Stu’s Story – Permanent Peripheral Neuropathy from Cipro

Six years ago I was put on a 3 1/2 week therapy(seems so paradoxical to even use that word)of Cipro twice a day. I have been in medical sales all of my professional career and should have taken closer notice, that my legs were hurting me and should have stopped immediately. I took a generic so there is no recourse legally for the damage that was done.

I have never recovered, in fact, in many ways symptoms have grown worse. Post Cipro I was left with Peripheral Neuropathy in both feet, shins, calves, 24/7 365.

It is daily torture and difficult to live with(but its better than the alternative). I also deal with diffuse pain all over my body and no doctor can tell me the cause. I have Idopathic Peripheral Neuropathy(meaning, there is no known cause).

Each doctor I have seen, I tell them that I know that the Cipro was the culprit, to which, they look at me like I have two heads.

I have been examined, tested, leaving me again with no answer(s). I have tried Lyrica, Amytriptoline, Nortriptoline, Gapapentin, they only made me feel really spaced out, with no relief.

I have been through Electric Signal Therapy, Reif Lamp Therapy, Himalayan salt foot bathes(to leech out the toxins), also with no relief.

I visit a Restorative/Rehabilitative MD, who has had me follow various diets(Elimination Diet, Detoxing Diet, Mitochondrial Diet)and lots of supplements directed toward reducing toxins in my body, reducing inflamation, improve the daily torture. As of yet, nothing has helped.

I started several weeks ago LDN (low dose Naltrexone), which is supposed to help with the pain and discomfort. We shall see, the jury is still out.

I have been ingesting CBD Hemp Extract for over six months now, hoping that it will bring relief, but the jury is still out on this one as well.

For over 30 years I was a very serious recreational athlete. I have been around the earth’s circumference two times(52,000 miles)as a result of running the New York City Marathon, having done 12 Olympic Distance Triathlons, thousands upon thousands of miles road biking, roller blading in the street for distance, swimming, running races, as well as being a gym rat.

All of the recreation that I loved so dealy, was taken away from me. I have been so inactive that I have suffered a great degree of muscle wasting. I am attempting to get back some strength by doing Aqua Therapy(but everthing I do feels good for the moment and than I hurt even more). I know that you are supposed to be sore after exercising, but the aftermath, is more than just soreness. I have not gotten yet to a place, where I might not experience the aftermath, as significantly.

Radical exceptance is what I have been told I must embrass. I have to be thankful, for many people, have it far worse. Depression and Anxiety are always close by and without medications to help me with that, I would be far worse off.

Sitting in a chair with my feet on the floor is often times unbearable. I try to walk in spite of knowing that I am going to hurt more as a result, but one foot in front of the other is my only true option.

I try to remain hopeful, that one day, things will improve. It is very difficult to overcome feelings of hopelessness at times, but I fight that monster under my bed, to the best of my ability.

It amazes me that my local Pharmacy sells over 1200 Cipro a week and other than me, no one has been harmed, in the manner that I have.

To all of you who are in similar situations, my heart goes out to you. I pray that we will one day find some peace of mind, body and soul. For those that were harmed, but healed from the damage done, I could not be more thrilled for you.

I don’t want anyone who reads my story to feel hopeless as a result of doing so. My daugther gave birth six weeks ago to our first grand child Brooklyn(girl). We are expecting another grand child in October(a boy). After being terminated from my job of 34 years, and having 2016 as a year I would rather forget(but can’t) I landed a new job whihc I truly love. The CBD Hemp Extract has impacted my emotions in a positive way, so I do not find myself being overly negative.  There is hope to those who believe. As long as we have hope, great things are possible.

