Tikvah’s Story – Ciprofloxacin Toxicity

Feb. 1, 2014 I was taken to the ER for acute pancreatitis which was caused from my gallbladder’s acute inflammation.  They kept me in the hospital for 4 days, no food no water, to get the pancreatitis taken care of so they could get the GB taken out after that.  I was pumped full of 3 bags of ciprofloxicin which was toxic to my body.

In the course of just a little over 2 yrs. now [i.e. Mar. 2016]. I have gone from not being able to dress myself, nor get out of bed, nor turn over in bed by myself to being able to get up o/o bed by myself in the first 4 mos. after the surgery to then not being able to walk without help, or get up and down in or out of a chair or a sitting position without excruciating pains throughout my body.  I could hardly take care of my personal hygiene in the bathroom for the first 6 or 7 mos.

Then I graduated to more easily being able to dress myself, but still with struggles and to walking with a walker.  Still needing help getting up and down, in and out of sitting/laying positions.

Have never been able to sleep well for the past 2yrs.  And it’s gotten worse.  I also have tendonitis in both of my heels, left heel is worse, and it generates all of the way back up my leg.  My feet hurt terribly by the end of the day, each day and I can hardly walk.  I can not go up/down stairs easily at all.  I need something to hold on to, or someone, and I must take ONE step at a time with both feet on one step.

I went from using a walker for 1/2 a year to using a walking cane for a year.  Now Nov. 2015 I stopped using my walker, and can walk on my own, although I must take is slowly.

I am no longer able to uphold my duties as a wife sexually or the household duties.  I can go to the store and do some shopping but by the time I get home, I am in excruciating pain and must rest a complete 24 hours or more.

I have pains throughout my body that, in my opinion, mimic fibromyalgia and MS.  The pains in my muscles and joints are in my shoulders, elbows, wrists, hands and fingers, my lower and mid section of my back on the left side, my hips, knees, calves, ankles and feet.

My eyesight has been deteriorating and I have had 4 teeth fall out.  I have ALWAYS had a good healthy set of ALL of my teeth prior to this. I have also developed tinnitus.  I have also gained weight since I have been unable to perform daily activities or exercise.

I have bouts of depression from not being able to do the normal tasks of daily life.  I have to stay away from certain foods now, such as any meats wherein the animals have been given antibiotics as they tend to increase flare ups of inflammation and pain.

I supplement daily now with magnesium, D3, calcium, MSM, iron, and I have recently added in iodine weekly.

I also have a topical magnesium spray that I spray on my tendons in my heels that helps.  I can tell if I miss my doses of magnesium as the pain sets in.

So all in all then, in just a little over 2 yrs. I have gone from not being able to walk at all to using a walker, then a cane, now nothing.  But I still can not go up and down stairs alone, and it is still painful and slow moving to walk. and I have some symptoms that seem to be permanent.  The tendonitis, and the symptoms that seem to mimic fibryomyalgia and MS.  The tinnitus, the weight gain, and the loosened teeth.

I hope that my story, my input, and others will help to remedy the problems and get these type drugs off of the market for every day type infections in adults and children and only be used for what they are intended for and from what I understand that would be something that is life threatening and extremely serious in the family of a deadly plague.

Fast forward now ~ update January 18, 2018, the residual affects that remain are the problems w/ the tendons, especially in my heels and that go up to the hips, the sciatica, what mimics MS and fibromyalgia, the daily depletion of magnesium and vit. D from the body, among other minerals, the decay in my eyesight, and I still have problems with walking up and down stairs or for long periods of time.

I can go to the grocery store and shop, but by the time I get home, I can barely walk and get the groceries up the stairs and in the house and put up.  I am able to walk now without my cane, but in the winter, IF I have to go out, I take it along with me so I don’t slip and fall and I hold on to someones arm as I walk for safety.

I can dress myself now but I can’t get in/out of a tub by myself very easily at all, so opt for showers rather than sit baths, which I miss so much.  My hair has thinned.  I lost a total of 6 teeth in the back, but am taking extra good care of them and hoping that the extra care will help thwart the loss of any more.  Same with my eyes.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Sierra’s Story – Cipro Poisoning

Pic - Sierra -

This is my story of fluoroquinolone toxicity:

In July 2014, I was prescribed a ten day course Cipro for a urinary tract infection. I didn’t think much of it since I had taken this class of drugs in the past with no reaction. This time was different than before as I experienced a serious adverse reaction. I took Cipro for 7.5 days, and then discontinued taking the medication since my symptoms were becoming progressively worse.

