Tikvah’s Story – Ciprofloxacin Toxicity

Feb. 1, 2014 I was taken to the ER for acute pancreatitis which was caused from my gallbladder’s acute inflammation.  They kept me in the hospital for 4 days, no food no water, to get the pancreatitis taken care of so they could get the GB taken out after that.  I was pumped full of 3 bags of ciprofloxicin which was toxic to my body.

In the course of just a little over 2 yrs. now [i.e. Mar. 2016]. I have gone from not being able to dress myself, nor get out of bed, nor turn over in bed by myself to being able to get up o/o bed by myself in the first 4 mos. after the surgery to then not being able to walk without help, or get up and down in or out of a chair or a sitting position without excruciating pains throughout my body.  I could hardly take care of my personal hygiene in the bathroom for the first 6 or 7 mos.

Then I graduated to more easily being able to dress myself, but still with struggles and to walking with a walker.  Still needing help getting up and down, in and out of sitting/laying positions.

Have never been able to sleep well for the past 2yrs.  And it’s gotten worse.  I also have tendonitis in both of my heels, left heel is worse, and it generates all of the way back up my leg.  My feet hurt terribly by the end of the day, each day and I can hardly walk.  I can not go up/down stairs easily at all.  I need something to hold on to, or someone, and I must take ONE step at a time with both feet on one step.

I went from using a walker for 1/2 a year to using a walking cane for a year.  Now Nov. 2015 I stopped using my walker, and can walk on my own, although I must take is slowly.

I am no longer able to uphold my duties as a wife sexually or the household duties.  I can go to the store and do some shopping but by the time I get home, I am in excruciating pain and must rest a complete 24 hours or more.

I have pains throughout my body that, in my opinion, mimic fibromyalgia and MS.  The pains in my muscles and joints are in my shoulders, elbows, wrists, hands and fingers, my lower and mid section of my back on the left side, my hips, knees, calves, ankles and feet.

My eyesight has been deteriorating and I have had 4 teeth fall out.  I have ALWAYS had a good healthy set of ALL of my teeth prior to this. I have also developed tinnitus.  I have also gained weight since I have been unable to perform daily activities or exercise.

I have bouts of depression from not being able to do the normal tasks of daily life.  I have to stay away from certain foods now, such as any meats wherein the animals have been given antibiotics as they tend to increase flare ups of inflammation and pain.

I supplement daily now with magnesium, D3, calcium, MSM, iron, and I have recently added in iodine weekly.

I also have a topical magnesium spray that I spray on my tendons in my heels that helps.  I can tell if I miss my doses of magnesium as the pain sets in.

So all in all then, in just a little over 2 yrs. I have gone from not being able to walk at all to using a walker, then a cane, now nothing.  But I still can not go up and down stairs alone, and it is still painful and slow moving to walk. and I have some symptoms that seem to be permanent.  The tendonitis, and the symptoms that seem to mimic fibryomyalgia and MS.  The tinnitus, the weight gain, and the loosened teeth.

I hope that my story, my input, and others will help to remedy the problems and get these type drugs off of the market for every day type infections in adults and children and only be used for what they are intended for and from what I understand that would be something that is life threatening and extremely serious in the family of a deadly plague.

Fast forward now ~ update January 18, 2018, the residual affects that remain are the problems w/ the tendons, especially in my heels and that go up to the hips, the sciatica, what mimics MS and fibromyalgia, the daily depletion of magnesium and vit. D from the body, among other minerals, the decay in my eyesight, and I still have problems with walking up and down stairs or for long periods of time.

I can go to the grocery store and shop, but by the time I get home, I can barely walk and get the groceries up the stairs and in the house and put up.  I am able to walk now without my cane, but in the winter, IF I have to go out, I take it along with me so I don’t slip and fall and I hold on to someones arm as I walk for safety.

I can dress myself now but I can’t get in/out of a tub by myself very easily at all, so opt for showers rather than sit baths, which I miss so much.  My hair has thinned.  I lost a total of 6 teeth in the back, but am taking extra good care of them and hoping that the extra care will help thwart the loss of any more.  Same with my eyes.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, affect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.

Jon’s Story – Tinnitus from Fluoroquinolones

In December 2016 I fell from a ladder and fractured my Coccyx, one of the complications that came on about 2 weeks after the impact were symptoms of a non-specific urinary tract infection and blood in my semen. I was prescribed by my doctor a 1 week course of Ciprofloxacin, 2 tablets a day. I’m usually reluctant to take antibiotics but due to the worrying nature of the symptoms I started the course in good faith.

