Dear Doctors: A Letter from a Patient

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Written by S:

The following is what I have written in the hopes to one day be able to travel and see doctors and nurses in the eye and talk and see that we are human too. I am getting worse I am out of money and waiting for my long term disability to be approved to get more testing done. Till that time I hold on to hope I get my IV once a month and I look forward to a day when this will be but a memory and a issue I have over come. I really do think that now all over the world people are crying out for change. I believe in every part of what we currently use for process for the world to move forward this change must occur in all parts of government to the medical system the banking system etc… It’s hard for me to sit and do nothing. I can’t do much but I can try to help push for change. So if you like what I have written what has taken me months to properly formulate due to my symptoms please share. 

Dear Doctors,

I’m 36 years old and I have been damaged severely by antibiotics.

I know these words will make you tense some of you may have already stopped listening but I ask you to think why you are so afraid to hear my words, to quickly discount me, to try and silence me.

I am 2 years out from this and have gotten worse. I had zero of my current symptoms prior to taking the medication and yet Drs are quick to look at other possible reasons for my symptoms that have lead to me becoming disabled rather than accepting the fact that side effects from pills caused this.

My question to you is why? That is something that each of you must answer for yourself. It may be fear that you have indeed done harm by prescribing these antibiotics to others, it may be ego, it may be because me standing here telling you that the rates at which people are being damaged by pills is growing and that offends you because how dare someone who has not gone through the training you have dare question you.

I know that it is a difficult job to be in the field of HEALING. I use that word because that is truly the field you have chosen. It is to heal. My question to you is then why are we floxies so scary? Why do you want to discount us? I may be one person but I represent thousands of men, women, and children who have been harmed. Who are continued to be harmed. We looked for healing and because it is called the “medical” field and not the healing field and because Drs are encouraged and trained to see as many patients as quickly as possible do not become attached don’t see me as a human I am discounted and marginalized. I am quite real and there is a problem with the way we look at healing today.

I ask and would love the answer as to why naturopathic and holistic healing are not combined in a larger scale today. Why patients are not allowed to choose to have an IV or oil of oregano as their antibiotic rather than one made by the pharmaceutical industry. If it’s really all about healing than why can’t these worlds be combined and outside companies who have not been tainted be used to see if integrative methodology of healing is truly the best form? When you laugh or smirk at this that is your ego talking. No one person knows everything and yet naturopathic and holistic healing is consistently down played in western society as a whole. My question is it ego that is preventing this integration to increase, is it pressure and power from the pharmaceutical industry to only use their methods, is it lack of knowledge about natural and holistic healing? My belief is that it is a combination of all three and I am sure other issues such as the question has healing become a business and when you turn people away due to lack of funds  or when the billing department dictates who gets to be seen by a Dr based on insurance and not need what message does that send.

I ask that you look at me as see I am very real, I am human and I deserve and every person on this planet deserves to be treated as such. When you marginalize me or say well side effects happen all of the time you are telling us that we are an accident and we do not count. We do count I can assure you the pain and the frustration alienation that we receive are very real. The message to us is very clear that we scare you that we are a reminder that western medicine does do harm and you want us to go away. I am here to say please stop fearing us and let’s all work together to find a way to minimize damage to create better methods to hold those that create drugs that do damage accountable and to get back to healing everyone by using the safest and most effective method.

-S

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Vicki’s Story – Levaquin induced Transverse Myelitis

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In Sept 2007 I was given Levaquin for a sinus infection. My sinus infection returned through November and in December I developed Bronchitis, for which my Dr. prescribed Cipro, with a follow dose of Levaquin. On Dec 28, 2007 I sat down to dinner and felt a “shot” in the back between my shoulder blades, and it felt like fire shooting out through my breast bone in the front. I was immediately hit with spasms around my rib cage that made it difficult to breathe. I thought I had coughed so hard that I ruptured a disc. I knew I would have a difficult time being seen at the ER, so I took a muscle relaxer and went to bed. The next morning I woke up and the first thing I remember is that my legs were ice cold. I tried to get up and go to the bathroom, but soon realized that I I had lost the use of my legs. I also lost control of my bowel and bladder function. My husband took me to the ER of our local hospital. After sitting in the waiting room for 7 hours, the hospital filled up and went on diversion – sending me home without having seen any medical official. We went to our local medical college, where I was taken straight to an ER room. I was there 17 hours, had 3 MRIs, and saw a dozen doctors (some were residents). The ER doc requested a Neuro consult, but since it was New Year’s weekend, the orthopedic dept was taking their calls. So I never saw a neurologist. I believe if I had, they would have correctly diagnosed me. As it turned out, the docs at MCG had no idea what was wrong with me and sent me home with some Valium. I continued to decline, and the nerve damage spread further up my spine. In March 2008 I finally got in to see a neurologist, who took all of four minutes to recognize that I had Transverse Myelitis caused by the Levaquin/Cipro which were given along with steroids – which have since been proven to make severe neurological side effects more likely. I was paralyzed from the chest down for about six months before I began to recover some feeling in my toes. Over the next two years I had almost continuous physical therapy, as well as Radiofrequency Ablations to my spinal cord to help deal with the intense burning nerve pain. I continued to recover some function during that time, and in 2011 was able to stand and walk on my own again – although not up to normal standards. Now it is 2016 and I still suffer from burning pain in my thoracic and lumbar spine, have decreased strength in my legs, and balance issues. I’ve fallen six times over the last 4 years, and my spine has begun to degenerate at an accelerated rate. I also continue to have bladder retention, and bowel incontinence. This condition has completely changed my life. I feel blessed to alive and to have recovered as much as I have, because the majority of people who get TM either parish, or remain in wheel chairs or nursing homes the rest of their lives. However, if I had known that these fluoroquinolone antibiotics had the potential to cause such life changing damage to my central nervous system, I would have never taken them. I’m glad the FDA put a black box warning on these drugs this year, but I still feel it needs to be stronger and more clearly describe the type of life changing or lethal effects these drugs can cause.