The pain in my legs was so bad, I could barely walk. It was a pain that is hard to describe, but it felt like I was very stiff, and the pain was spreading. The stiffness in my legs turned to numbness, and my legs would tingle when touched. I felt like my legs were dying. I also had headaches, nausea, dizziness, sensitivity to light and pain in both Achilles. The doctors dismissed my issues and I was released and sent home with my parents. For the next 48 days I wasn’t sure if I was going to live. Within the first 24 hrs of leaving the hospital the numbness and tingling I felt begin to spread up to my legs to my hips, and then to my back and eventually spreading over my entire body. I experienced excruciating body-wide tendonitis and nerve pain – in my toes, feet, ankles, shooting up calves, lower back, ears, wrists, elbows, and hands. Everything felt like it was ripping and pulling. My entire body was swollen and stiff; my toes were so swollen that they curved downwards and would not return to a resting position. I was in severe pain, more pain than I could imagine was possible. Just to sit up in bed was difficult and agonizing. I was so weak I couldn’t lift a normal cup without feeling a strain on my wrist. On top of the pain I was dizzy, nauseated, light headed, feverish, and could feel every beat of my racing heart. I had burning sensations that felt as if a baseball on fire had landed on my legs, random twitching, extreme sensitivity to light (my family had to black out my windows), new floaters in my eyes, my ears were constantly ringing, my body would crack whenever I moved, and other symptoms. I lay in bed and cried as my body was unbearable to live in. I wasn’t even sure that I could make it. The only minimal relief I would get was when my family would lightly rub my body where I was hurting or just hold the area. My whole body was wrapped in ace bandages.

During these initial few months, my family and I did everything possible to detox my body. I went on an all organic diet and only ate food that decreased inflammation. I would also do contrast bathing, which was recommended by a podiatrist, to increase the blood flow in my tendons and ligaments.

In September 2014, two months after my ordeal began; the pain finally began to decrease. However, I would still experience random pains daily, including constant Achilles stiffness, and intractable exhaustion that made life difficult. The pain decreased enough that I thought I was going to be ok. I could live with the pain I was in.

For a few weeks I was actually able to see my friends, go to the store, and get a job. I was in the middle of a career transition when I got sick, and I had just received my Real Estate License. After starting my new job I had a relapse and went backwards. The pain increased and the fatigue became debilitating.

What I experienced is not normal fatigue. My fatigue feels like the energy is sucked right out of my body. I didn’t even know what fatigue was until this happened. I couldn’t even take a shower and blow-dry my hair without taking a nap in between. The daily low grade fevers, nausea, dizziness, exhaustion, weakness, and pains have left me totally disabled. I have not had a normal life for the past year. My mother has to be my full-time care taker. I am unable to cook for myself, go grocery shopping, drive to the doctors, do laundry, clean the house, or any normal activities. I used to love going to dinner with my friends, shopping, walking and hiking outdoors, working out, boating with my family; but Cipro has left me housebound. Without a full-time care-taker I would not be able to survive since I am unable to do the necessities to survive on my own.

My life consists of going to doctors, and trying to find something that will make me feel better. The Mayo Clinic diagnosed me with Chronic Fatigue Syndrome (recently renamed to Systematic Exertion Intolerance Disease), Fibromyalgia and Central Sensitization Syndrome. The Mayo Clinic had nothing that could assist me, and they suggested that I look into alternative medical treatments. I have tried all alternative medicine to get better including: acupuncture, infrared saunas, hyperbaric oxygen chambers, energy healing, neural therapy, electromagnetic beds, essential oils, a plethora of vitamins, and IV therapy including IV vitamins, IV ozone, IV H2O2. I have spent thousands of dollars with the hope of recovering from Cipro toxicity, but have not seen much relief at this point. The only items that I have noticed help my symptoms are IV therapies. All I can do is warn everyone I know about the dangers of Fluoroquinolone Antibiotics. Please do not take these drugs unless it is a last resort. Inform yourself, read the side effects, and ask for safer medications.