I will pray for all who suffer each and everyday, as a result of Big Pharma, caring only about how many more billions they can make, while ruining people’s lives.,

Stu in New Jersey

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Kim’s Story – Ciprofloxacin Poisoning

I am a 42 year old male (a husband and father of three children) from Tasmania, Australia. I have been suffering from suspected epididymitis since May 2017. After taking a number of courses of antibiotics (such as doxycycline) on and off over several months with some improvement, but no full cure, I was referred to a urologist. After a very cursory appointment of around 5-10 minutes he prescribed me Ciprofloxacin. No mention of any possible side-effects was made. Three days into taking this course of Ciprofloxacin (12 February 2018) I began getting pain down both shins. My legs also felt weak/heavy. By Day 5 the pain was considerably worse and had begun to spread to my ankles and feet. I decided to stop taking any more Ciprofloxacin tablets as the timing seemed to be too much of a coincidence (had now taken 10 tablets – 5 days of 2 tablets per day). I also read a number of peer-reviewed medical and research articles online and many other thoroughly researched articles online (from the US, Canada and Europe) that document thousands of cases of people who have had serious adverse reactions to Fluoroquinolone drugs – many whose initial symptoms were almost identical to my own. Over the next few days the pain continued to spread into my heels, ankles, feet, toes, shoulders, arms and elbows, with shooting pain in my tendons and muscles. I also started experiencing tingling sensations in various parts of my body – like little shocks of electricity that continued to move about the body – particularly limbs and face. My legs started to lose strength and I had difficulty walking. I also began to experience numb feet and toes. I have also experienced brain fog and considerable fatigue since this time.

On the 23 February 2018 my condition deteriorated rapidly. I was at work (I am a high school English teacher) and was walking to my classroom when my left ankle begun hurting much worse than I had been experiencing over the last few days. I was barely able to walk and just made it to my classroom by hopping. I went home and later that day to my GP, who referred me to Accident and Emergency. A number of tests, including blood tests were conducted there and the following week an MRI of my brain and spine was conducted. All results returned negative for other possible causes of my symptoms. A physician detected a lack of neurological sensations in my peripherals, particularly lower legs and feet. It is his opinion that my condition is fluoroquinolone toxicity caused by the Ciprofloxacin tablets I took.

I continue to have ongoing side effects. The pain has become more concentrated in my joints, especially ankles, shoulders, elbows and wrists, but I continue to have pain down my shins and arms. Just walking from my office to my classroom is difficult and painful as my ankles and lower legs become increasingly sore and weak with walking. Simply holding light objects such as a book for any period of time causes increased pain in my shoulder, arm, elbow and wrists. One of the side-effects that only emerged two months after the initial toxicity is a severe shivering/skin crawling that is very uncomfortable and bordering on painful (perhaps this is due to the weather cooling). I am taking the pain-killer amitriptyline (Endep) daily.

I have had to make the difficult decision of reducing my working hours to try to cope with the effects of this toxicity and give my body a greater chance to recover.

Other than my current physician and one other GP a few months ago who mentioned an antibiotic that might cure my epididymitis but could cause Achilles tendon ruptures (which he did not name but I now assume was Ciprofloxacin), all the other doctors I have seen have had no awareness of the well-documented and researched serious side effects of this drug. After speaking to two of the doctors, they (to their credit) went away and researched Fluoroquinolone Toxicity Syndrome and came back to me apologising that they had not previously been aware of this and intimated that this is likely what I am experiencing. In many countries this drug has been removed due to the acknowledgement of its serious and long-term side effects. In other countries, such as the US, this drug has the strongest warning label possible (black box warning), following pressure from many medical professionals and this issue resulting in court cases. The US has also already taken a number of other fluoroquinolone-based drugs off the market. It appears that currently Australia is considerably behind much of the developed world on this issue and it is my great desire that changes can be made in my country to avoid other people experiencing what I am experiencing – through the medical profession being made much more aware of the dangers of this drug, increasing the warning labels for this drug and prescribing this drug much more judiciously and as a drug of last resort (if at all).

I am grateful that I have a supportive wife, understanding children and a Christian faith and church community to help me wrestle with this condition. One of the most challenging aspects of this toxicity for me is the uncertainty: what will the next hour be like?  What will tomorrow be like? What will the next few weeks or months be like? I am still quite likely at the beginning of this journey (having read numerous people’s stories – many of whom are now years into their toxicity). I know that some have made almost complete recoveries within a few months and so am trying to be hopeful and realistic at the same time.

