endure in my feet is indescribable.

For the longest time, I rarely talked about this because I would think to myself.. “why bother?” Who the hell wants to hear it? Not me. And I don’t want to be one of those people who bores others or drives them away with complaints about all that ails her. I refuse to be that person. I warn friends and family about the dangers of Fluoroquinolones through my facebook page. From time to time I post a warning in hopes it will help someone to avoid the pain I have endured. I tell people about it person to person too. Some doctors are even FINALLY coming around to understand how bad Cipro damage is. In the beginning every single doctor dismissed me. They would not believe Cipro did the damage it did to me.

Most people would never know, nor even conceive of how much pain I am in everyday. I guess we all deal with pain everyday in one way or another. Sadly, my physical pain is not due to natural aging. Cipro stopped me in my tracks at 45. And now at 54 I am still dealing with it.

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The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

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Erin’s Story – Disability from Ciprofloxacin

Erin’s story was originally published on http://pointsnorthatlanta.com/important-questions-to-ask-your-pharmacist/. Thank you for sharing your story, Erin! 

As I left the gastroenterologist’s office in late July 2015, I did so with hope. I’d been experiencing unexplained nausea and bloating for a few weeks and, while hospital test results showed normal white blood cell counts and I had no fever, I was sent home with antibiotics as a ‘ just in case.’

I’d be better in no time; I just knew it.

The following day, I experienced numbness in my hands and feet, but was encouraged to continue my course. I did so, but the following weeks saw multiple trips to the emergency room, presenting with increased and body-wide symptoms.

No doctor could figure out what was wrong. The symptoms continued to pile on, and I was baffled. Neither I nor my doctors made the connection to the ciprofloxacin antibiotic I’d been given.

I was hospitalized by mid-August, given more antibiotics, iron and steroids.

I have been disabled ever since.

Prior to taking the ciprofloxacin, I was a 34-year-old newlywed and world traveler whose career was going so well, I decided to strike out on my own. But that bout of nausea — which was later resolved by a simple proton pump inhibitor — and that fateful prescription for antibiotics set me on a course of 24/7, 365 pain that has not resolved.

The numbness became excruciating, burning nerve pain in my hands and feet. I spent all day in bed, covered in ice packs. Overnight, my previously perfect vision became light sensitive and blurry, and I developed a rare condition called visual snow. Head pressure, ear pain and popping became a ceaseless tinnitus. I was suddenly unable to sleep. At all. Ever.

At the same time, my blood pressure became unpredictable. My heart rate and body temperature vacillated wildly. When I stood, my heart rate would spike, and I would feel dizzy or faint.

I saw countless specialists, but none could help me. Most did not believe what was happening to me. I didn’t want to believe it either, but the evidence was all there: dozens of studies detailing the potentially permanent, debilitating side effects of Cipro and other antibiotics in the fluoroquinolone class. But I, like so many others, was never warned.

In March 2016, the body-wide joint, tendon and bone pain began. Suddenly, it became painful to walk, type or lift even light objects. My skin, eyes, nose and mouth became impossibly dry. My hormone levels were all over the place. My hair fell out by the handful. I was horrified. What kind of medication continues to affect you six months after you take it?

The answer: fluoroquinolone antibiotics.

In November 2015, the FDA held hearings with people like me who have become permanently affected, and, in some cases, profoundly disabled, from fluoroquinolone antibiotics. This year, the FDA issued a warning that these drugs should not be used except as a last resort where other antibiotics have failed. Risks cited include permanent musculoskeletal, nerve and central nervous system (brain) damage, for which there is no cure. What I, and many others, suffer from is called Fluoroquinolone Associated Disability.

Up to July 2015, I was a woman with no significant diseases or health problems. Today, I am a 36-year-old woman who has filed for Social Security Disability because I was given what I thought was a run-of-the-mill medication.

I tell my story to spare others the pain I continue to endure, and to encourage medical researchers to seek a cure.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with http://www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.