I know there is no cure for the neurological pain that I have. I have to take a ton of other medicine now -Gabapentin, Baclofen, and Skalaxin to control the pain and spasticity; Celebrex for inflammation, Valcacyclovir to ward off viruses, Singluar to control allergies and asthma. The acute treatment for TM is high doses of IV Steroids, followed by high doses of oral steroids until the TM is in remission. All those steroids wiped out my immune system and I was diagnosed in 2013 with CVID – Common variable immunodeficiency, Then I had to start getting monthly infusions of Immunoglobulin. In 2014 I had a reaction to the IVIG infusions, so now I can’t have them any more. My IgG is still hundreds of points below normal, so I pretty much stay in isolation at home. I am able to go to stores during off peak times of day, but I avoid anyone with a cold or illness, and avoid being inside a room with a crowd of people. That means that I am not able to go to church as I did before. Another side effect of the TM is that now I’m allergic to most antibiotics except 2 oral and I IV antibiotic that I rely on when I do get sick. Thankfully, I’ve avoided additional sickness for the last 3 years, since I don’t have the immune system to fight it off. I’ve also had anaphylactic reactions to most pain meds, so I have to rely on the Gabapentin to control the pain. It comes with its own side effects, but thankfully I’ve learned to manage them and live with it. I have a faithful and loving husband. We now have 3 grandchildren, and one on the way in May 2017. I have a loyal Cocker Spaniel and this year I have begun to draw again. I look for joy in life every day, but at the same time I am always aware that I am not the woman I was before taking the Fluoroquinolone. There is never a morning that I don’t wake up in pain, or a night that I don’t lie down packed in ice packs to deaden the pain so I can sleep – or when I don’t wake up at least twice in pain and have to change positions or get up to replace the ice packs. There are still days when I have such brain fog that I can’t put two sentences together. Even on good days, I’ll start to tell somebody something and get to the end of my sentence and can’t find the word that was just on the tip of my tongue. I used to be a productive member of society, active in my community and in my church. I’ve learned to live with the isolation and loneliness that comes with being disabled like this, but there are still days when it is a heavy load to bear. I still love my life, my family and friends, but what wouldn’t I give to go back to that day and know better than to take that Levaquin. I wish I could warn everyone in the world about the dangers of these drugs and avoid somebody else going through what I have. Thank you for reading this.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

James’ Story – Life After Levofloxacin Poisoning

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My name is James and I wanted to share my the experiences that I’ve had over the past two years and eight months, since taking 5 simple doses of levofloxacin 500mg pills.

If I wrote a story of my life prior to January 7, 2014 it would look like this:

I am 34 years old. I have a busy life. I’m married to my wonderful wife of 12 years and have a 9 year old daughter and a 5 year old daughter. Between working full time as a construction engineer, running my girls to girl scouts and dance, playing on a men’s softball team from May through September, being a volunteer firefighter, and being active in my community, I leave little time for myself. However, I have the energy and mental awareness to pull this all off and live a happy life. I don’t eat the very best diet, but I try to balance it out. I ride my bike as often as I can – usually for 18 to 20 miles every other day. I do situps, pushups, jumping jacks, and stretches every day. I have toned muscles, and am fortunate that I have been able to be in decent shape without really having to work out aggressively like others that I know. I like to go out with friends. I enjoy spending time with my family. We go camping and take family “mini” vacations a few times a year. Life is good for me. I have always had asthma, but it’s controlled with daily maintenance inhalers and has never prevented me from exerting myself.

I could go on and on about how great it was because it’s true. I was happy and healthy, and enjoying life.

The only major medical issue that I had in my entire life, aside from asthma, was that I was diagnosed with papillary micro carcinoma of the right lobe in my thyroid. This was found during a routine annual physical, which I always have done just to be sure that I am in good shape. I felt a little dizzy when taking the deep breaths while the doctor was listening to my lungs. As a result, he decided to to an EKG that was normal. He also felt my lymph nodes and there was nothing wrong there either, but he did notice a small lump in the right lobe of my thyroid. I had no history of thyroid cancer in my family, but he wanted to have an ultrasound done to check it out further. This happened in August of 2012. Between that time and December 2012, I had three repeat ultrasounds and two fine needle aspirations (biopsies where they stick a needle into your neck to collect a sample of the growths to be tested for cancer). Results were in, positive for cancer, and I had surgery on December 30, 2012 to remove the right lobe of my thyroid as well as the isthmus (the center connective tissue that joins the left and right lobes). The surgeon didn’t notice and other lumps and tested what was removed to triple check that it was, in fact, cancer.

Good news for me! Cancer was gone and my thyroid levels were not affected enough to warrant supplements. I was healthy again. I weighed about 235 pounds and it was mostly muscle with minimal fat.

Back to my current reality:

I experience confusion or clouded thoughts. I forget things a lot. My joints ache and pop all the time. I have flushed skin and rashes all over. I have IBS with diarrhea. My muscles ache. I am not social. I do not enjoy volunteering in the fire company, and have not been active with them for about a year and a half. I quit softball. I don’t have energy to play with my girls, who are now 12 and 8 years old and need a dad that can be active. My wife and I argue due to the fact that I just don’t have the will, strength, or energy to do just about anything. I’m not doing well at work, and most coworkers and supervisors notice it. I used to supervise a staff of my own and had that taken away from me due to my inattentiveness and disorganization.

I have low self esteem. I know who I used to be, and I am no longer that person. At least physically, and I a somewhat bitter about that.

How did this happen?

On New Year’s Eve, December 31, 2013, I was enjoying watching the New Year’s festivities on TV with my wife and daughters. We even stayed up until the ball dropped to watch the fireworks from our back kitchen window. It was a lot of fun, and we all went to bed feeling a little tired but happy.

The next morning I woke up to complete body aches and what I figured was the flu or maybe bronchitis. I spent the next 5 days laying in bed or on the couch before I started to feel better. I had a little difficulty breathing still and I figured that it was due to my asthma, which never bothered me before. Since it was a little concerning that my breathing felt a little labored, I went to an urgent care center (my doctor’s office was closed and the on call suggested that I go there if this was really bothering me).

At urgent care, after checking everything else out, they thought that my breathing sounded a little raspy when listening to my chest. They did an x-ray and found a small amount of fluid in my right lung. They said that it was pneumonia and that I needed an antibiotic.

I’ve heard of many different types of antibiotics before, and even had taken some for infections in the past. It was always septra, amoxicillin, or penicillin. When they told me that they were prescribing Levaquin (I got the generic version – levofloxacin), I had never heard of it. They told me that it was the “big gun” of the antibiotics and that I’d be feeling great in a few days. I was prescribed 7 pills of 500mg to be taken once daily, starting that night.

After three days I was already feeling great. My breathing was normal again and the other symptoms of the flu or whatever it was that I had were gone. I took the fourth pill and later that day I noticed that my head felt like I was in the “fog” so to speak. I took the fifth pill and that feeling intensified later that day and I also started feeling very weak. I decided that I was over the pneumonia and threw the remaining two pills out.