Mid way into the course of treatment (having taken 9 out of 14 tablets), I returned home from work that day feeling dizzy and unwell and went to bed at 9pm. At about midnight I woke with the most alarming ringing in my ears, completely deafening in volume that made me leap from the bed and shout to my wife in a highly stressed state. The ringing subsided slightly over about 15 minutes so I tried to calm down and return to sleep. As soon as I started to fall into a light sleep the ringing would return to maximum intensity and wake me with a fright. This was the start of an alarming cycle which meant I was getting no more than about 30 minutes light sleep before waking up due to the tinnitus.

I called my doctor the next day and as my infection symptoms has subsided he agreed I should stop taking the Ciprofloxacin and that my tinnitus should disappear as the medicine left my body. However this was not to be the case, during that first day I was aware of a constant hissing in my left ear and a higher pitch whistle in my right ear. That night when I tried to sleep the same cycle continued, on falling asleep the tinnitus would ‘spike’ and wake me a short time later at such a loud volume if felt like a pressure valve going off in my head. It would subside over several minutes, I’d fall back asleep but the same pattern would continue. After a few days I became increasingly exhausted and distressed, the hissing ‘soundstage’ would remain during the day and at night the spikes continued I’d have the most terrible time sleeping. I couldn’t work and returned to the doctor several times in those first couple of weeks who said I was experiencing an acute stress reaction to the sudden onset tinnitus. I returned to work after about 3 weeks but had never felt so broken and at a low ebb.

The months that have followed have been tough. The tinnitus is always there during the day and still very loud during the night, I’ve found that it is quieter in the morning and builds throughout the day in volume. It also varies in intensity in each ear day to day and this changeability makes it very hard to habituate. I’ve been seeing an ENT consultant who reported my reaction to the drug and carried out an MRI scan to check if there was anything underlying that could have caused the problem – there wasn’t. He confirmed that my hearing has been affected and I’ve experienced moderate high frequency hearing loss in both ears.

I’ve had some cognitive therapy treatment from a hearing specialist working with tinnitus sufferers which has helped a little. I’ve found coping techniques such as playing ocean noises at night have helped improve my ability to sleep which has meant life has returned more or less to normal. I do however feel my tinnitus symptoms are gradually worsening over time, I seem to have more bad days and nights than I used to in the early months. Recently I’ve had a head cold and that seems to have worsened them still and at times i struggle with daily life and feeling positive. My ears are very sensitive to loud noises now. My wife and I sleep in separate rooms because of the sleeping issues, this has impacted on our relationship and the ease of doing things we used to enjoy such as nights away. What saddens me most is that my life feels compromised, my wife see less of my fun side and not able to be the strong one in our relationship any more.

My wife recently became pregnant for the third time and we were concerned that my health issues along with some other significant pregnancy health risk factors affecting my wife that a third child (3 under 3 years) would put both too much risk and pressure on our family. We made the unbelievably difficult decision in December 2017 for an early termination of the pregnancy to ensure we can focus our love and attention on our 2 young boys already here. Whether we would have made the same decision if I’d never taken Cipro and the challenges that this has brought into our lives is something that will haunt me to the grave.

My wife and I both felt something positive needed to come from our sad decision so this year I’m committed to getting the support i need to help me with my tinnitus starting with a local tinnitus support group and audiology assessment later this month. I’m focusing on the loved ones in my life and being thankful every day for what i have. I’m making sleeping separately the exception rather than the norm (trialling a sleep headband that plays sound). I’m eating healthily, drinking in moderation, going to bed earlier and doing more structured fitness all which helps with my mood and general well being. I’m determined to live life to the full and bring happiness to those i love despite what has happened to me.

** The story above is truthful, accurate and told to the best of the ability of the writer. It is not intended as medical advice. No person who submits his or her story, nor the people associated with www.fqwallofpain.com, diagnoses or treats any illness. The story above should not be substituted for professionally provided medical advice. Please consult your doctor before trying anything that has been mentioned in this story, or in any other story on this site. Please also note that people have varying responses to the treatments mentioned in each story. What helps one person may not help, and may even hurt, another person. It is important that you understand that supplements, IVs, essential oils, and all other treatments, effect people differently depending on the millions of variables that make each of us unique. Please use appropriate caution and prudence, and get professional medical advice.