I would love to hear from any Australians who have suffered FQT, sharing what their experience has been like and whether they were able to get support from the medical profession or from others within Australia.

 

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

 

Laura’s Story

i am currently 26 with SLE Lupus, liver disease, asthma, major back problems seizures, auto immune disease, unable to walk or stand. wheelchair bound severe nerve pain and numbness and tingling that get’s worse everyday. severe back pain my body starts shaking out of no where. i took cipro a few times for UTI but didn’t have any severe symptoms till the last time 2015. i had surgery ended up having a UTI gave me cipro after having to come back from an allergic reaction to percocet and morphine caused me to have seizures again after being seizure free for 10 years. i couldn’t stay awake and don’t remember much except what my family said that they gave me cipro through IV very high dose. i was hallucinating really bad having excruciating pain in my legs and bleeding it wasn’t my period either i took it till i got out then i stopped it cause it was to much. about a month later the pain in my stomach returned and i started losing feeling with sex and started having more pain every day. i was in so much pain i couldn’t work and the seizures started getting to the point they were every minute or less and i would have a long where i wouldn’t be able to talk and lose all my strength and energy that happened 5 times in in 2015.

my memory was going on me i felt so sick all the time didn’t want to eat sometimes. then i found out i had sever fatty liver disease 84% fat that was september 2016 and my gall bladder was severely diseased and had to come out. i was very sick after i got it removed and a month after i started having bladder problems where i couldn’t control my bladder and going all the time and starting having pain again in my stomach not as bad but some pain. may 2017 i was working at out of no where i got exhausted and couldn’t stay awake i finished my shift but barely able to stay awake or walk my husband had to help me to the car. next day i was extremely slow slower then a snail barely able to move and no energy. and then i couldn’t walk i went to sleep and went in a coma for a day and a half i couldn’t wake up i could hear off and on but couldn’t wake up. then i started having breathing problems while i was in the coma and started choking and shaking really bad and thought i was going to die i couldn’t catch my breath. i woke up ate a little something then went into another coma for almost 3 days and it was harder to wake from my whole body was shaking i couldn’t stay awake. since may i still haven’t got my energy back i’m exhausted and been in a wheelchair june i found out i have Auto immune disease july i found out Sle lupus.

August i started losing feeling in my feet and became tingly then my legs and worked up to my arms and hands and face. august 26th i was unable to move at all i started choking and not being able to breathe my whole body started shaking and my whole body became paralyzed i couldn’t move anything not even my mouth i couldn’t talk i was drooling and couldn’t stay awake. my entire body has been numb since until a few days ago where i started having nerve pain all the time feels like electricity is being run through me from my back , finger tips, arms, hands, legs, ankles and toes it’s to the point where i am starting to have to take pain medicine cause of how much pain i’m in. i am currently in rehab right now trying to get strength back so i can walk again i’m very weak and this pain is making it really hard. i also feel like an old person and wake up every day wondering what obstacles i’m going to face each day and will i wake up I hope your feeling better and get better my friend told me about this i never realized but it makes sense now.

Andrew’s Story – Life Devastation from Cipro

andrew-fqwall

This is my story.  Add it to the other terrible stories on this website to show the world what kind of devastation these antibiotics are capable of.  I never intended to write on the wall of pain because I always thought I would recover, and quite frankly in doing this it brings up more pain.  FYI –  this is a long post.  Don’t read it if you are newly floxed.

I’ll start with describing my life prior to Cipro.  I used to enjoy SO MUCH that life had to offer.  I probably had too many interests and activities.  Some of these were:  snowboarding, rock climbing, hiking the rockies, playing soccer with my daughter, (anything involving being active with my daughter), road biking, lifting weights and playing ice hockey many times a week.  I was in a few adult hockey leagues.  I also enjoyed trying to learn the banjo.  I was really into art.  I used to do pastel drawings but my main passion was sculpting and I had plans of retiring as a sculptor.  I was in pretty good shape.  I was intelligent, sharp, and witty with a good sense of humor.  I was social.  I was confident.  I was generally happy.