From that point forward, I began to have all of the feelings that I mentioned above: dizziness, confusion, pain all over, popping joints in my hands and feet, brittle fingernails and toenails, weight loss, rashes all over my body, irritability, mood swings, lack of interest in things that I normally enjoyed doing, etc. My wife and I would argue a lot due to this. I felt like I was becoming useless. I felt horrible and knew how it felt to feel good, but I didn’t feel good.

I went to see my primary doctor in mid February after these issues got worse. I weighed 204 pounds – which I hadn’t weighed in almost 20 years. I had diarrhea daily since taking the pills. I was weak and my doctor was suspecting that maybe I had some form of cancer or infection that was causing all of this. He sent me for every blood test known to man, and it all came back normal.

I went to see him about every other month, not feeling any better, but put weight back on and was up near 250 by July 2014. It was mostly fat now, not really any muscle tone. The repeated blood tests kept coming back normal.

Frustrated, I insisted that it was hypothyroidism since all of the symptoms seemed to fit and I did have half of my thyroid removed when I had cancer. Those tests also kept coming back normal.

Over the next two years, I insisted to him that I had never felt this bad until I took the levofloxacin prescription that was was given at the urgent care center. He dismissed it each time that I complained about it. Almost like I was insulting his family member.

It wasn’t until this past July, when I told him that I wanted another doctor to look over my history, that he sent me for a blood test for low testosterone. I was now 37 years old and low testosterone wasn’t even on my radar. How could I have low testosterone??

Surprise, my levels were as low as an 80 year old man. Another surprise, he now told me that he is suspicious that my low testosterone might be caused by damage to my pituitary glad and that the levofloxacin may have caused the damage. He apologized for not looking into this sooner, and also for dismissing my idea that it was an antibiotic that caused this. He is now looking into this with other patients who have taken similar drugs and have mystery diagnoses.

A lot of the symptoms of low testosterone parallel the symptoms of hypothyroidism as well as those that I’ve read that are caused by being poisoned by levofloxacin.

Today is August 31, 2016 and I am due to see my primary again on Friday September 2 to get my prescription for a testosterone supplement. If all goes as I’ve read, I should begin feeling better within a week or two. I’m really hoping that’s the case. I’m tired of being tired all the time. I want to feel like I used to. My family needs be back. My employer needs me to perform.

While I don’t definitively know if levofloxacin caused my testosterone to drop so low and make me feel like I do, I suspect that it did. I had never felt as bad as I do now until I took it and have no other risk factors that could contribute to this.

It’s been a physical and mental struggle for me and my family during the ordeal. I feel like they sometimes resent me, but I know that they love me and want me to get better.

I will keep you updated.

Sorry for the novel!!

-James P.

December, 2016 update from James:

I wanted to share some supplements that have been helping me to have enough energy to get more active. My dad introduced them to me, and he is an older man who still runs marathons.  These keep him going.

Hammer Nutrition is the manufacturer. The three that I’ve been using for a few weeks now are:

1. Premium Insurance Caps

2. Mito Caps

3. Race Caps Supreme

They are not quite life changing, but pretty close to it – considering how bad I’ve been feeling in general.

I’ve noticed more energy, less brain fog, less muscle fatigue and soreness, less frequent headaches, and slightly more productive/restful sleep.

The best is the energy and decreased muscle and joint pain/fatigue.  It’s allowing me to talk longer walks and actually work up up a sweat, and attempt to lose weight.

As for the testosterone, so far that TRT has produced ZERO results. My levels are actually lower now that I’m on it. These supplements at least get me moving the way TRT is supposed to.

Please feel free to share the info on the supplements. They are for men and women. I recommend them since they are the first things that have given me any hope or results in about three years.

March, 2017 Update:

I had another two rounds of blood work done recently.  My testosterone levels are still way below the low end of “normal” range.  Zero improvement even with doubling my dose and being on it for 6 months. Also, ALT levels were very high. My doctor attributed that to the very high levels of vitamin E in those Hammer Nutrition products (E being fat soluble and stored in the liver). I am back to taking standard daily multivitamins, vitamin D, zinc, magnesium, and now DHEA.  In the month that I’ve been on these, I actually better than I thought I would but I’m still not the person I should be.  The Hammer Nutrition products are working great for my dad and other people that I know, it just may be that people like me can’t take them because our bodies were “reprogrammed” and don’t process things like they should.

Some new news, finally, I am seeing an endocrinologist who will follow me for my thyroid, low testosterone, and (wait for it) pituitary glad.  Apparently, it’s possible that my pituitary gland was damaged (from levofloxacin?) and that could be causing all of my hormone and other issues that no one can explain. The endo will be testing my pituitary gland for damage and will help me out with that if it is damaged.

I never even thought of the pituitary glad, and now that I’ve researched it – it seems to make sense and could be the missing piece of my puzzle. It’s likely throwing my thyroid and testosterone levels off.

Time will tell…

Take care,

James

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with http://www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Rhonda’s Story