Nick’s Story – Levaquin Poisoning

Nick FQWall
Hello. My name is Nick Santino. I live in the NYC/Long Island area. I am 29 years old. I feel like I am 100 years old. My life was normal and I was a functional person prior to taking Levaquin in October of 2011. I had environmental allergies and I would get headaches and sinus infections from time to time but other than that I was normal. I had taken must lower doses of Levaquin in the past which could explain why I was getting the pressure headaches and at one time I had problems with focusing my vision. After taking 750mg of Levaquin for 14 days for a sinus infection I developed severe attacks of vertigo that sent me to the hospital. This occurred a few days after finishing the Levaquin treatment. During those immediate days following the last pill I didn’t feel like myself. I was weak and just felt weird. My allergist was the one who prescribed the Levaquin. It was obviously an overdose. I do not know if I should sue him. I have been sick for 7 months now. Over these past 7 months I have been getting worse. My most severe symptoms are: loss of balance, constantly dizzy (especially when turning my head), extreme fatigue, blurry/double vision, pains in my right arm hand leg and foot and hyperacusis. It is extremely difficult to do anything. I am basically disabled. Even thinking is hard. I drag myself to work every day. I do not know how much longer I can do it. I walk with a cane but it just helps me drag myself along. I have been to many many conventional doctors who have done many tests. No one knows what to do. I have been told I have fibromyalgia, ataxia, autoimmune diseases, Candida and other things. I should also mention that I was given a round of Cipro back in February of 2011 for an intestinal infection from eating a bad shrimp salad from a NYC salad place.

My finance left me in April. She didn’t believe I was sick. She thought I was making up the whole thing just not to get married. She also became very selfish and said she had to leave and think of herself. So I have lost the love of my life, my independence, had to drop out of my masters degree program and my life in general. Now my job is on the line. I do not know if I should go on disability or sue the doctor. I am searching for something anything that can relieve my disabling symptoms. Has anyone been successful with alternative treatments for loss of balance, dizziness, chronic fatigue, hearing sensitivities and vision problems? Glutathione? Ozone? Hydrogen peroxide? Diet? Supplements? Hyperbaric chamber? It seems like I have developed autoimmune diseases. Does any of this get better with time? Will I ever get my life back? I have been seeing an alternative doctor but all she has given me are some injections, Klonopin, Diflucan and supplements and told me to stay away from gluten, sugar and dairy. I know people have said to stay away from soy and meat with antibiotics in it. So what do you eat? I am sick of people saying what not to eat. So what do you eat? Just vegetables? I have lost almost 30lbs since getting floxed. I am so weak and frail. I made another appointment with another alternative dr who has more experience. Maybe he can help me. As I said my symptoms are increasing in intensity.
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Fran’s Story – Levaquin and Fibromyalgia

Fran FQwall

I took Levaquin for an sinus infection that would not go away and I had fluid in my ear. I had a terrible amount of increased pain in my Achilles tendon that was bothering me. Having fibromyalgia, pain is always a problem, but Levaquin made it worse. It took awhile to get out of my system. I was fortunate, and I am starting to feel better. I had horrible stomach pain while taking this drug also.

I made sure all of my doctors knew how terrible these drugs are, and patients with fibromyalgia should never be given these drugs. I was really upset at myself for not researching this drug before I took it. From now on I read about the drug before filling the prescription.

Karen’s Story – Levaquin Side-Effects

Karen FQwall

Karen’s story: I was given Levaquin in an IV for a back procedure on December 9, followed up with 750 MG Levaquin for 5 days. By the second day, my right calf hurt and by the 4th day, I could no longer walk. The pain management PA told me it was fibromyalgia or the flu–still will not admit that it is the Levaquin. I will never go back there. I cannot sleep, cry all the time, and have excruciating muscle, nerve and tendon pain and it feels like electric shocks are traveling all over my body. I had a total knee replacement October 19 and the pain from this is worse than the pain from my knee replacement recovery. I don’t know what to do other than drinking detox teas, taking epsom salt baths and making vegetable juices that are supposed to have anti-imflammatory properties in them. I see my primary doctor tomorrow and am hoping she can help. She is more of a natural medicine doctor.