I took Cipro in late December 2011 through January of 2012.  I was on 500mg twice daily for prostatitis.  I had never had anything like prostatitis before but I knew I wanted it gone asap.  After being on the medication for well over a week with no issues I started to develop pain in my forearms.  Initially this didn’t bother me and I attributed it to a long round of puck shooting when I went to skate days prior.  This forearm pain got worse to the point I started to wonder if it was the Cipro.

I started to google info on my forearm issue and I ran across horror stories online about how cipro had “ruined” people’s lives.  That word “ruined” kept coming up in these stories and I couldn’t really believe it.  I had been a pharmacist for years and never heard of lives being ruined by fluoroquinolones unless it was torsades related.  I didn’t believe these people on the internet.  Their stories didn’t match up with the FDA approved package insert.  At that time I trusted the FDA.  I took the med a few more days with the idea that if the pain stayed or if it progressed I would quit the Cipro.  The prostatitis still hurt worse than the forearm pain.  What was the worst that could happen?  A torn tendon?  I woke up one day with achilles and right shoulder pain.  Ok that was a definite warning sign.  I immediately stopped taking Cipro.

My forearm tendonitis got worse but thankfully the achilles and shoulder pain went away within a day or so and it made me wonder if I had quit Cipro unnecessarily but I stuck with my decision.  Eventually my forearms hurt so bad it was difficult to open doors, wash my face and brush my teeth.  My forearms hurt like this for at least 6 months (to this day they have never fully recovered) but hey at least nothing like that crazy stuff on the internet happened to me… right?  Life went on and I completely forgot about Cipro.  I continued to be very active playing hockey, going on backpacking trips, hiking etc.  That summer I hurt my right shoulder doing pull ups but chalked it up to the fact that I hadn’t done them in awhile.

Near the end of 2012 I wanted to start working out again since I had quit for most of the year but my nagging right shoulder along with my still  recovering forearm tendonitis prevented me.  I finally started an intense workout program in March of 2013 after my shoulder felt better and that is when I noticed that my shoulders felt loose and crunchy.  I felt grinding and popping in both of them.  This is when the wheels started to fall off.  I had to quit working out not even a week into my program because of the sharp pain in my right shoulder.

It was also  in late 2012 and early 2013 that I started to experience anxiety and brain fog.  I had trouble focusing at work.  I really didn’t think too much of it.  I had shoulder issues and forearm issues but that was it.  Then in the summer of 2013 I developed knee pain.  Then in the winter of 2013 hip pain, along with dry eyes, dry skin, ringing in the ears, TMJ in my jaw and the occasional strange flash of light comet type thing.  I developed floaters.  In 2014 my autonomic dysfunction (that I had prior to all of this) got worse.  I started to feel like I was going to pass out or die when I exercised.  I started to feel more lightheaded and foggy at work.  I started to feel like I was going to pass out especially when I got in a tense situation that involved a lot of stress.  I started to notice a correlation with this brain fog with my coffee drinking (even though by this time I had intense brain fog all of the time).  I soon realized that I couldn’t tolerate coffee anymore.  I developed a fibrillating feeling in my chest that corresponded to feeling like I was going to pass out.  The lightheadedness and fibrillating feeling continued despite me quitting coffee.

In 2015 the pain spread to my hands.  I noticed that I could no longer play my stringed instruments because my hands would get so painful so quickly.  Mainly this was in my thumbs.  I could no longer sculpt because of this and the fact that my eyesight was getting worse.  I started finding it hard to read.  It seemed like parts of my vision were missing.  I went to eye specialist after eye specialist and they could find nothing.  I still have this problem.  For example I have to look at my wife’s right eye if I want to see her whole face.  If I look at her left eye part of the right side of her face is missing.  You would think this would show up on eye tests but it doesn’t.  It reminds me of the strange vision some people get with migraines.