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My story kind of starts with the clear fluid coming out of my right ear. After doing some research and three years of being treated with various antibiotics, which included suctioning the fluid out, I asked the ENT if it could be CSF, Cerebral Spinal Fluid. To which he had the audacity to say, but you’ve never had a head trauma. Well… It seems a spontaneous CSF leak is also a diagnosis. Iv’e since found out that other “Floxed” people have had a similar leak out the ear, which the odds are pretty rare for this particular leak. A Myelogram of sorts found the leak, but doctors in my city tried to cure the leak with yet another drug Diamox (Acetazolamide) that I was severely allergic to. The hole was about the size of a nickel! Feel it, if it feels like satin, it probably is CSF. Put some on a handkerchief, it halos, it’s CSF. That easy! They told me the hole was due to the Tympani bone being too thin and over the years with ear infections and such it probably just eroded away and my brain fell through the hole. They removed that small nickel-quarter size piece of brain matter and biopsied it (just dead brain matter). An Otolaryngologist at U of – Ann Arbor, MI, along with a Neurosurgeon were able to repair it by Craniotomy in 2001. It took them over seven hours to do so. I also received major doses of antibiotics, so strong that it blew all my veins in my arms. I looks like a freak show. At a follow-up visit, when I mentioned the repetitive ear infections being the cause, the Dr. denied making that statement. I’m now thinking that the original plugged ear feeling I had was after a few courses of antibiotics for ear/sinus infections and maybe due to “brain-swelling” as other Floxies have found out. I’ll never know the truth. I have been given so many antibiotics throughout the years, including Levaquin for double pneumonia and again for the onset of pneumonia in just the last 10 years, as well. I am female and only 52 yrs old. I was diagnosed with Diabetes and High Blood pressure in the same visit at around 45. I’ve had to make my primary physician check my blood to see why I didn’t feel well all the damn time to ultimately find out I had. CLL/SLL Cancer, though I’ve been in remission for two years now as of April (this is a Cancer that 70 year old Eastern-Euro men usually get!), none of which applies to me. I now have Myocitis (leaking muscles), they want me to have a muscle biopsy to grade it, so then they can prescribe me more steroids. No thank you, I have had Prednisone and hate-hate it. Then there’s the Fasciculations under the skin of my calves just resting, as well as cramping leg spasms during the day and night. Spasms even come into dreams and I’ve actually dreamed I’d been shot twice recently and awoke to a severe spasms. So apparently I liken it to being shot at the onset of these cramps, also the spasms twist my feet to abnormal angles. I have two newer hips, after having bone grafts at age 12 on both and Osteo-Arthritis having set in. Then there’s the possible Neuropathy in my left big and second toes and lighter in on right side. This transpired after spinal disc surgery on lower five discs to relieve severe Sciatica L1-S1. I did all the PT faithfully, to only re-herniate at least one disc only 12 weeks later. I didn’t do anything to re-herniate it, but the pain management Dr. says there’s also a lot of scar tissue in the Sacral region now. Just got Tranforaminal Injections again for another bout of severe pain from Sciatica last week, and one two weeks prior. They work, but it comes back about every two years for me. Gout came after injuring my toe this summer, on the dog lead as she ran out the door. Dr. says I have to take the Allipurinol all the time now to keep my Uric Acid down. What?? Now, beginning Glaucoma (just found this out last month), after experiencing blurring with kaleidoscope like visions blockages. I just got injected with iron today on account of my Hemoglobin being low and I had to have them check it on account of my new habit of wanting to chew ice all the time. Never have before. Sure enough Hemoglobin was low. I go for the other half next week. I feel like I’m 80 and that’s every damn day! I want to slap my doctor when he even mentions my weight, which has ballooned due to the ailments to stabilize @288 lbs, though I’ve taken off 30+ lbs and kept them off, he wants more. So he put me on a drug called Jardiance that’s supposed to work to remove sugars in my body and aid in weight loss. My body rebelled and gained almost 10 lbs, I was always hungry on it. Took myself back off and I’ve lost five of them again in three weeks since. Their damn drugs are a joke. I’m just happy to get out of bed in the A.M. and move throughout the day.

Levaquin, Avelox and Steroids – How They Changed My Life

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My story began in 2001, with the incident that would set in motion a series of events.

In 2001, my brothers contacted me to help move my mother from a roach infested home she was living in at the time. We went down, cleaned everything and moved my mother into assisted living facility. Little did I know that single act to make life better for my mother, would lead to 14 years of hell for me. Shortly after that incident, I started to lose my voice on a regular basis, pretty tough when you are a corporate recruiter. I was diagnosed with a severe sinus infection. I later learned through testing, I’m allergic to cockroach poop and every mold known to mankind.

I was referred to an ENT because the sinus infections would not stop. She put me on Levaquin, prior to finally deciding on surgery in March 2001. That’s when things started to go downhill, at first; I would experience tendeniopathy, severe pain in my shoulders and elbows. Went to an orthopedic surgeon, ran tests, an x-ray found a bone spur in my right shoulder. Most likely from an injury I sustained while in the army. They called is bursitis. The ENT finally gave up on the antibiotics and did surgery on my sinus. She repaired a blocked nasal passage which was making the situation worse.

I did horribly with that surgery. Following the surgery, she put me on Levaquin with prednisone 6 times in 2002. That resulted in the first of seven tendon tears with the first being my left elbow. In the following years, I would be prescribed Levaquin and Avelox by the ENT, and the doctors at a former Family Practice in Belton, MO. I went through a lot of changes to address the sinus problems and get them under control. Had the vents in my house cleaned. Searched out every place mold could grow. But it did no good. I still had sinus issues.

I have always trusted my doctors and I trusted the pharmaceutical companies, I never questioned any of the actions they took or the pills I was taking. After all, it couldn’t happen to me. For me, a side effect was the hives or other minor reaction. I never in my imagination thought an antibiotic was responsible for my tendon tears, IBS, now Ulcerative Colitis and so much more than to mention here. 2011 would be the last year I was given Avelox and Levaquin by my ENT and the latter by a family doctor.

It was “blind faith” that became my downfall. I’m not certain when I was first floxed. I suspect it was in the late 90’s while on active duty. I suspect it was these drugs that caused me to tear the meniscus in my right knee in 1999. In 2001 I retired from the military because I could no longer run and had constant problems with my shoulders, back, and other tendons. I just couldn’t keep up with the demands of the military at the age of 39.

In 2003, I was prescribed Levaquin by my PCP and again, I reacted with severe lower back and sciatica pain that required many visits to a therapist to bring under control. There were times when I could barely walk. And these symptoms weren’t the only ones. I suffered insomnia, anxiety attacks and developed IBS.

In 2004 I was prescribed Levaquin for an infection and this time it would result in the first tear to my right rotator cuff. I suffered this tear doing simple lifting at home. I learned that fall; I would have to have surgery to repair the tear. It took 8 months for me to get use of my arm back.

I would be given Avelox in 2005 and suffer damage to the ulnar nerve in my left hand that required surgery. The surgery did not correct the problem. Even as I type this, there is pain in my left hand; I often wake up with it numb. On one occasion, I woke one morning and could not move my hand, I panicked, manually began to move my hand and it started working again. That only happened once, but it scared me. I went through several tests with a neurologist to see if there was another problem after the hand surgery. She could not find anything wrong with the nerves from my spine to my hand – nothing. Little did I know it was the drugs that were causing shooting pains and numbness in my hands and feet. Like all the other doctors before her, she never looked at my prescription history to see if something I had taken was causing the problem.

In 2006 through the end of 2008 would prove to be good years in which many of the problems except the IBS disappeared. In December 2008, I was prescribed Levaquin again and this would result in a tears to my left rotator cuff several months later. It also resulted in a second tear to my right rotator cuff.

In 2011, 30 days prior to my 2nd right rotator cuff surgery, I developed another sinus infection. I was prescribed Levaquin and two weeks after the surgery, I was prescribed Avelox with Prednisone (simultaneously) by the same ENT that had performed sinus surgery almost 10 years earlier. In the fall of 2011, I tore my right rotator cuff for a third time, picking up a bag of groceries. The surgeon informed me after that surgery, that it could not withstand anymore repairs – if it tears again, it will most likely result in joint replacement.

In the fall of 2011 I received a letter from attorneys representing Humana. They were suing Johnson and Johnson for the money they had to spend on my surgeries. The letter also told me if I were to sue, I would owe Humana. The fear of being sued by Humana, whom, obviously knew the drugs were causing tears, kept me from holding the doctors and J&J accountable. In the legal field, this is known as the “chilling effect.” Like many, I just didn’t have the money to find justice. So I let it go to work on awareness.

But the damage didn’t end in 2011. About the time I received that letter, I was at work, pivoted on my right foot to talk with a coworker, and felt a sharp pain in my hip. I would later learn this was one of two tears to my right hip labrum.

In May 2015, I had to have hip replacement surgery. This too can be directly connected to Levaquin and Avelox. In 2011, via Ulcerative Colitis. In June 2012, I suffered a severe colitis flare up that resulted in me being put in the hospital and the prescribed a lot of prednisone. I suffered a lot of pain in my right hip. In 2014, I gave up on my current surgeons and sought out a hip specialist, little did I know that there were changes taking place inside my hip. I didn’t know that steroids would do the damage I suffered.

By then I was smart enough to look at the side effects of drugs, and found prednisone and other steroids can cause a condition called Avascular Necrosis. Three surgeons denied a problem despite a statement in the hip MRI regarding an “abnormal signal” coming from inside my femur. It took a little over two years for the head of my femur to collapse, which could only be repaired with hip replacement. All because of Levaquin and Avelox and the steroids they prescribed with them. Today, after my change to organics, I now have the colitis in check. Haven’t had any severe incidents since 2013.

Like many floxies, I live with daily pain – something hurts. I have made many changes to include changing to an organic diet rich in plant based foods. I do my best to stay away from processed foods and meats with antibiotics. I took control from the doctors on prescriptions, and I question everything. This change has made all the difference. I have not taken a plethora of supplements, my food has it all.

I have a very difficult time trusting doctors. I do my best to work with my doctors and communicate with them. I inform them that I am the poster child for why antibiotics should not be overprescribed. One doctor, wanted to prescribe Cipro, I asked him what his estate is worth? He changed the prescription.

Many of the doctors denied the drugs did the damage. Not a single one of them looked at my prescription history, and none of them acknowledge the dangers of FQ’s. I will never trust the pharmaceutical companies ever again; it’s painfully obvious they put profits before people. I ask everyone that reads this story to please, Please, research those prescriptions before you fill them. You could be filling a prescription that has the potential to kill you. Please. Spread the word.

The FDA no longer protects us. Congress couldn’t care less. To all of them we are a meaningless statistic. Change needs to take place. You don’t have to wait for congress; you can make those changes and get better on your own. Find what works best for you. There is no magic pill for what happened to us. Only time, patience, and eating healthy have made a difference. I’ll never be back to 100%, but at least I have hope that eventually it could get better.

J’s Story – Dear Mr. M.D…..

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Pic from a google image search, not the actual doctor mentioned

Mr. MD,
I am addressing this letter to make you aware of the physical and mental nightmare I have been enduring on a daily basis since you prescribed me Levaquin (levofloxacin) for a simple urinary tract infection. The adverse drug reactions that I am suffering are sometimes so painful that crying has become natural. The joint pains throughout my body, constant headaches, and peripheral neuropathy (pins and needles, burning, electrical shocks) on my legs and arms, are sometimes unbearable.

What I find disturbing is the fact that on the follow up medical visit, you pretended to be surprised that I was experiencing these horrific side effects, and actually started to make excuses by alleging that I was suffering from rheumatic arthritis, and immediately tried to pawn me off to all kinds of other doctors. You also recommended for me to take NSAIDs, which later I found out is a big NO NO when someone has being exposed to fluoroquinolones.

On the second medical follow up appointment, when I confronted you with FDA documentation on Levaquin side effects, all you could do was scratch your head and continuously respond “I don’t know” to the questions I was asking in reference to my current physical disaster.

Another disturbing fact is that your office called me after the second follow up visit to tell me that I needed to go back, because you had forgotten to examine my joints. On the following week at your office, the entire medical examination consisted of you staring at my ankles for approximately 20 seconds and saying okay. Your office was also quick to file another insurance claim for that visit. Total time spend receiving medical attention from you and your office to include body weighing, blood pressure, and your consultation for all four office visits did not surpassed twenty minutes (excluding the time spend in the lobby waiting area).

I am embarrassed and upset at myself, for being so stupid in believing that all doctors are always looking out for the better health of their patients. After I had been poisoned by this antibiotic, it only took me about two minutes, to research on the internet all the horrific fluoroquinolones side effects that are affecting thousands of people on a daily basis. I am positive that you as a medical doctor may have better and more accurate access to the side effects statistics and devastating side effects of these antibiotics. If you would had advised me of the Levaquin possible side effects on February 23, 2015, I know for a fact I would have told you “NOOO, NEGATIVE” and asked you to prescribed me a penicillin based antibiotic.

Doctor, please take time to advice patients of the possible horrific side effects of these antibiotics, if you are still prescribing them.

As for me, my daily existence since the day after the last poison pill, has been a daily physical struggle, to which waking up in the mornings, is not a blessing anymore.

Doctor, I have no ill feelings towards you. I was just one of thousands of unlucky ones who have been poisoned by these demonic antibiotics. Ironically, I thank GOD that you did not prescribe me 750mg, instead of the 500mg, and or 10 pills instead of 5 pills.

I am okay in my heart; I hope you are okay too. I have faith in GOD, that one day; this whole nightmare will start to gradually ease off.

I realize now, it is greed and egoism what are controlling the fate of this world. The FDA, pharmaceutical companies and even some doctors, sole motivation is greed, and egoism with zero consideration towards human lives. Fluoroquinolones are devastating lives on a daily basis, but no one seems to care as long as the money keeps rolling in and they are not the ones getting poisoned by these antibiotics.

Heidi’s Story – Levofloxacin Harm

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Heidi wrote the following letter to several United States Senators, urging them to hold a congressional hearing about the harm done by fluoroquinolones.

Dear Senator,

I am writing, along with many others, to ask you to conduct a Congressional Hearing immediately into why adequate warnings have not been placed on fluoroquinolone antibiotic labels, including Levaquin, Cipro, Avelox and others, to also include ‘cartilage damage’ and ‘mitochondrial toxicity’.  This is in addition to the two already existing black box warnings for ‘tendon rupture’ and ‘peripheral neuropathy-nerve damage’.  I also urge you to demand that the FDA notify ALL DOCTORS to cease the widespread prescribing of Fluoroquinolone antibiotics on an outpatient basis; and to further restrict dispensing of these strong antibiotics to urgent life threatening cases where all else has failed and within a hospital setting. Perhaps some pre-certification process could be implemented for prescribing these drugs on an outpatient basis ONLY to those few who rely on them for serious medical conditions, have experienced no side effects, and with their fully informed consent.  The desire to retain the strongest antibiotics to fight increasing super-bugs is understandable even when problems are reported, but perhaps the solution is in very strict and limited distribution of these drugs.  Instead, these mega antibiotics are often set up as the go-to formulary antibiotics in many hospitals, some elder care facilities, and used as a cure-all in some physician’s offices for minor to moderate problems.