In the summer of 2015 I had a little reprieve from some of my symptoms.  I got on my road bike and through pain I went on a few 20 mile rides.  I thought I was getting better so I went hiking with my wife and went many miles.  After this hiking trip my knees were never the same.  They have since become loose with some strange popping.  The backs of them hurt bad all of the time.  I feel like I can hardly walk a few blocks now without feeling some major pain and a swelling feeling.  In late 2015 I started on testosterone and glutathione injections.  (My testosterone levels were low for the first time in my life)  I developed some pretty severe hamstring tendonosis despite not being that active at that time.  Since last fall/winter of 2015 I have become inactive.  I do nothing physical anymore.  I feel like my body breaks down when I do.  The new addition to my pain, which has far surpassed my torn right shoulder labrum, both my torn hip labrums, my right knee torn meniscus has been my back.  I feel nearly constant back pain from my lumbar to between my shoulder blades.  It seems to be getting worse.  I feel like the glutathione and testosterone might have made me worse but I’m not sure.

I have been to many Dr.s, family drs, orthopedic surgeon, 2 rheumatologists, many eye docs, a neurologist, a regenerative medicine Dr.  I have had MRI’s, some of my brain.  I have had many tests which nearly all come up normal.  Nobody so far has been able to help me.  I failed a cognitive function test with the neurologist.  I have severe brain fog to the point of feeling like I have dementia at times.  I am no longer social as I have problems carrying on a conversation.  My mind blanks out a lot.  I have problems with word finding.  I even feel like I have to fight slurring my speech at times.  I have problems with typing now.  I used to type very fast.  I have problems with reading comprehension and find myself re reading things a lot.  I get confused often.  I feel like my mind plays tricks on me.

I don’t know why all of the information says that fluoroquinolone toxicity can develop as late as 6 months, or even many months.  It seems like it is still developing with me.  Nearly all of my symptoms came OVER A YEAR after I took this evil poison.  This whole thing has been so bizarre.  In a million years I could never have dreamed up a worse nightmare for myself.

People don’t understand what it’s like to be floxed.  People look from the outside and see normal.

What is it like to be severely floxed?  You wake up every day in a nightmare that you can’t get out of.  You wake every day in pain.  You become fragile and weak.  You injure yourself easily.  You feel 100 years old.  Your IQ feels like it is dropping by the day.  Your body creaks, grinds and pops.  You can no longer do any of the things that made life fun and enjoyable.  You no longer exercise.  You try all day long to find Dr.s, information on the internet, anything that will help you.  You spend countless hours on floxie hope, various facebook groups trying to find help.  You look into candida overgrowth.  Fluoride poisoning.  Leaky gut.  Mercury poisoning.  You become obsessed.  You become paranoid.  You think  “what other types of evil chemicals has man concocted and are they in my food, water supply etc”.  You read many studies on fluoroquinolones that don’t help you.  You cut out gluten.  You cut out GMO’s.  You try various diets.  You cut out anything that has antibiotics in it.  You eat only organic.  You can no longer go to a restaurant with your wife on a date.  You buy books.  You read them.  They don’t help.  You take 40 supplements a day to try to reverse this horrific nightmare.  You avoid people because your brain isn’t working.  You lose friendships.  You become isolated.  You find yourself crying at work or at random times.  You want to do fun things with your family but you can’t.  You can only watch tv and movies now.  You used to be the active dad that played soccer with her daughter and all of the other kids but now you watch.  You watch life go by from the sidelines.  You want intimacy with your wife but your body doesn’t always work like it used to and you don’t have the drive you used to.  You stop going to church because being social is too stressful for you.  You become forgetful.  You can’t remember things you did earlier in the day.  You find yourself falling behind on yard maintenance, things around the house, bills etc.  You feel like you are failing your family.  Mowing the yard is a workout and painful.  You can barely make it through the day at work.  You avoid contact with coworkers because you know your aren’t right anymore.  You become silent.  You aren’t funny anymore.  You don’t have a personality anymore.  People start to think you are weird, antisocial, lazy but really you just can’t think and you hurt all of the time.  You want to walk out of work, out of your life but you have bills to pay and a family to provide for.  You are anxious.  You are beyond stressed out.  You pray for healing constantly.   Eventually you start to pray for death, for terminal cancer, anything that has an end in sight.  Anything that will end this nightmare.  Anything that will end the pain.  You start to think about suicide.  You start to fight suicidal thoughts.  You are hanging on by a thread, every single day and most of the people around you have no clue.  You are no longer you.