Our medical system should also establish a means to better educate doctors regarding updated potential side effects and interactions of drugs.  Doctors also need an efficient process for reporting patient’s drug side effects to the FDA and incentives or controls may be needed to implement this.   Improved monitoring by the FDA and quicker reaction when issues arise is also needed.  Greater effort may require better government funding for the FDA so they can effectively do their jobs without relying so heavily on funding from drug companies, a potential conflict of interest.  Furthermore, FDA testing of suspected problems with drugs should be conducted by independent laboratories and not by the drug companies that manufacture the product and have billions at stake.

I am a 60-year old female and had the misfortune of being prescribed Levofloxacin (generic Levaquin) for bronchitis on April 24, 2013, by a physicians assistant.  This was while my primary care doctor was away on National Guard duty.  After 1-3 days, I was so impaired that I could barely move.  Initially I thought I had a very terrible flu as my entire body was extremely achey with most joints making popping noises.  Both hips became worse as the week progressed, with very severe joint pain and both hips locking up while changing positions or direction.  Getting up from a sitting position was painful and I had to use hiking poles to walk or negotiate stairs.  I could hardly bend over and dressing and showering became difficult.

I had trouble lifting my left leg forward and it gave way several times.  I began to think I was getting polio or some strange disease until on day seven I read the drug flyer and single black box warning about ‘severe joint pain and to stop taking immediately, worse if age 60 or older or worse if on prednisone’.  I was almost 59 at the time and had been taking prednisone daily for 14 years.  Who would think that an antibiotic could do this level of damage so quickly?  I phoned CVS about my predicament and they told me Levaquin (and generic) had some reported problems and to file an FDA Medwatch form which I did almost immediately.  When I told the physician’s assistant about my reaction to Levaquin he gave me a weird look and said “there’s no way to know”!

During the remainder of 2013 the bilateral hip pain and locking up problems persisted with varying minor improvement toward year end.  I had MRIs suspecting labral tears in the hips, was treated by a pain management doctor, received cortisone shots, went to physical therapy for months, and consulted an orthopedic surgeon.  I also saw my primary care doctor upon his return and he agreed that my bilateral hip problems were very likely from the Levofloxicin since he had known me for years and knew that I was fairly active and problem-pain free before this.  He mentioned another physicians assistant in his practice that had also suffered with serious side effects from Levofloxicin.  During this timeframe my physical problems were obvious and conversations with several other people who had also taken Levaquin/Levofloxicin revealed that 7 out of 11 were badly impacted from it as well.  Two of these people have required surgeries in the knee or hip.  The problems of some resolved several months later but the problems of others still persist.

In most cases, when they suspected the direct connection with Levaquin/Levofloxicin, they were dismissed by their doctors.  In addition, none of these doctors informed their patients about the FDA Medwatch form and to my knowledge no one else has filled out the form.  The result is ‘no record of serious problems’.

During 2014 my hip problems worsened.  I tried more physical therapy, got high quality MRIs confirming acetabulum labral tears in both hip joints as well as arthritis, and consulted three more orthopedic surgeons.  Acetabulum-labral tears will not heal without surgery and arthritis can be accelerated as a result of labrum tears.  The conclusion by the surgeons is that my problems will not resolve and that I will need both hips replaced.

I easily found clinical-peer reviews on-line, authored by the Mayo Clinic, NIH and other doctors, citing the likely causal relationship of Fluoroquinolones to musculoskeletal damage of cartilage, tendons, ligaments, and healing of bone.  One NIH peer review of Fluoroquinolones referenced trial results including ‘destruction of cartilage in load bearing joints of juvenile animals in the study’, with a conclusion to not give Fluoroquinolones to children.  I found reports by the FDA and others acknowledging that these drugs can also cause ‘mitochondrial toxicity’, another serious problem.  Drugs should not be considered innocent ‘forever’ until proven guilty over and over.  A recent NBC newscast cites FDA statistics of 1,200 deaths and 100,000 people ‘reporting’ serious side effects from these potentially toxic drugs.  ‘Actual’ numbers are estimated to be ten times the ‘reported’ numbers (via FDA Medwatch form).  The widespread dosing and impacts of these drugs on many thousands of people in the USA and abroad, while vast numbers of serious problems are reported and suspected, is disturbing on a scale that is inconceivable.

I am more fortunate than so many others who have lost their jobs, homes, or more from these potentially debilitating drugs and believe this miscarriage of medicine has gone on far too long.   We deserve to hear from the FDA about adverse events related to Levaquin, Cipro, and Avelox and all their generics through a Congressional Hearing, as do doctors and patients.  Physicians, researchers, and victims like me are ready to testify.  Thank you for your concern regarding this critical issue which affects thousands of people in your state and throughout this country.  This could be you, your elderly parent, or your child. As a society, we must DO NO HARM!

Lori’s Story – Levaquin Effects

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I was prescribed Levaquin 2/19/2013 — 500 mgs once per day for 10 days. In the beginning of March 2013 I noticed a lump on my clavicle and developed pain through my shoulder down through my scapula.  My PCP referred me to an orthopedic doctor who took X-rays and found nothing out of the ordinary. He then gave me a steroid injection at the site of the lump and told me to take ibuprofen. Within a month the pain spread to my other shoulder. And within a year I basically had pain in every joint of my body. Especially my wrist, knees, and ankles. I even have pain in my knuckles. Sometimes the pain and ache is so severe it keeps me awake at night. I had all sorts of blood tests done. I was tested for Lymes disease and rheumatoid arthritis. Both came back negative. I showed no signs of inflammatory disease in my blood work. I was then referred to a Rheumatologist who I’ve seen several times. He basically just said I have chronic joint pain. I asked him about the Levaquin connection and he just blew it off. He just told me to take Naproxen and Tylenol. I went from being an active 49 year old to a 51 year old who feels like a cripple. I had a very active lifestyle of walking/hiking, attending exercise class, swimming and kayaking to not being able to hardly do anything without being in pain. If I walk or I am on my feet too much my ankles swell and I lie awake in bed with pain. If I clean my house I’m in pain afterwards. I sleep with a splint on my wrist because of the pain and I can’t even lift a baby with my right wrist due to the pain. At times I go to walk and can barely move my legs they are so tight and my knees feel like they’re going to give out on me. Thanks for listening to my story and I hope this information helps you to make a change.