This type of thing shouldn’t happen from taking an antibiotic 4.5 years ago but it did.  Sadly, it will continue to happen to others.  How many people (especially the elderly) are out there going through the same type thing but have no clue it was an antibiotic they took years prior??  The majority will be women and elderly because that demographics gets fluoroquinolones the most.

It won’t always be like this, the pain and suffering.  If you are fortunate to have good health, that won’t last either.  I have to remember that.  Inevitably our bodies will deteriorate to the point of death and then eternity begins.  I like to think that the real life will begin.

Revelation 21 :

Then I saw “a new heaven and a new earth,”[a] for the first heaven and the first earth had passed away, and there was no longer any sea.2 I saw the Holy City, the new Jerusalem, coming down out of heaven from God, prepared as a bride beautifully dressed for her husband. 3 And I heard a loud voice from the throne saying, “Look! God’s dwelling place is now among the people, and he will dwell with them. They will be his people, and God himself will be with them and be their God. 4 ‘He will wipe every tear from their eyes. There will be no more death’[b] or mourning or crying or pain, for the old order of things has passed away.”

5 He who was seated on the throne said, “I am making everything new!”

I struggle to have hope for this life but what keeps me going is my amazing wife (who I’ve only been married to for two years, she’s been through so much with this), my daughter and most of all my faith in Jesus Christ as my Savior and thoughts of the afterlife.  If you don’t know the good news about Jesus Christ contact me through Lisa if you want to learn.  If I didn’t have these in my life I would be 6 feet underground by now for sure.  I would have taken my own life.  I understand why this class of medication has a fairly high suicide rate.  There are worse things in life than death.  I continue to pray for a miracle because I do believe in that sort of thing.  Hopefully, God willing, there will be healing in this lifetime.  I also look forward to the next life where there will be no greed driven corruption that destroys other people’s health, quality of life, relationships, and families for the price of a prescription.  The drug companies and the FDA have known about these quality of life destroying reactions for years and years but didn’t warn us adequately until this year, and still the warning isn’t good enough.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Sierra’s Story – Cipro Poisoning

Pic - Sierra -

This is my story of fluoroquinolone toxicity:

In July 2014, I was prescribed a ten day course Cipro for a urinary tract infection. I didn’t think much of it since I had taken this class of drugs in the past with no reaction. This time was different than before as I experienced a serious adverse reaction. I took Cipro for 7.5 days, and then discontinued taking the medication since my symptoms were becoming progressively worse.

The pain in my legs was so bad, I could barely walk. It was a pain that is hard to describe, but it felt like I was very stiff, and the pain was spreading. The stiffness in my legs turned to numbness, and my legs would tingle when touched. I felt like my legs were dying. I also had headaches, nausea, dizziness, sensitivity to light and pain in both Achilles. The doctors dismissed my issues and I was released and sent home with my parents. For the next 48 days I wasn’t sure if I was going to live. Within the first 24 hrs of leaving the hospital the numbness and tingling I felt begin to spread up to my legs to my hips, and then to my back and eventually spreading over my entire body. I experienced excruciating body-wide tendonitis and nerve pain – in my toes, feet, ankles, shooting up calves, lower back, ears, wrists, elbows, and hands. Everything felt like it was ripping and pulling. My entire body was swollen and stiff; my toes were so swollen that they curved downwards and would not return to a resting position. I was in severe pain, more pain than I could imagine was possible. Just to sit up in bed was difficult and agonizing. I was so weak I couldn’t lift a normal cup without feeling a strain on my wrist. On top of the pain I was dizzy, nauseated, light headed, feverish, and could feel every beat of my racing heart. I had burning sensations that felt as if a baseball on fire had landed on my legs, random twitching, extreme sensitivity to light (my family had to black out my windows), new floaters in my eyes, my ears were constantly ringing, my body would crack whenever I moved, and other symptoms. I lay in bed and cried as my body was unbearable to live in. I wasn’t even sure that I could make it. The only minimal relief I would get was when my family would lightly rub my body where I was hurting or just hold the area. My whole body was wrapped in ace bandages.

During these initial few months, my family and I did everything possible to detox my body. I went on an all organic diet and only ate food that decreased inflammation. I would also do contrast bathing, which was recommended by a podiatrist, to increase the blood flow in my tendons and ligaments.

In September 2014, two months after my ordeal began; the pain finally began to decrease. However, I would still experience random pains daily, including constant Achilles stiffness, and intractable exhaustion that made life difficult. The pain decreased enough that I thought I was going to be ok. I could live with the pain I was in.

For a few weeks I was actually able to see my friends, go to the store, and get a job. I was in the middle of a career transition when I got sick, and I had just received my Real Estate License. After starting my new job I had a relapse and went backwards. The pain increased and the fatigue became debilitating.

What I experienced is not normal fatigue. My fatigue feels like the energy is sucked right out of my body. I didn’t even know what fatigue was until this happened. I couldn’t even take a shower and blow-dry my hair without taking a nap in between. The daily low grade fevers, nausea, dizziness, exhaustion, weakness, and pains have left me totally disabled. I have not had a normal life for the past year. My mother has to be my full-time care taker. I am unable to cook for myself, go grocery shopping, drive to the doctors, do laundry, clean the house, or any normal activities. I used to love going to dinner with my friends, shopping, walking and hiking outdoors, working out, boating with my family; but Cipro has left me housebound. Without a full-time care-taker I would not be able to survive since I am unable to do the necessities to survive on my own.

My life consists of going to doctors, and trying to find something that will make me feel better. The Mayo Clinic diagnosed me with Chronic Fatigue Syndrome (recently renamed to Systematic Exertion Intolerance Disease), Fibromyalgia and Central Sensitization Syndrome. The Mayo Clinic had nothing that could assist me, and they suggested that I look into alternative medical treatments. I have tried all alternative medicine to get better including: acupuncture, infrared saunas, hyperbaric oxygen chambers, energy healing, neural therapy, electromagnetic beds, essential oils, a plethora of vitamins, and IV therapy including IV vitamins, IV ozone, IV H2O2. I have spent thousands of dollars with the hope of recovering from Cipro toxicity, but have not seen much relief at this point. The only items that I have noticed help my symptoms are IV therapies. All I can do is warn everyone I know about the dangers of Fluoroquinolone Antibiotics. Please do not take these drugs unless it is a last resort. Inform yourself, read the side effects, and ask for safer medications.

Lynda’s Story – Ciprofloxacin Poisoning

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On Friday, March 13, 2015, I went to a walk-in clinic as I was experiencing muscular soreness in my lower back, buttocks, and thighs. I was accustomed to dancing at an advanced level in Zumba classes as well as in other dance classes for about 25 years (two hours per day). The physician assistant had me take a urine test; he then came racing in the room saying more than once, “This is the worst infection I have ever seen!” He gave me a prescription for ciprofloxacin, 500mg x twice daily for five days. Understand, I didn’t present with a single symptom of a bladder infection, I wasn’t ill, I am 72 and weigh 100 pounds. Furthermore, he called me Monday to tell me that the culture had come back negative and that I never had an infection in the first place. I foolishly didn’t read about the drug before taking it and begin to experience symptoms almost immediately – so much so that I stopped the cipro after taking 5 of the 10 pills. The only other antibiotic I ever had a reaction to was clindamycin taken 22 years earlier; it took 5 months to get rid of clostridia difficil – vancomycin and cholestyramine were repeatedly administered. These are my symptoms from the cipro: ear ringing, eyes burning, muscle pain and weakness, muscle twitches, burning calf muscles, forearm pain, upper back pain, thumb, wrist, ankle and Achilles tendonitis, popping and cracking joints, widespread body pain, anxiety attacks, insomnia and extreme fatigue. I haven’t exercised at all since taking the cipro for fear of rupturing a tendon. I have seen many specialists, but to no avail. Needless to say, this is the worst experience of my life; I am terrified of what is to come. Each day, I truly feel like I have been poisoned – because in actuality, I have. There have been just a few better days during the past six and a half weeks that I have been suffering. As horrific as this has been (I have even had to pay drivers to take me to my medical appointments), I sense that my body is desperately trying to overcome these adverse events. If it turns out that I make a slow but steady recovery without any significant relapses, it may be that it was not ingesting fluoroquinolones in the meat supply for 29 years that was the main factor in my recovery. On the other hand, if the converse is true, it would mean that not being exposed to fluoroquinolones in meat, made no difference at all in my recovery. At the time of being prescribed cipro, I was 100% healthy and feeling wonderful; I can barely get through the day now and unlike my former self, am completely inactive, virtually housebound. Nonetheless, I remain hopeful and have been very kind, understanding, and forgiving of the physician assistant who prescribed cipro to me.