Mindy’s Story – Hell Within

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Tomorrow will be 4 weeks since I took Levaquin and ended up in the mental ward of the hospital. I am guessing that I had a psychotic reaction to the medicine. I told my doctor, but he said it only effects the joints.

I don’t like talking about it, I’ve only told 2 people.

I was given Levaquin for a chest cold. I took it and went to lay down for bed an hour later. I laid down and closed my eyes and saw in my mind’s eye a huge, flashing light. I freaked out and went to the kitchen. There was a knife on the stove and something was pushing me to grab it and do something to my husband. It was such a strong feeling. I grabbed my phone and ran out of the house to the street and called the sheriff and told them to come take me to the hospital. All I could see was that light, there was nothing in the world but me and that light. I got to the emergency room. While waiting for the doctor, I asked the nurses to restrain my hands. They wouldn’t. A male nurse came in to draw my blood. I had my eyes closed when he came in, but my sense of smell was so strong, I could smell his male scent and I wanted to attack him. I just laid there with my eyes closed.

They took me up to the mental ward, no one had any idea what was going on with me. I have dealt with panic attacks for years, so they kept giving me medicine for the attacks. My body rejects most medicine, so if one medicine made the attacks worse, then they gave me another and another. An antidepressant too.

I didn’t sleep for 50 hours, I lost track after that. With the flashing light came thousands of images that flashed through my head. Dark things that I have never seen. Eventually it all subsided, then they gave me the Levaquin again and the flashing light and images were back. I knew then what was causing it and told them not to give me the Levaquin again. Through the experience, I felt my brain being fried and parts of it shutting down like it had enough, so it quit firing. I still don’t feel most of my brain. It is numb or dead or damaged. I dunno.

The thoughts don’t come as often. Strange things that I never thought of before the Levaquin. Like, the thought of what the texture of roadkill would be like in my mouth, the thought of driving into oncoming traffic, the thought of hurting my beautiful little kittens, the thought that cat poop smells good and I should rub it on my body. I am so scared of everything now and I’m scared of myself. I was going to hang myself when I got home due to the dark thoughts.

I have the physical symptoms that floxed people talk about, but what does the body matter without the mind?

Ron’s Story – Levaquin Induced Gulf War Syndrome Symptoms

Ron FQwall

My story begins in 2005 when I was working at a startup that had mostly management and very few hourly employees. Most had startup experience and would not work all the hours the ownership wanted. So at the most critical time of the companies history I was working 13-16 hour days and was totally exhausted and forgot I had an old water cooler filled with tap water that had been sitting there unattended for 8 months. I woke up half sleep walking from exhaustion and mistakingly had a cup full of the water. Not realizing it had algae growing in it and what ever toxins that where in it.

2 days later I was suffering from a severe infection and was sweating and drinking gallons of water, sleeping in pools of water and working 13-16 hours while trying to keep the company going and trying to ensure every one else kept their jobs. I finally made it to the doctor during the off hours and he gave me zythromax with no stool sample taken or anything to try to figure out what I was infected with. By then the damage was done and I had insomnia and a compromised immune system and spent the next 4 years seeing different doctors and taking any number medications trying to treat the insomnia and the slew of symptoms related to the damage.

After having insomnia for 4 years and only getting 2 hours of sleep maybe every other day and crashing hard sometimes and in and out of the hospital every winter during flu season and my body had given up I was prescribed levaquin for a upper respiratory infection on November 10 of 2009 I took one dose and slept. I took the second dose and was awakened to my tinnitus screaming like a cannon had gone off by my head. I had noise induced tinnitus from being a armorer in the USMC but this was something new and ungodly. Also my whole body was on fire and my heart was freaking out in my chest. I jumped up and hopped in my car and hauled my self down to the hospital.

They switched antibiotics and monitored me for a few days. I kept going in and out of afib every time I had to much stimulants like alcohol and coffee and cigars or any slew of triggers and my immune system kept crashing. Eventually they had to cardiovert me and at some point after that I lost my job so I went to the VA to try to get help. They treated my elevated tinnitus with in ear sound generators but would not buy the fluoroquinolone reaction as having anything to do with my CNS problems. So I was back to square one with the new doctors.

One day I went to the VA complaining of heart pain and they sent me to specialists that did a treadmill stress test. They found SVT induced afib and started me on propafenone which stopped the afib and also allowed me to sleep. During this time all kinds of other symptoms started to show up like inability to sweat, could not exert myself and still catching every cold and flu around. Since it looked like no one was going to believe me I started to research everything I could and one of my coworkers mentioned that a relative was in the Gulf War like I was and he said it sounded just like Gulf War Syndrome. So I started looking up all the info and researching all the things everyone has tried and started doing that. Supplements that stimulated brain growth factor, immune growth factor, nerve growth factor, neuroprotectant supplements, B vitamins, Iodine therapy, Acetylcholine cofactors, colostrum for mycoplasma and immune support.

All the while waiting for the catheter ablation techniques to improve until one comes along I could feel confident trying. I eventually stumbled on the Flox report and started looking into vagus nerve damage and neurotransmitters which lead me to acetycholinesterase inhibitors and racetams and nootropics. After coming up with my own cocktail of nutrients and supplements and damaged nervous system supplements. I took this for about a 1 year adding some new ones and subtracting some that seemed not to do anything while changing my diet and finally sleeping 8 hours or more a day and most of the symptoms resolved and the tinnitus almost back to pre-levaquin levels except for afib and the run away heart from stimulation via to much food, alcohol, tobacco or exercise. I can keep from going into afib and keep the heart under control with ACE inhibitors or high affinity choline uptake enhancers (coluracetam, oxyracetam). If I stop them then I can go into afib again if I have alcohol or tobacco or a big meal. It seems to have messed up something in my hippo campus and or vagus nerve system that controls the sympathetic and parasympathetic systems.

Stephanie’s Story – Levaquin Effects

Stephanie FQWall

I fell onto a sharp metal object on our farm in the summer of 2011, sustaining a gash in my leg and other injuries. I received minimal treatment in the ER and was sent home. Three days later my GP prescribed a 7-day course of levaquin as a precaution against infection, without mentioning side effects for a diabetic. To make matters worse, his nurse applied triple antibiotic ointment to my wound, despite my warning I was allergic to it.