Michelle’s Story – Cipro Induced Lupus

Michelle Lupus

The diagnostic paperwork says, “Lupus – onset 3yrs ago: Triggered by Cipro use.”

 

Michelle’s story:

July 21st.2011 a day I will never forget. The day that I had my severe adverse reaction to Cipro.  The day prior I had went to my Dr.’s office because I felt the onset of a UTI, my children were in town and I didn’t want to be laid up in pain.

The Dr. asked me if I had taken Cipro before, I said “no.”

She then said to me really fast “If you feel pain in your arms let us know”. Then headed out to see the next patient.  I took 3 pills.. a dose and a half. An hour or so after my last pill I took I was so weak to lift my finger felt heavy.  My body ached everywhere. I then became so tired … It took my husband about 10 minutes to wake me up..to even get a reaction out of me.

Ever since then I have experienced heart racing, seizure, temporary hearing loss, stinging, burning, tingling, and numbing in my arms, legs, wrists ankles fingers shoulders…everywhere.  I have been up for hours at night crying in so much pain everywhere I just wanted to die.  So weak, exhausted. I have had loud ringing in my ears, my blood pressure has elevated to 140/100. I have never had high blood pressure. I am losing about 3 pouds a week. I have a huge loss of appetite.

I feel as though acid is running thru my veins and my body is burning inside.

These are just some of the things I have experienced , certainly not all.

Prior to Cipro I was active, loved to laugh, loved to go on walks. I smiled all the time. Now I am lucky if I can walk down 3 aisles at the store without stopping. It takes so much energy just to laugh.

Cipro has robbed me of me. Sucked everything out of me.

I didnt want my kids to have to deal with me in any kind of pain while they were here, I was doing the right thing by seeing the Dr.

What they ended up seeing was me in devistating pain, tears that will not stop and wondering if I was going to make it.

The Dr. didnt try anything else prior to giving me Cipro, didnt tell me that it had huge risks.. didnt even give me the option to choose.

I am forever scared of Dr.’s and they’re intent from now on.. never will I trust them.

I have told everyone I know to never take this , Those closest to me have seen the devistating effects of Cipro. For I have felt pain where I never knew pain existed..

My life has done a complete change.. the life I once had is gone. The mental anguish this has given me is beyond words..

everyday something new..the pain never stops.

Note – Three years after Michelle took Cipro she was diagnosed with Lupus.  Her paperwork stating that Lupus was brought on by Cipro is pictured above.

Karen’s Story – Levaquin Side-Effects

Karen FQwall

Karen’s story: I was given Levaquin in an IV for a back procedure on December 9, followed up with 750 MG Levaquin for 5 days. By the second day, my right calf hurt and by the 4th day, I could no longer walk. The pain management PA told me it was fibromyalgia or the flu–still will not admit that it is the Levaquin. I will never go back there. I cannot sleep, cry all the time, and have excruciating muscle, nerve and tendon pain and it feels like electric shocks are traveling all over my body. I had a total knee replacement October 19 and the pain from this is worse than the pain from my knee replacement recovery. I don’t know what to do other than drinking detox teas, taking epsom salt baths and making vegetable juices that are supposed to have anti-imflammatory properties in them. I see my primary doctor tomorrow and am hoping she can help. She is more of a natural medicine doctor.