When I picked up my prescription and saw the side effects included potentially permanent nerve damage, I request a change to cephalexin and started on the pills. However, the wound blistered from the ointment and I landed in the hospital the same night with cellulitis. I was again prescribed levaquin and discharged on the second day. My wound exploded with pus and blood when the stitches were removed and I was hospitalized again. A surgeon was finally consulted and started salene gauze packing. I was going numb up both legs and then throughout the body including my face and mouth. My protests were ignored. I also had extreme pain extending to all joints of the body. I was losing my hearing and vision. There were dramatic changes to my skin, which were also ignored.

I thought I might recover at home in the following weeks and months, but the effects are getting worse. I now understand the role of the autonomic nervous system (ANS), affecting my digestion, elimination, heartbeat, breathing, blood pressure, etc. My body has been thrown off course, and I do not know how much longer I can stay alive. My blood sugars are wide ranging, unlike what they were previously. I went from 125 to 106 pounds. I have muscle wasting, tendonitis and bone damage. The vision damage, macular edema where there was none previously, is the worst part. Levaquin should never be administered to high risk groups, such as people over 60 yrs and diabetics.

I had extensive testing done about 5 years previous to the fall, when I made application for a research program for diabetics at the U of M. My former doctor stated for the record that despite years of diabetes, I had no retinopathy, coronary artery disease, gastroparesis or GI problems. My circulation was good and I was an active and productive person. Now Mayo testing shows vascular insufficiency and I walk short distances with a cane.

Laurie’s Story – Levaquin and Prednisone

Laurie FQWall

I just recently finished my second course of Levaquin since Nov. 2013. Both courses were incorporated with Prednisone in fairly high doses. Twice I was admitted to the hospital for asthma exacerbations and this was part of my course of treatment. I didn’t notice any side effects after the first course, but after the second one, I have been experiencing extreme knee joint pain and swelling. It is difficult to walk from one to another some days. At this point I am still on prednisone to help me breathe, but I have to wonder after doing this research and reading if my joint pain isn’t a result of the Levaquin. I haven’t been back to work since this last bout of asthma and I am not sure how I am going to be able to work. I am a nurse in a busy ER. The thought of walking on these painful knees everyday makes me want to cry.

Kelly’s Story – Levaquin Toxicity

 

In 2007, at the very young age of 21, I was prescribed the toxic antibiotic known as Levaquin. I was just graduating college to work with people with mental and physical disabilities, little did I know that levaquin would soon leave me permanently disabled.  My adult life was just beginning when Levaquin took my health, and more importantly much of my future. Not all side effects are short term…especially not with the toxicity caused by this class of drugs.  Levaquin affected almost every part of my body.  Here is a  short list of the symptoms I have had to endure as a result of this toxicity, and continue to suffer with on a daily basis to this day.

Heart palpitations-PVCs

Tachycardia(fast heart beat up to 130+)

Bradycardia(slow heart beat)

Postural Orthostatic Hypotension

Neuropathy- Tingling, pricking, numbness, twitching of muscles

Floaters and flashes, blurred and double vision, visual snow, and extreme light sensitivity

Degenerative Joints (knees and wrists being the worst)

Popping joints/crepitus

Dizziness and vertigo

Tremors, Severe Weakness of limbs, and shaking

Tinnitus(ringing of the ears)

Sound sensitivity

Severe Multiple Chemical Sensitivity

Major chronic fatigue and Exhaustion

Adrenaline/cortisol rushes and low/high blood sugar readings

Low and high blood pressure

Chronic Dehydration despite drinking constantly

Constant nausea

Difficulty swallowing

Anxiety, Panic, Depression, and Crying spells

Inability to eat due to major food reactions (stuck eating under 10 foods since being “floxed”)

Central Nervous System and Autonomic Nervous system dysfunction

Chronic Low Body temperature of 96-97(normally 98.6 prior to FQS)

Tendon and Joint Pain

Sensitivity to hot and cold temperatures and to the Sun

Spider veins and thinning skin

Insomnia

Seizure like type episodes

Brain fog

The list goes on and on.…Levaquin has affected my life in every single possible way. I could write a book on all that I have gone through and all that I have lost, but I’ll spare everyone the sad details and share with you what I really want to emphasize.

The damage and loss I have experienced as a result of taking this drug was NOT worth the risk of taking it. Nor was I ever informed of the risks associated with Fluoroquinolone Antibiotics. I write this in hopes it will help educate others, and to use these drugs as a last resort when safer antibiotics can be prescribed for minor infections. I now try to devote what little energy I do have to helping spread awareness and to help manage The Fluoroquinolone Toxicity Group on Facebook for victims of Fluoroquinolone Toxicity and their loved ones.

I still suffer daily with a laundry list of symptoms, and although I try to keep the faith that maybe someday they will slowly disappear, I know there’s a high likely hood that I will be stuck with these “side effects.” On a positive note I have learned a tremendous amount of things and gained a wealth of knowledge that I wouldn’t have had this not happened. I have also met some of the kindest and most caring people who are also victims of FQ Toxicity, and I have developed some wonderful friendships for which I am so very grateful.

Munica’s Story – Levaquin Poisoning

Munica FQWall

Hello~ My name…Munica..the following is my real life story….
It was the year 2002, I was a mail woman,raising four children on my own, a house w a mortgage. On the job I developed walking pneumonia, stubborn woman I am went to work for 3 day w a temp of 103*..needless to say the sent me home…never to return again !
I went to my doctor who knows I am allergic to all antibiotics derived from bacteria, so she put me on this new synthetic one named Levaquin. I took one, repeat one pill, within 5 hours my neck swelled, my ear became like Dumbo, at 3 am I could not turn my head,I was in excruciating pain. I went to the hospital, they sent me home with 800 ml ibuprofen. two days later I became extremely ill, vomiting every 5 minutes, my eyes were spazing,moving back and forth…my children drove me to the hospital after 2 days of this…the under educated hospital sent me home saying i had a bad flu…well this bad flu landed me in bed for …three straight months, if I so much as moved my head an inch I would get severe vertigo. i SLEPT SITTING UP IN A RECLINER FOR 7 YEARS… Once again 3 months later, my children took me to the doc…who said I had the worst case of VERTIGO she had ever seen. Five docs and 2 years later I was diagnosed with BPV,MS AND VESTIBULAR NEURITIS….needless to say i could not return to work and in the fall of 2002 I lost my house,my children had to be placed with their father for the first time ever…my life as I once knew it was shattered. I was an avid runner(5 miles a day) went to the gym, loved to dance and was a very physically fit woman whom never hardly ever got sick… Continue reading